Lymphoma

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Stage 3 Follicular Non-Hodgkins Lymphoma..and wondering why no treatment has been recommended...

Stage 3 Follicular Non-Hodgkins Lymphoma..and wondering why no treatment has been recommended...

I am reading here that a lot of people have been receiving treatment with a lesser stage (I & 2) than I have. (I have Stage 3 *follicular* non-hodgkins lymphoma). I have been on watch and wait since my diagnosis in April 2019. I'm wondering why the oncologist is holding off on any treatment. Why wait until it gets bad? Has anyone gotten treatment while being asymptomatic? If you do have symptoms, at… read more

A MyLymphomaTeam Member said:

I was diagnosed with stage 2 Follicular Lymphoma. They started treatment immediately but because I was having symptoms....night sweats. fever. It is my… read more

posted 3 days ago

I was diagnosed with non hodkins gastric lymphoma. 2017. .

I was diagnosed with non hodkins gastric lymphoma. 2017. .

Any one else with this type. Dr removed area when he did biopsy . No reoccurance since than. Two pet scans Does this mean that it is dorment.

Treatment times

Treatment times

I have been told I have CLLq13 deletion about 10 month a year or more now I have a complete left rotator cuff tare that two doctors have turned me down due to my cbc counts here are my wbc and rbc
WBC (Phone number can only be seen by MyLymphomaTeam users) x10(9)/L] 72.11 x10(9)/L 1 *CRIT* (5/31/19 6:45 AM)
RBC [3.90-5.90 x10(6)/mm3]
5.01 x10(6)/mm3 (5/31/19 6:45 AM)
cancer doc is on a wait and see I was wondering at what levels most of you were treated at and with out stem cell replacement or… read more

A MyLymphomaTeam Member said:

Hug

posted about 1 month ago

I have a question about bone pain after 4 years of clear scans.

I have a question about bone pain after 4 years of clear scans.

have a question. I have been clear for 4 years, but in the last 6 months I have been having bone pain. My oncologist ran panels of bloodwork. The normal panels like CBC, etc, Rheumatoid arthritis, lupus, inflammation, all came back clear, which is great, but im still in pain daily. Has anyone experienced anything like this with lymphoma? Am I experiencing a recurrence, or is this all together something unrelated?

A MyLymphomaTeam Member said:

I had serious pain in my thighs before my diagnosis with NHL. I went to CVS and bought all kinds of muscle treatments and rubbed the area. This made the… read more

posted 3 days ago

Anyone familiar with Richters Transformation Hodgkins Lymphoma?

Anyone familiar with Richters Transformation Hodgkins Lymphoma?

A MyLymphomaTeam Member said:

I had Richter's transformation from CLL/SLL. I also had Large B-Cell Lymphoma. Tumors became very aggressive and underwent an Allogeneic
Stem Cell… read more

posted 9 days ago

LDH was elevated

LDH was elevated

Hi all, I have been in remission for 14 months from Stage 4 Non Hodgkin’s DLBC. Went for my 3 month check up and my LDH was 266, 90-234 being the range. I’ve had a cold for a week and a half and have been taking a lot of aspirin and ibuprophen, also I had a few vodka, club sodas the night before, which I normally don’t do. No other symptoms. Dr thinks it’s all the above, still nervous though

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