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Real members of MyLymphomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
1287 questions
I Was Diagnosed With Waldenstrom's Lymphoma Last May, But I Am Not A Candidate For Treatment. Does Anyone Have Waldenstrom Lymphoma?
A MyLymphomaTeam Member asked a question 💭
A MyLymphomaTeam Member

My husband just had this diagnosis finalized yesterday. It's all new to us, but we were told immuno therapy was an option in his case

posted 2 days ago
I Was Diagnosed With Stage 4 Lymphoma Last Year. I Have Problems With Vomiting And Diarrhea Periodically. Does Anyone Else Experience That?
A MyLymphomaTeam Member asked a question 💭
A MyLymphomaTeam Member

Dear Debbie235 I have had many bouts with the nausea vomiting times. But am dealing with a diagnosis of gastroperesis as well

posted 2 days ago
How Do Beverages With Caffeine Affect Your Lymphoma?
A MyLymphomaTeam Member asked a question 💭
A MyLymphomaTeam Member

I’ve cut way down on caffeine but my AF was due to dehydration. I found Liquid IV from Costco helpful. I’m still using it!

posted 9 hours ago
Asking About A Bispecific Antibody Treatment--
A MyLymphomaTeam Member asked a question 💭

Hi Everyone--hope all are doing well
I was wondering if anyone here is getting or has gone through a Bispecific Antibody treatment called Mosunetuzumab for NH Lymphoma. I have 2 NH lymphomas: NH Follicular Lymphoma & NH Extranodal Marginal Zone Lymphoma. I just started this treatment on Jan. 31, 2024. 3 other different treatments did not work over a number of years & I am out of options. If this doesn't work, I may be able to do CAR-T cell therapy but that might be my last option
This is… read more

A MyLymphomaTeam Member

Thank you so much, Kelly......I am petrified......but trying to be hopeful.....

Tina

posted 4 days ago
Anyone Getting Edema In Legs, Oral Chemo?
A MyLymphomaTeam Member asked a question 💭
My Husband Has Nhlymphoma. Thirdin 2 Days From Today. He Can’t Get Rid Of A Coughhe Has Almost Constantly. Anyone Cough A Lot?
A MyLymphomaTeam Member asked a question 💭
A MyLymphomaTeam Member

Wishing much success with all the treatments !!

posted 11 hours ago
Anyone Have Hearing Issues And Body Pain 38 Days Post R Chop? Starting Radiation Soon.
A MyLymphomaTeam Member asked a question 💭
A MyLymphomaTeam Member

Hello Bonnie, I could say I have body aches in places I have never had. My joints fingers, toes. I get up in the morning sometimes and it takes me a little bit to move around normal. I am almost one… read more

posted 6 days ago
Has Anyone Experienced What I Call A Stress Rash Pre-chemo? Had This Issue Since Dx In Sept ‘23 And I Start BR Treatment In A Couple Weeks.
A MyLymphomaTeam Member asked a question 💭
A MyLymphomaTeam Member

I have not but maybe stress of the unknown

posted February 16
Looking For A Bill Whom Was Takinvariety Of Turkey Tail Mushrooms To Boost His Immunity. Can I Find Him So That I Can Get The List Of These.
A MyLymphomaTeam Member asked a question 💭
A MyLymphomaTeam Member

Hi Lynette
I’m interested in the list too so please let me know when you find him.

posted 6 days ago
Do I Still Have Cancer?My Dr. Says I Am Cancer-free From MCL. I Am In Remission. When I Talk About It, Is It Correct To Say I Have Cancer?
A MyLymphomaTeam Member asked a question 💭

I know I am in remission from cancer. I have been in remission from MCL for about 10 months. My oncologist said I will have rituxan infusions every 8 weeks for 2 years.

A MyLymphomaTeam Member

Clovis, thank you so much! <3

posted February 14
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