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Lymphoma

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Real members of MyLymphomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
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Team Member PatGordon?

Team Member PatGordon?

I may have the name off but she seems to have disappeared. She was always very supportive and kind. Her profile and posts seem to be gone. Does anyone have any info they can share? Concerned

A MyLymphomaTeam Member said:

Jamorisin….I have not heard from PatGordon recently. Hoping she will check in real soon.

Squeezer

posted 2 days ago

Anyone Getting Evusheld?

Anyone Getting Evusheld?

Although vaccinated for Covid prior to 6 rounds of R-chop for diffuse large-B cell lymphoma and boosted afterwards with a full dose of Moderna, I have no Covid antibodies. Treatment ended in June 2021. How long do you remain immunocompromised? I’m getting monoclonal antibody shots today with Evusheld and am wondering what your doctors are doing to see if it worked for you and how they will determine when it wears off.

A MyLymphomaTeam Member said:

PamT72
Hi I got my antibodies test done today instead. I have antibodies!! Praise God!! I had the Euvsheld shot a week ago. I had 4 vaccine shots that didn't net me any antibodies previously. I… read more

posted 5 days ago

Lymphedema

Lymphedema

Dows lymphedema appear as in of the s/s in Hodkins lymphoma

Oral Chemo Drug Exact Spelling

Oral Chemo Drug Exact Spelling

I found out today that I am going to be taking an oral chemo drug that sounds like McCalquien but I didn't want the person to spell it. Does anybody know the exact spelling?

Thanks

Jay Knyal

A MyLymphomaTeam Member said:

Thank you SO MUCH for your response!

posted 18 days ago

Chemo School?

Chemo School?

Tentatively Scheduled for in-patient DA-EPOCH-R on 1/1022. No clue what to pack. No idea if I bring food (guarantee I am drinking and eating better than hospital food, and I am always hungry).

Will someone at the hospital let me know how to prepare? All I think I know is what I am reading online. Thanks

A MyLymphomaTeam Member said:

Thank you RP. I most certainly will.

posted 24 days ago

2nd Biopsy Or Have Biopsy Cells Re-examined Or ??????

2nd Biopsy Or Have Biopsy Cells Re-examined Or ??????

Hi everyone. So all of this has occurred since 12/15/2021. My biopsy results came back diffuse B cell or follicular. Then the cytogenetics (FISH study) came back somewhere between double hit and Burkitt (MYC and BCL2 issues). Now I definitely have something I get it.My PET/CT came back for FDG avid in nodes above and below diaphragm (right armpit and mesentery, knew that going in).

I am 55 in relatively good shape and have no other symptoms other than abdominal tenderness sometimes where the… read more

A MyLymphomaTeam Member said:

Hi Pat. EBER negative. Biopsy next. Most of the time I am “ok.” I do have my moments. Thank you. Mike

posted 24 days ago

Does Anyone Have Interest In Vitamin?

Does Anyone Have Interest In Vitamin?

High Dose Vitamin B1 Reduces Proliferation in Cancer Cell Lines Analogous to Dichloroacetate
Bradley S. Hanberry, Ryan Berger, and Jason A. Zastre
Department of Pharmaceutical and Biomedical Sciences,
College of Pharmacy,
University of Georgia,
R.C. Wilson Pharmacy Building, Athens, GA, 30602 USA

“The dichotomous effect of thiamine supplementation on cancer cell growth is characterized by growth stimulation at low doses and growth suppression at high doses.”

Anyone Else Diagnosed With LPL?

Anyone Else Diagnosed With LPL?

Lymphoplasmacytic Lymphoma

A MyLymphomaTeam Member said:

Yes, have had it since 2014. Currently in remission. It is also called Waldenström’s Macroglobulinemia.

Let me know how I can help - I'm willing to share my story and what I went through with you.

read more
posted about 1 month ago
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