Thanks Cathy2!
June 2019 i was diagnosed with primary cns lymphoma.
This year in march i had an ovary removed. They found diffuse large b cell lymphoma. My oncologist wants to put me on the r-CHOP regimen with stem cell transplant to follow as maintainance therapy.
NH LDBCL was my 2 diagnosis, the RCHOP 21 wasn’t fun
A lot of adjustments…. Learning to sleep w a port
I had extreme dry mouth no matter how much h20 I drank it never went away. I was… read more
I have been diagnosed with marginal zone lymphoma, non Hodgkin's. I currently diagnose with anemia. Extensive test done and no bleeding found. Could lymphoma be the reason?
Ruthann..Thank you for your reply
After many months of blood infusion off and on..Currently doing great! Only taking an iron supplement now 3 times a week which seems to hold off the anemia so… read more
I was just diagnosed a week ago and don't meet with my doctor to discuss next steps until after the new year. He mentioned possibly doing "watch and wait" method and I've read a lot that backs that up, which really surprises me. Why would you wait until things got worse to pursue any type of treatment?
For some types of blood cancer there's no evidence that early treatment, when you have no symptoms, improves outcomes. Instead, doctors recommend saving treatment for later, when it will have the best… read more
At this point, I’ve decided not to start treatment
I have lost two friends in the last year to other types of cancer
They both went through chemotherapy and radiation treatments.
They continued telling me that the chemotherapy had caused many uncomfortable side effects and weren’t sure whether it was causing more painful issues than it was worth.
They both have passed in the last three months.
They both expressed to me that their quality of life, and getting some extra months, wasn’t really… read more
My white blood count is high does that mean its back? used to have Nonhopjkins lyhphoma. I have been in remission for 10 years now. And my recent lab tests show my white blood count is high. Its at 14.7 ml. Does that mean its come back
high white blood cells can result from any sort of infection. Let us know what you find out. All the best.
I have mantle cell lymphoma and was on watch à nd wait for a year. I just had 4 weeks of Rituxan infusion once a week. I had no negative reactions and there was some tumor shrinkage. Like 4.7 cm to 4.3. Does anyone know if that would be considered a success? If so I can continue on Rituxan for two years. If not, my doctor will add another chemo drug. Thank you for any help. BTW I am stage 4 with tumorous lymph nodes all over but no other organs affected. 74 years old.
Thanks guys!
Great to hear from you. Really.
Maybe depends on the type or we just unlucky to breath something in the air.