I’m On My 3rd Lunsumio Immunotherapy.Has Anyone Experienced Stroke Symptoms, But Went Away After They Stopped The Drug? Was At The Hospital.

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A MyLymphomaTeam Member asked a question 💭

Relapse B cell. Started with FL, R chop 2014-15, Rituxan 2020, now immunotherapy started 1/3/24

posted January 19

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I feel like a kindred spirit.The reoccurrence is inevitable.MCL 2021 original diagnosis,followed by chemo and a stem cell transplant.Ive been on rutuximab bi monthly since.

posted January 22

Sorry - Cycle 1 is when I had the eyes burning

posted January 19

Yes I was on dextromethasone. Cycle 1 was fine. Everybody is different. Cycle 3 went ok. Just fatigued

posted January 19

Oh good! Sorry it didn’t work out for you. Or will they keep trying? How long after cycle 2? Were you also on dextromethasone?

posted January 19

I had it on my 2nd cycle. Cycle 1 was 2days after, my eyes were burning and I couldn’t see. Very scary but it’s been treated

posted January 19

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