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If you are on private health stay in hospital when you have the treatment. That way you will be totally covered. I was when I had my first round. But I now have moved to public and don't pay anything… read more
Hello Group - My name is Pam, 63 year old retired nurse. I just finished 6 months of Bendemustine/Rituxamab (BR) treatment for follicular lymphoma stage 4. The majority of providers are recommending a 2 year - every 2 month infusion of Rituxamab. I've also heard some LLS physicians state they no longer use this protocol due to weakening of the immune system - with COVID and all still active would increase our chances of getting it. Anyone have advise/opinion on this? I personally don't feel… read more
I thought I read/heard that this is now available by injection as well as infusion is that true?
Yes - I know that I was offered both RCHOP and Rituximab by itself. It was only later that the little lightbulb went off that the R in RCHOP is Rituximab.
I started with RCHOP (retuximab + chemo) but it was not very effective and my doctor changed treatment to Obinituzimab + Bendamustine. And now Pet scan shows much better result. Yuhhhooo!
Two years ago, I was diagnosed with Marginal Zone lymphoma. I was told that I have cancer in my bone marrow- about 10-20%- My oncologist put me on the watch and wait as I have no symptoms. Does anyone else have cancer in their bone marrow, and did you receive any treatment (chemo?)
Sue6
Neuropathy, in feet and optic nerves
Also the normal bone pain, fatigue in afternoon
I work really well, get lots accomplished from sun up until around 2 or 3 then that's it.
But have to say… read more
Hi Micheleri, Many thanks for your input and I will ask my consultant regarding your experience with said drugs. I wish you good health for the future. Best wishes John.
I am one year lymphoma free in June I have been doing great but now I might have it it my brain Tests are coming.
For everyone that made it through to remission from lymphoma in the brain or spinal area I am soooo happy for you! For those who are still struggling be sure that either you or your advocate ask… read more
I was diagnosed with Follicular Non Hudgkin's Lymphoma last year in November. Had 4 Month Chemo with Bendeka. Now in remission, and was recommended to do a 2 year maintenance treatment with [[treatment:Rituxan Hycela:5c648bd265df61506ecba9a7]]. Anybody else has the same treatment? Is it standard to do it after chemo? What are the long term side effects? I feel fine, but still worry about this
Anybody completed the 2 year? Was any recurrence of the cancer shortly after finishing treatment.… read more
I tried the maintenance once and mine recurred while on it. I do much better just getting a round of rituxan when it recurs.
Hi friends, I recently had a bone marrow biopsy that showed that 37% of my bone marrow is being affected by the marginal zone lymphoma. My doctor has recommended 4 weekly treatments of Rituximab. I am curious to know from any of you who have had treatments with this what your experience has been and what I should expect. My understanding is that some people have allergic reactions to the treatment and that it also affects your immune system, but other than that I don’t know much. Thanks in… read more
Yes the pretreatment worked well for me I just finished my 6th cycle
Just had shoulder manipulation on uninjured shoulder n doing well so far, three days out!! PT is not fun, but it is certainly helping and the pain before has lessened and I can now move my arm… read more