The stages for lymphoma are different from many other cancers. It is determined by how many regions of the body are affected. If only one region is affected then stage one. They differentiate between above and below the diaphragm. I have stage two because affected nodes are in my groin and abdomen. The aggressiveness of the lymphoma depends on the type, not where it is.

I was told grade 1-2 is not treated immediately unless you're symptomatic. I have 1-2. Not sure about grade 3. I thought that was more aggressive. But I'm really not sure.

I have Lymphoplasmacytic Lymphoma. Is anyone near Madison, WI?

Yes it is. 4 years now. Stage 4

I live a few hours above Madison, WI right near Lacrosse, WI. I have MCL and have been in remission now for about a year.