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Lymphoma

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Real members of MyLymphomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
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How Do You Deal With Boredom?

How Do You Deal With Boredom?

One of the more pronounced effects, for me, of CLL and the chemo I did is a lack of stamina. I am essentially home bound. So what to do? I'm always looking for ideas, ways to spend time constructively. If you find yourself with time on your hands what do YOU do to keep from being bored 😴? Here's your chance to be share with others. 🙂

A MyLymphomaTeam Member said:

I love watching documentaries, listening to relaxing music, and doing search -n- find word searches. Sipping on mint tea always seemed to soothe my tummy!

posted about 9 hours ago

What Has Surprised You About Lymphoma?

What Has Surprised You About Lymphoma?

A MyLymphomaTeam Member said:

The fatigue was a surprise. I was caught off guard by the lack of stamina. The CLL and the chemo did a number on me but I still keep going. 🙂

posted 2 days ago

What Advice Do You Have For Others About Managing Fatigue?

What Advice Do You Have For Others About Managing Fatigue?

A MyLymphomaTeam Member said:

Thank you so much. I have bursitis in my hip so walking isn't fun for very long but I do get out everyday. 😍

posted 4 days ago

Does Anyone Have Experience With MALT Lymphoma With Lung Tumors?

Does Anyone Have Experience With MALT Lymphoma With Lung Tumors?

I was just diagnosed after 3 years of trying to find answers for lung masses and symptoms. I'm having trouble finding information on MALT with lung masses.

I'm wondering about staging and treatment. Any sharing of experiences would be appreciated.

Thank you!

A MyLymphomaTeam Member said:

That's awesome, Kelly! Happy for you!

I have a tumor in each lung and just had a PET scan yesterday to better understand what's going on. I've seen a lot on the "watch and wait" approach, but since… read more

posted 16 days ago

Struggles With Fatigue And Chemo Brain

Struggles With Fatigue And Chemo Brain

I'd love to hear the perspective of others.

I was diagnosed with Diffuse large B cell lymphoma in Feb 2021. I finished R-CHOP chemo by May. In consultation with medical practitioners I somehow came to the conclusion that I would be back to normal within a few months. It has now been just over a year and my fatigue is still very significant. I wondered if there is something else going on with me...so I've arranged with my family doctor to explore and rule out other possible reasons for… read more

A MyLymphomaTeam Member said:

Yes, 2 years post chemo (RCHOP)exhausted when I get up in morning, excruciating leg and foot pain, and chemo brain still.

posted 12 days ago

Who Or What Makes You Feel Supported In Your Journey?

Who Or What Makes You Feel Supported In Your Journey?

A MyLymphomaTeam Member said:

MaisyMHT
Hi! I have/had DLBCL stage IV and have been in remission for about a year now. First off to answer your question I give ALL the glory to God for my healing. Prayer is what has given me… read more

posted 21 days ago

What Is Double Hit Lymphoma And How Is It Diagnosed. Thank You.

What Is Double Hit Lymphoma And How Is It Diagnosed. Thank You.

A MyLymphomaTeam Member said:

thanks Kelly, I had a pathology report diagnosing the DLBCL. the genetic part of the report came back after I started rchop which I just completed. I read genetic mutations in the chromosome study t… read more

posted 26 days ago

Is It Common To Others To Have Been Told You Have "innumerable Lymphoma Bone Tumors"?

Is It Common To Others To Have Been Told You Have "innumerable Lymphoma Bone Tumors"?

Wondering how common it is for others with follicular lymphoma to be told they have lymphoma in their bones?

A MyLymphomaTeam Member said:

Thank you Kacey.

posted 17 days ago
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