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Real members of MyLymphomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
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How Long Do People On Methotrexate Stay In Remission?
A MyLymphomaTeam Member asked a question 💭

I was diagnosed with stage 1 b CTCL Mycosis Fungoides Nov. 2017, started methotrexate Dec. 2018, and am in remission since early 2023. They say you never really get rid of this type of lymphoma; you'll die with it, not from it. So, on average, how long do people stay in remission?

posted 16 hours ago
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RCEOP (not RCHOP)
A MyLymphomaTeam Member asked a question 💭

Has anyone any experience of RCEOP and any advice or information please? Dad can’t have RCHOP due to pre existing heart failure. Thanks x

posted 19 hours ago
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Immunotherapy Program?
A MyLymphomaTeam Member asked a question 💭
posted 1 day ago
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Good Evening, My Husband Failed The Car T And We Are Preparing For Allo, I Don't Know What To Expect,we Stay In Greece
A MyLymphomaTeam Member asked a question 💭
posted 3 days ago
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A MyLymphomaTeam Member

NataliKasparidou,
Hi I'm so sorry about the car t in regards to your husband. Good luck on his next procedure. Kelly

posted 3 days ago
I Have Non-Hodgkin's Lymphoma And I Had Experienced Lymphedema In My Left Arm, Is That From The Lymphoma
A MyLymphomaTeam Member asked a question 💭

Quit going to cancer doctor over 6 months ago wanted to know if there's any dietary information for people that haven't had any treatments at all just trying to heal themselves. Not crazy just trying alternative natural cures!

posted 4 days ago
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What Lymphoma Symptoms Do You Have That You Didn’t Expect?
A MyLymphomaTeam Member asked a question 💭
posted 4 days ago
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A MyLymphomaTeam Member

I Hope I'm, typing in the right column. I didn't have any symptoms. Just a tumour that had plans, but my mountain climbing jerked the tumour through to my groin and I had 'the lump'. It had its… read more

posted 5 hours ago
How Best To Deal With The Anxiety Of An Upcoming PET Scan After Being In Remission?
A MyLymphomaTeam Member asked a question 💭

Been in remission since May and have been having stomach pain that was believed to be a hernia until ultrasound showed there wasn’t one. Now have to go back for another PET scan because of a swollen liver and spleen. I’m having severe anxiety over the whole situation. I don’t want to do this again.

posted 6 days ago
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A MyLymphomaTeam Member

Hi Mark, I understand your anxiety but in my opinion Pet scans are the most complete check up we can have. I was originally diagnosed in 2019 and had a low dose of targeted radiation then. Over the… read more

posted 4 days ago
Does Anyone Know How A Person That Has Cancer Can Get A Grant To Help Pay Medical Bills And House Bills
A MyLymphomaTeam Member asked a question 💭
posted 6 days ago
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A MyLymphomaTeam Member

Thanks , I have contacted my Social worker , he was not much help , it was 6 weeks ago and never I never heard back back from him.

posted 6 days ago
Is There Anyone Else Here That Has NH B Cell Lymphoma Of The Eye Orbit?
A MyLymphomaTeam Member asked a question 💭
posted 6 days ago
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Does The Metabolic Test Panel Results Go Bizarre After First Chemo Treatment? My Numbers Are Awful. Is This To Be Expected Or Normal?
A MyLymphomaTeam Member asked a question 💭
posted 7 days ago
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A MyLymphomaTeam Member

Nola
Yes after your treatments especially your CBC numbers will really go down. I had RCHOP treatments and my numbers hot rock bottom. But, I figured it was working!! They will eventually come back… read more

posted 6 days ago
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