Lymphoma

Questions + Answers

Don't see your question? ask question
View:

Can you live a normal life with lymphoma

Can you live a normal life with lymphoma

A MyLymphomaTeam Member said:

I agree. You might have to slow down some and deal with a side affect (dry mouth and lips and nothing much tastes good, etc )

posted 3 days ago

How bad are the side effects of rchop chemo

How bad are the side effects of rchop chemo

I will be having rchop treatments shortly what should I expect.

A MyLymphomaTeam Member said:

That sounds encouraging!!! Just had first round

posted 3 days ago

Anyone on here have Diffuse Large B Cell Lymphoma?

Anyone on here have Diffuse Large B Cell Lymphoma?

I didn't see it listed as one of the "lymphomas". I was diagnosed February 20, 2019. I had chemo and was told in October that I was in remission.

A MyLymphomaTeam Member said:

I have this also. I was diagnosed in Oct. 2018 and in remission since March 2019. I had chemo and radiation! Thanking God every day for successful… read more

posted 6 days ago

The Beginning

The Beginning

Two plus years of difficulty breathing and multiple Urgent Care/ER Md’s telling me all labs and heart look great! “Btw heres some muscle relaxers.” Monday this past week I hyperventilated in my MDs office. She sent for a stat CT of chest and there are multiple lymph nodes that are “very large”. On tues they did an abdominal CT they had to get special approval because of too much contrast under 24 hours. It came back clear and more labs/ekg, also clear. Worked me into a Pulmonologist Weds and he did… read more

A MyLymphomaTeam Member said:

Carissa, that is how I feel. I have been to the ER or Urgent care at least 6 times in the last 2.5-3 years with shortness of breath and chest/back… read more

posted 11 days ago

Has anyone done CarT for double hit NHL?

Has anyone done CarT for double hit NHL?

A MyLymphomaTeam Member said:

I have double hit B cell NHL.I had RCHO P and am on Rituxan every 2 months. My oncologist says 2 hit is very aggressive. I was diagnosed in May 2018. I… read more

posted about 1 month ago

Adcetris

Adcetris

Is this the same name for Brentuximab? Anyone have this treatment by itself and have side effects?

A MyLymphomaTeam Member said:

I do Rituxan

posted about 1 month ago

Does anyone else get aches where tumors used to be? Do you know why?

Does anyone else get aches where tumors used to be? Do you know why?

I'm currently in 2nd remission from folicular NHL stage 4 first diagnosed in 2005. I have most of the symptoms. Neuropathy, anxiety,
fatigue etc. I've never heard anyone speak of these "phantom" aches

A MyLymphomaTeam Member said:

I have follicular lymphoma along with large diffused b cell lymphoma and it was intra abdominal in my lymph nodes. They swelled up to massive size and… read more

posted 2 months ago

Has anyone been treated with R+bendamustine more than once?

Has anyone been treated with R+bendamustine more than once?

I had treatment with Rituxan and bendamustine followed by Rituxan maintenance. This was well tolerated and gave me five years remission. Now the indolent lymphoma (NMZL) is back. My Dr says I can’t do that treatment again. Just wondering if anyone had more than one set of treatments with bendamustine. If not, what was the treatment after a relapse? I am finding little information about relapsed NMZL. Thanks

A MyLymphomaTeam Member said:

My husband finished 6 months of R-CHOP 15 months ago. He also had pneumonia during the treatments and after 5 months, they had to wash his lung out. He… read more

posted 2 months ago
Continue with Facebook
Sign up with your email
Already a Member? Log in