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I was diagnosed with stage 1 b CTCL Mycosis Fungoides Nov. 2017, started methotrexate Dec. 2018, and am in remission since early 2023. They say you never really get rid of this type of lymphoma; you'll die with it, not from it. So, on average, how long do people stay in remission?
Has anyone any experience of RCEOP and any advice or information please? Dad can’t have RCHOP due to pre existing heart failure. Thanks x
NataliKasparidou,
Hi I'm so sorry about the car t in regards to your husband. Good luck on his next procedure. Kelly
Quit going to cancer doctor over 6 months ago wanted to know if there's any dietary information for people that haven't had any treatments at all just trying to heal themselves. Not crazy just trying alternative natural cures!
I Hope I'm, typing in the right column. I didn't have any symptoms. Just a tumour that had plans, but my mountain climbing jerked the tumour through to my groin and I had 'the lump'. It had its… read more
Been in remission since May and have been having stomach pain that was believed to be a hernia until ultrasound showed there wasn’t one. Now have to go back for another PET scan because of a swollen liver and spleen. I’m having severe anxiety over the whole situation. I don’t want to do this again.
Hi Mark, I understand your anxiety but in my opinion Pet scans are the most complete check up we can have. I was originally diagnosed in 2019 and had a low dose of targeted radiation then. Over the… read more
Thanks , I have contacted my Social worker , he was not much help , it was 6 weeks ago and never I never heard back back from him.
Nola
Yes after your treatments especially your CBC numbers will really go down. I had RCHOP treatments and my numbers hot rock bottom. But, I figured it was working!! They will eventually come back… read more
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