Connect with others who understand.

sign up log in
Resources
About MyLymphomaTeam

Connect with others who understand.

sign up log in
Resources
About MyLymphomaTeam

Questions & Answers

Get practical advice and insights from people who understand

Don't see your question? ask question
Real members of MyLymphomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
View:

CNS Lymphoma With The CARD 11 Gene Diagnosis?

CNS Lymphoma With The CARD 11 Gene Diagnosis?

I have 2 out of 3 possible mutations on the CARD 11 gene. How is this possibly going to affect me long term? What will my prognosis look like?

posted 19 hours ago
A MyLymphomaTeam Member

Well from my little research, card 11 gene mutations can cause immunodeficiency
This is not uncommon in lymphoma. You just have to be safe and avoid those winter bugs
All the best to you, take… read more

posted 11 hours ago

Does Diet Affect How You Feel/your Level Of Inflammation? Have You Seen A Dietitian? Do You Have The Energy To Exercise?

Does Diet Affect How You Feel/your Level Of Inflammation? Have You Seen A Dietitian? Do You Have The Energy To Exercise?

I know my diet has a direct influence on my level of inflammation. After feasting on Thanksgiving I felt AWFUL yesterday. Sugar especially. I did speak with a RD but basically had the knowledge she imparted. As with most things in life, I’m unable to “perfectly” follow eating all whole grains, eating a rainbow- especially raw veggies, etc. And with the other things the RD shared (red meat no more than 2x a mo, 8 glasses of water a day, etc) I do the best I can with my other medical issues, in… read more

posted 24 hours ago
A MyLymphomaTeam Member

Hi Dave and thank you for your helpful reply! What was the organization, do you remember? It helps to hear I’m not the only one! I love it - PTSD of cancer. Perfect. What’s crazy is that a cardiac… read more

posted 16 hours ago

Follicular 2010, RCHOP, Remission Till 2021 Then Transformed To Diff Large B, Stem Cell Treatment 2021 Which Has Failed

Follicular 2010, RCHOP, Remission Till 2021 Then Transformed To Diff Large B, Stem Cell Treatment 2021 Which Has Failed

Well it’s back again as Follicular and I have been feeling so ill. My nodes are lit up all over me from PET scan a week ago 🙈. They go from my abdomen up to my clavicle 😢.

Am seeing consultant on Tuesday to start Lenalidomide and Rituximab on Weds. They do not think it is Diffuse Large B although it’s growing well 😢.

Does anyone know how good this treatment is? Will it be ‘man’ enough to reduce nodes that have been growing for a while🙏🙏🙏🙏

posted 1 day ago
A MyLymphomaTeam Member

Wish I could help. Prayers out to you and for your doctors to get it right and help you 🙏

posted 1 day ago

What's Helpful For Severe Constipation

What's Helpful For Severe Constipation

posted 2 days ago
A MyLymphomaTeam Member

I too had an issue with that. Any stool softener worked fine for me.

posted 21 hours ago

How Do You Thank Your Family And Friends For Their Support?

How Do You Thank Your Family And Friends For Their Support?

posted 4 days ago
A MyLymphomaTeam Member

my family has support it me very well there are days went you feel better or bad there always there.

posted 3 hours ago

Who Out There Is Taking Brukinsa That Can Tell Me A Little Bit About It?

Who Out There Is Taking Brukinsa That Can Tell Me A Little Bit About It?

The doctor has recently put me on it but I kind of got the impression that he hasn't really used it that much and also when I was getting my infusion the nurse made a few comments that kind of made me feel like it was something new so I was just wondering about it.

posted 5 days ago

Stage 3 A Nlphl

Stage 3 A Nlphl

Hi. My son has stage 3a nlphl on a watch and wait process. As its more advanced should he be getting treatment or is there no difference between success of treatment now or later?

Also how often should he be have Pet scan?

posted 5 days ago
A MyLymphomaTeam Member

Hi there. I would think it would depend on how advanced and where located. Sometimes it doesn't hurt to get a second opinion form another oncologist.

posted 5 days ago

Lumps On Inside Leg??

Lumps On Inside Leg??

I have had lumps on inside of my leg for awhile. They were itchy..but I noticed my leg is discolored also. Not sure if this is a question for primary doctor or oncologist?

posted 6 days ago
A MyLymphomaTeam Member

I would definitely ask my oncologist 😊

posted 4 days ago
Already a Member? Log in