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Does Anyone Else Have The Diagnosis Low Grade B Cell Non Hodgkins Lymphoplasmacytic Lymphoma With IgG Paraprotein? Not WM
Zanubrutinib (Brukinsa) Is Used To Treat WM. Since My Only Symptom Is CRF Would I Benefit By Taking Brukinsa Before The Onset Of Symptoms?
I am 83 years old and until three (3) years ago I was in relatively good health for my age and only taking blood pressure medicine. Then, I was diagnosed with Waldenstrom Macroglobulinemia (WM) three (3) years ago. I have been in Watch and Wait for the last three (3) years, have not had any treatments and my only known symptom is cancer related fatigue (CRF), which gets extreme if I don't limit and keep track of my physical activity. Tom10
What Are Your Top Tips For Dealing With Lymphoma In The Heat?
I enjoy going to the pool and meeting up with pool buddies. I also use a neck fan and I'm not good at drinking, especially plain water, so I drink peach flavored Hint water, it helps and occasionally… read more
I Had Stage 1-2 FL. & Treated W4 Cycles Of R-Chop Which Fortunately Put Me In Remission. Two PET Scans Later Showed No Metabolic Activity.
My side effects are severe neuropathy 2 months later & weak legs especially quads.
Has anyone experienced this?
I do suffer from neoropathy in my left leg and foot. Take Lyrica for that and treat with Zam Buck salve, which do help. My balans is not as good as it used to be.
Had Radiation To My Tonsil. Lost My Sense Of Taste. When Does It Return?
Very common will return , don’t worry too much about it , it comes back
Frank
My Husband Has Terrible Night Sweats. Any Suggestions For Bedding, Towels, Nightwear - Anything That Helps?
Did they ever put him on a steroid? My sweats were horrible. Doctor gave me a few doses of steroids and they were gone.
Do You Have A Hobby To Help Take Your Mind Off The Cancer?
I believe, and my health care providers agree, that having a hobby can be good for your mental health. If you have a hobby share it here 😀
My pup keeps me walking. During treatment was covid so I did puzzles, and read books.
Hi I Was Dx With FL 2 Years Ago And Had No Symptoms And Was On Watch And Wait . Recently Within 4 Months My Nodes Became Enlarged And Now I
Am on rimlivid and retuxan. Did anyone have such a rapid change in status and what were your reactions to drugs ?
Wishing you good luck at the dr ..it’s a strange disease no 2 people have it the same !
Tell Me About Waldenstrom Lymphoma.
Fatigue
Thank you so much for the great info! I, so far, no chemo, Just blood work every 3 months. The hip puncture, was how I found out that I have Waldenstrom Lymphoma.
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