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Real members of MyLymphomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
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Imbruvica O. Any Pinon?

Imbruvica O. Any Pinon?

Anyone have an opinion about this medication, Good or bad. Any help would be greatly appreciated.

A MyLymphomaTeam Member said:

I Hope It Helps you on your journey 👍🙏🙏😃

posted about 13 hours ago

Rash….

Rash….

Patchy rough scalet rash.

I have B cell nh…am status post splenectomy without problem. I am on an observe basis with blood work every 3 months and PETs every 6 months unkess indicated before. A but if nausea i gave overcome; fatigue - a bit but learned my parameters.

HOWEVER , the rash? Any ideas

A MyLymphomaTeam Member said:

Guest house in Pahrump Nevada. Close to well, 35 miles from Death Valley N.P. and other attractions in southern Nevada

posted 6 days ago

Eye Redness And Discomfort From Rituxan?

Eye Redness And Discomfort From Rituxan?

GM everyone! I have been treating with Rituxan on and off for 5 yrs now, (along with bendamustine). I just finished a treatment for 2 yrs of Rituxan only - every other month. My eyes are always red and angry looking. I cannot find comfort. I am seeing an ophthalmic doctor who specializes in the outer part of the eye, as well as one who specializes with the back of the eye. He has me on Restasis for dry eye along with other drops including a prescription allergy drop. Nothing seems to… read more

A MyLymphomaTeam Member said:

I take Xyzol and Singular for allergies. Plus Restasis, prescription allergy eye drops, and OTC eye drops recommended by the ophthalmologist. Could hardly open my eyes this morning.

I’m not… read more

posted 13 days ago

I Will Be Starting Radiation Next Week For A Tumor In My Head Any Suggestions For A Good Shampoo.

I Will Be Starting Radiation Next Week For A Tumor In My Head Any Suggestions For A Good Shampoo.

A MyLymphomaTeam Member said:

I think you should ask your healthcare provider!
I used Aquaphor wash and shampoo when I was almost bald!
They use it for babies so I know it is mild with less additives!

posted 14 days ago

I Am Taking Imbruvica For SLL And Now Have The Rash

I Am Taking Imbruvica For SLL And Now Have The Rash

Been on it for 3 months and 3 weeks. One week ago had Imbruvica rash. Has anyone had the rash and did you get to go back on it? I’m stage 4 lymph’s and bone marrow are involved. What makes it stop itching;(;(?It came back after only one day for me

A MyLymphomaTeam Member said:

Hi hope you’re doing well. After I started taking Imbruvica I started putting a little weight on. Don’t know if you have a problem with that but If you are losing weight about a month later the food… read more

posted 14 days ago

I Read About Folks Talking About "there Anti-bodies

I Read About Folks Talking About "there Anti-bodies

How do you know, if you have enough anti-bodies in your system? Can someone educate me please?? Thankyou.

A MyLymphomaTeam Member said:

Yes

posted 15 days ago

I Have Marginal Zone None Hodgkin Lymphoma, I Had Weekly Rituximab In May

I Have Marginal Zone None Hodgkin Lymphoma, I Had Weekly Rituximab In May

My left ankle start to swollen with three red bumps going up above my left ankle three weeks ago , my oncologist office told me to see my primary, she assume it’s cellulite and gave me 7 days antibiotics. I’m done with antibiotics now but my right ankle starts to also swollen and bruising and I gave discolor bumps on right calf. Sloan where I am getting treatment finally took me for negative for blood of clots but inconclusive as the cause. I was told to see a dermatologist …
Does anyone… read more

A MyLymphomaTeam Member said:

Same treatment Marilyn, same results.

When oncologist said we can treat aggressively I went for it.

posted about 1 month ago

I Have CLL

I Have CLL

I am on Calquence and haveing coughing issues does anyone else have this problem?

A MyLymphomaTeam Member said:

Thank you

posted about 1 month ago
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