I Have Daytime Sweats That Get My Hair Wet My Face My Upper Torso When I Do The Lightest Activity And It Stops You In Your Tracks | MyLymphomaTeam

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I Have Daytime Sweats That Get My Hair Wet My Face My Upper Torso When I Do The Lightest Activity And It Stops You In Your Tracks
A MyLymphomaTeam Member asked a question 💭

My oncologist never asked what symptoms I am having his visits are 15 min ! And I try to ask question as I have RUNX1 familial rare platelet disorder related to multiple malignancies and have yet to be tested or treated and already having pulmonary embolism you would think ? The lab test and tx is under Pubmed ! It is discouraging and I am not going to be told to go to Mayo, Moffitts, UFShands the worse specialist that assume a patient is alcoholic rather than read the medical notes it is NAFLD… read more

posted May 5
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A MyLymphomaTeam Member

Hi Cathy - I highly recommend your making an appointment with a different oncology group. No need to share your experience you've had with the group with which you are currently a patient. Have access readily available to all most recent scans/lab reports. Since you are not feeling supported by spouse, perhaps a close friend will attend appointments with you. Wishing you the very best through this! - Mary

posted May 6

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