I’d like any and all advice, information and stories on diffuse large B cell lymphoma!
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I have had no hodgkins lymphoma for over 9 months and receive chemotherapy every three weeks weeks.
So true Pat…Such good words of advice which I will take on board. Xxx
I’m so glad ! Thank you !
My uncle has DHL and he just completed his chemotherapy and went to radiotherapy for persisting mass ...he has deauville's score 2 and has complete metabollic response for the initial treatment… read more
Will it affect prognosis.Performance status between 2an3 (more2) no double hit .Stage 4 Pet normal on 3rd cycle
I have tolerated the chemotherapy infusions well. Lost most all of my hair after the second infusion which is very emotionally upsettingto a woman. But luckily I look really cute in hats and had a few… read more
June 2019 i was diagnosed with primary cns lymphoma.
This year in march i had an ovary removed. They found diffuse large b cell lymphoma. My oncologist wants to put me on the r-CHOP regimen with stem cell transplant to follow as maintainance therapy.
I am not mobile at all due to another terminal condition (parkinson's and dementia). I wear diapers, but have been able to have BMs on a portable toilet. Fearing what to expect and would rather have the truth from others than the 'no worries, most people beat lymphoma' stuff the doctors are pushing. Has anyone had an ill family and then they were dx with NHL? Mine is in the bones, stomach and three large tumors in my abdomen
I welcome honesty, no matter what you have to say. I want to live… read more
There are very few honest answers here, mostly rhetoric and “good vibes”. I am a caretaker for my 78 y/o husband with bulky DLBCL Non-Hodgkin Lymphoma in his abdomen. I am 57 y/o and also a nurse… read more
Non Hodgkinslymphoma
I was diagnosed age 79 with NHL slow growing, in 2022. Oncologist said he has had patients live 20 years with this type. I asked if one can have this with no symptoms pre diagnosis (unless you can… read more
I didn't see it listed as one of the "lymphomas". I was diagnosed February 20, 2019. I had chemo and was told in October that I was in remission.
Your the same story as me I had NHL with Diffuse Large B Cell last year, today I am in remission since Oct 2023
I would like to compare treatments with patience also dealing with double or triple hit diffuse large b-cell lymphoma, Non-Hodgkins. I'm new here and would appreciate having those conversations. Thank you!
3H LBCL stage 3 - R-EPOCH (based on reading and hemo/oncologist was in agreement and fully supportive not to "waste time" on R-CHOP). Diagnosed April-May '22. Clear scans after 3 infusions, CR… read more