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Real members of MyLymphomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
1566 questions
I Have Daytime Sweats That Get My Hair Wet My Face My Upper Torso When I Do The Lightest Activity And It Stops You In Your Tracks
A MyLymphomaTeam Member asked a question šŸ’­

My oncologist never asked what symptoms I am having his visits are 15 min ! And I try to ask question as I have RUNX1 familial rare platelet disorder related to multiple malignancies and have yet to be tested or treated and already having pulmonary embolism you would think ? The lab test and tx is under Pubmed ! It is discouraging and I am not going to be told to go to Mayo, Moffitts, UFShands the worse specialist that assume a patient is alcoholic rather than read the medical notes it is NAFLDā€¦ read more

A MyLymphomaTeam Member

Hi Cathy - I highly recommend your making an appointment with a different oncology group. No need to share your experience you've had with the group with which you are currently a patient. Have accessā€¦ read more

posted May 6
The Protocol For DLBCL Is 6 Rounds Of RCHOP, However Heā€™s Gone Into Total Remission After 3 Cycles.
A MyLymphomaTeam Member asked a question šŸ’­

He was diagnosed as stage 3 but is in complete remission after half the chemo, is there any reason he would do more than 4 cycles? It seems crazy that he would pump those chemicals into his body when thereā€™s no sign of disease just because itā€™s protocol. I canā€™t find any research regarding this.

A MyLymphomaTeam Member

I had my treatmentā€™s reduced in strength when severe reaction occurredā€¦negotiate a plan with oncologist

posted May 9
Hi Everyone. I Have Just Completed Treatment For DLBCL NH Lymphoma. I Love Wine And Iā€™m Wondering If Anyone Out There Continues To Drink It
A MyLymphomaTeam Member asked a question šŸ’­
A MyLymphomaTeam Member

Give it time I love bourbon but had to give it up through treatment. As I recovered I was able to enjoy it again.

posted May 7
How Long Does The Tiredness Last After Completing The Six Cycles Of Bendamustine And Rituxan.
A MyLymphomaTeam Member asked a question šŸ’­

I get my 4th cycle next week and I'm wondering how long I can expect to feel tired after this treatment is done.

A MyLymphomaTeam Member

you could use some natural supplements from NCHC, they prescriptions are extremely effective , i am certain it will really help

posted May 6
Has Anyone Been Diagnosed With "Triple Hit" DLBCL? It's Rare And Conventional Therapy Hasnt Respond To It? Looking For Alternative Therapy
A MyLymphomaTeam Member asked a question šŸ’­
A MyLymphomaTeam Member

CindyBlow,
I hope you find a treatment that helps you. I hope you have a peaceful day. Kelly

posted April 30
Just Wondering If There Is Anyone Else In This Group Who Has Primary Cutaneous Bcell Lymphoma ? I Know We A Very Rare Bunch ā˜ŗļø
A MyLymphomaTeam Member asked a question šŸ’­
Has Anyone Received The Immunotherapy Mosunetuzumap? It Is Only Available In The Large City Hospitals. I Finished My 8th Cycle-have 4 More
A MyLymphomaTeam Member asked a question šŸ’­
A MyLymphomaTeam Member

Good Luck and God Bless

posted April 28
What Is Second Line Therapy For Marginal Cell Lymphoma. ( This Is After A Successful Course Of Rituxan.
A MyLymphomaTeam Member asked a question šŸ’­
A MyLymphomaTeam Member

I don't know. Right now we are just being followed and Joan is somewhat apathetic which frightens me. I laugh which is a way of coping with terror. I would like to know what the future steps areā€¦ read more

posted 6 days ago
For The Survivors Of Breast Cancer, Did It Hurt When You Squeeze Them, One Of Mine Is Painful When I Pinch Just A Little??
A MyLymphomaTeam Member asked a question šŸ’­
A MyLymphomaTeam Member

Yes it does hurt when you squeeze them. Best not do it.

posted April 30
Does Anyone Suddenly Have Panic Attacks.
A MyLymphomaTeam Member asked a question šŸ’­

I gave NHL follicular. Sometimes I just get panicky. Anyone else?

A MyLymphomaTeam Member

Yes, and it is totally understandable. Along with prayer, a counselor suggested I focus on what is happening in the moment--what do a see, hear, feel, smell and taste right now. Most of my panic isā€¦ read more

posted May 4