I have NHL Marginal zone B cell and 6 months treatment worked!! Clear scan and only 10% in bone marrow. BUT.. my liver enzymes continue to elevate and after test know liver is normal. They discovered I have autoimmune anemia b/c hemoglobin started dropping with lymphoma under control. Has anyone been diagnosed with this after treatment or with their lymphoma?
Yes but it tool two tries
My blood count was a mess going to extremes up and down it took awhile but finally did
OknThanks , glad your well.
RickWayland.. thank you for your response. I’m very curious how they handled your autoimmune hemolytic anemia? Did cyclosporine work for you? It did not for me. Now I’m trying azathroprine snd Daspone. Praying this med keeps my hemoglobin up! I won’t know for sure until few weeks. So what did they find work for you and like me, are you on it lifetime? Yes this has been scary for me b/c sure hope this med works to keep hemoglobin up. Interesting to finally hear someone else with this. Thanks for all it any info. Did you have diagnosis after lymphoma? Did your doc say it had nothing to do with it as mine? It’s such a mystery it appeared. Thks
Yes i had this but thay managed to get it under control it was spotty
But eventually it did
No I haven’t had that