I was diagnosed with CLL/SLL 9/2022 after finding swollen lymph nodes in my neck. Now they are in several parts of my body, and I have a slightly elevated WBC, but have no other "significant" symptoms. I'm on watchful waiting protocol. Has anyone else dealt with increasing lymph node swelling over a fairly short time and received no treatment? Also, could swollen nodes in the throat area affect swallowing? Seems like I have a harder time swallowing my vitamins.
Like many others on… read more
My swollen lymph nodes was in my right underarm. I was given 13 weeks of radiation, now in remission for 2 years.
Thanks so much for reaching out. I sure will follow up!
I went to oncology and he gave me copy of biopsy. Does anybody know what it means when it says mature low grade B-cell lymphoma with CD5 co-expression , most consistent with small lymphocytic lymphoma/chronic lymphocytic leukemia
Wanda, I was originally diagnosed with what was called an indolent NHL. or lymphoplasmacitic lymphoma. One valuable resource I used to educate myself was the International Waldenstrom's… read more
I found out today that I am going to be taking an oral chemo drug that sounds like McCalquien but I didn't want the person to spell it. Does anybody know the exact spelling?
Thanks
Jay Knyal
Thank you SO MUCH for your response!
Hi, so glad you are well! How was yours diagnosed? What were your EBV numbers? I wasn't even aware I had EBV, I had antigens, old infection but numbers greater than 600. Lots of infections, swollen… read more
I don't know what that means. Good or Bad?
Bless you Donna! ❤️