June 2019 i was diagnosed with primary cns lymphoma.
This year in march i had an ovary removed. They found diffuse large b cell lymphoma. My oncologist wants to put me on the r-CHOP regimen with stem cell transplant to follow as maintainance therapy.
I didn't see it listed as one of the "lymphomas". I was diagnosed February 20, 2019. I had chemo and was told in October that I was in remission.
Your the same story as me I had NHL with Diffuse Large B Cell last year, today I am in remission since Oct 2023
At this point, I’ve decided not to start treatment
I have lost two friends in the last year to other types of cancer
They both went through chemotherapy and radiation treatments.
They continued telling me that the chemotherapy had caused many uncomfortable side effects and weren’t sure whether it was causing more painful issues than it was worth.
They both have passed in the last three months.
They both expressed to me that their quality of life, and getting some extra months, wasn’t really… read more
Thank you very much for your story and wish you luck.
Feel like doctors just don’t care or just brush you off like your making something out of nothing?
Yes all the time I did you just have to have patience
I was just diagnosed a week ago and don't meet with my doctor to discuss next steps until after the new year. He mentioned possibly doing "watch and wait" method and I've read a lot that backs that up, which really surprises me. Why would you wait until things got worse to pursue any type of treatment?
For some types of blood cancer there's no evidence that early treatment, when you have no symptoms, improves outcomes. Instead, doctors recommend saving treatment for later, when it will have the best… read more
Yes I had stage 3 Diffused NHL. Beat that in 2011. Low grade came back in 2021. Beat that mostly with Rituximab maintenance for 2 years. In remission again.
I received my biopsy results today. I have
T cell NHL. I am being referred to a doctor that specializes in this.
Has anyone been diagnosed with this?
Thank you.
I was just diagnosed with Nodal Follicular Helper T Cell Lymphoma. Looks like mine is localized. After fairly good scans and blood work; the oncologist told me it was localized and no treatment… read more
I’m newly diagnosed with Lymphoma…I was diagnosed with stage 3 lung cancer in September 2023. I’m on chemo for this. My docs seem to be ignoring the lymphoms
I am still being followed from my Car T-Cell therapy that was done last spring,