My check up yesterday, I knew would be with assistant, I met 1 time prior and tried not to make judgment. Yesterday I asked pointed questions! I couldn't get an answer!!!! Agh! I asked "what is the name of my leukemia?" She's scanning my chart online... ummm I don't know, it doesn't say. Wow I say. The initial blood work said CD5 small B cell leukemia. She then says "yeah, yeah it says that". Then I asked "Is that the name then?" She said "Um I don't know" I said OK then what's the name of… read more
Thank you
June 2019 i was diagnosed with primary cns lymphoma.
This year in march i had an ovary removed. They found diffuse large b cell lymphoma. My oncologist wants to put me on the r-CHOP regimen with stem cell transplant to follow as maintainance therapy.
At this point, I’ve decided not to start treatment
I have lost two friends in the last year to other types of cancer
They both went through chemotherapy and radiation treatments.
They continued telling me that the chemotherapy had caused many uncomfortable side effects and weren’t sure whether it was causing more painful issues than it was worth.
They both have passed in the last three months.
They both expressed to me that their quality of life, and getting some extra months, wasn’t really… read more
I have read that this condition is rare but I have a biopsy for breast cancer coming up and I also have non hodgkin lymphoma. I am wondering if you can have both at the same time!
Angela
Yes. But mine was just a lymphoma node in my breast
Praying you find a donor soon. 🙏🏼
I don’t know yet. But after my recent investigation it was very fast that they wanted to see me again. With my other cancer (brain tumour) I get to see my oncologist on the same day after the MRI. I… read more
I went to oncology and he gave me copy of biopsy. Does anybody know what it means when it says mature low grade B-cell lymphoma with CD5 co-expression , most consistent with small lymphocytic lymphoma/chronic lymphocytic leukemia
Wanda, I was originally diagnosed with what was called an indolent NHL. or lymphoplasmacitic lymphoma. One valuable resource I used to educate myself was the International Waldenstrom's… read more
I am in remission now. Live on Vancouver Island in BC
I think this should be investigated further.
She’s in England and would like to try alternative therapies
I was diagnosed with T-Cell and have been through a lot. 6 rounds of chemo put me in remission and a few months of being in remission, I went through a stem cell transplant with 11 more rounds of… read more
Chemo is directly related to new cancers in our bodies. My doctor also told me indolent lymphomas often lead to other cancers.