Questions & Answers

I was diagnosed with indolent Mantle Cell Lymphoma. No symptoms, almost nothing to detect in blood test and some very small lymph notes seen on PET scan. Biopsy and testing pointed to very slow indolent process. Had 4 months first follow up scan and blood test. Very little changes in scan and blood test. I have urticaria for 2.5 years which was not attributed to any lymphoma at that time. But now it may have been a symptom of it. Doctor offered now those 2 choices. She says that this treatment… read more

My oncologist never asked what symptoms I am having his visits are 15 min ! And I try to ask question as I have RUNX1 familial rare platelet disorder related to multiple malignancies and have yet to be tested or treated and already having pulmonary embolism you would think ? The lab test and tx is under Pubmed ! It is discouraging and I am not going to be told to go to Mayo, Moffitts, UFShands the worse specialist that assume a patient is alcoholic rather than read the medical notes it is NAFLD… read more

He was diagnosed as stage 3 but is in complete remission after half the chemo, is there any reason he would do more than 4 cycles? It seems crazy that he would pump those chemicals into his body when there’s no sign of disease just because it’s protocol. I can’t find any research regarding this.

I get my 4th cycle next week and I'm wondering how long I can expect to feel tired after this treatment is done.