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Lymphoma

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Real members of MyLymphomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
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SLL Questions….

SLL Questions….

We are in Sacramento. My stepdad was diagnosed this week with SLL and inflamed lump nodes in his neck. They are just monitoring for now, which I suppose is good. Is there anyone here that is in Sacramento that has a good oncologist at Kaiser they like? Anyone with the same diagnosis or symptoms? What tests have you had done? We have just had a CT and Blood Work. Should we have a lymph node removed and tested? Doctor said we could but didn’t give much detail as to the benefit. Thank you.

A MyLymphomaTeam Member said:

Hi I have SLL I have swollen lymph nodes in neck also I’ve had a ct scan and bloodwork go back to oncologist in October I’m on watch and wait I had a needle biopsy that’s how I knew I had SLL

posted about 4 hours ago

Nutrition

Nutrition

Hi Cindy
I am Shereen and my mom has got NHL in her blood test, it states that she has a chronic lymphoproliferative disorder. She is clear from viruses, CRP 18, LDH 225, TSH 2.1. Liver and kidney functions are normal. The ultrasound resulted an enlarged spleen a size of 27cm. She is 79 years old. Doctor suggested a chemo for 6 months twice per month, however due to her weaknesses and old age we decided to live with it, especially she won’t accept going through this procedures. We need to have… read more

Do You Use Things Spiritual In Dealing With Your Cancer?

Do You Use Things Spiritual In Dealing With Your Cancer?

Do you use things spiritual in dealing with your cancer?

If so what do you use? Prayer? Meditation? Certain books? Church, synagogue or mosque? Music? Poetry? I ask because I'm always looking for useful spiritual tools. Personally I use 12 step material and the book A Course In Miracles along with prayer. And there are certain organizations that I've found useful, that send out free booklets and magazines. But I'm always looking for useful things to add to my repertoire.

A MyLymphomaTeam Member said:

prayer and mediATION

posted 4 days ago

I Have Follicular NHL, Completed Chemo And Am In Remission. Just Recently Diagnosed With Covid.

I Have Follicular NHL, Completed Chemo And Am In Remission. Just Recently Diagnosed With Covid.

After chemo, I had two sessions of Rituxan before my doctor stopped that treatment due to extreamly low white blood cell counts. I had one infusion of Immune globulin before contracting Covid. Even though I'm on Paxlovid (anti-viral), I'm uncertain what to expect in recovery since my immune system is so compromised. I'm sure other Lymphoma patients have contracted Covid and want to know what to expect in recovery with a compromised immune system.

Ron Davis

A MyLymphomaTeam Member said:

Thank you PlainsOils. Blessings to you in return.

posted 24 days ago

Rituxan

Rituxan

How long after treatment did patients see positive results like having more energy less fatigue less b symptoms like sweats it been a month since my wife completed here front line treatment of Rituxinab 1 a week for a month

A MyLymphomaTeam Member said:
posted 24 days ago

Itching - What Do You Do About It?

Itching - What Do You Do About It?

I started with bouts of itching (sometimes with rash/bumps, sometimes not) over a past year or so. My out-of-whack labs and obstruction showed up as jaundice and extreme itching and other ways until IV fluids and eventual sx removed the problem. However, I still get less severe bouts of itching - my scalp, and specific places - the outside of my inner elbow, my palms and fingers, the backside of my knees and my chest/abdomen are the most common. I have mentioned this to my oncologist and… read more

A MyLymphomaTeam Member said:

PlainsOils,
My scalp, ears and armpits get itchy. I take Benadryl.

posted 10 days ago

Rituxamab Maintenance Therapy - Do Or Don't???

Rituxamab Maintenance Therapy - Do Or Don't???

Hello Group - My name is Pam, 63 year old retired nurse. I just finished 6 months of Bendemustine/Rituxamab (BR) treatment for follicular lymphoma stage 4. The majority of providers are recommending a 2 year - every 2 month infusion of Rituxamab. I've also heard some LLS physicians state they no longer use this protocol due to weakening of the immune system - with COVID and all still active would increase our chances of getting it. Anyone have advise/opinion on this? I personally don't feel… read more

A MyLymphomaTeam Member said:

Pamela
4 PETS in one year does sound like a lot. I was wondering about xray exposure - with many CTs, MRIs, mammograms, one PET, dental rays and etc in the last 10 months. Do you (does anybody)… read more

posted 15 days ago

R-CVP Treatment

R-CVP Treatment

I will be starting r-cvp treatment within the next month. Anyone have this treatment, if so , what were your primary side effects?

Gazyva

Gazyva

I have been experiencing incredibly debilitating nausea and tiredness, Days 4-7 after my Gazyva treatment and wondered if this is the window for Tumour lysis reaction or if something else is happening? As my treatment progresses, is it likely to be reduced as the amount of cancer being broken down is lessening? Is there some other mechanism that could be driving my symptoms. I am having steroids days 0-3 on treatment cycle, and have IV antinauseant that seems to wear off after 3 days. I am on… read more

A MyLymphomaTeam Member said:

MM is not easily accessible in Australia, having only just been legalised and the cost is prohibitive, living on welfare payments :(

posted 1 day ago
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