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Chemo is directly related to new cancers in our bodies. My doctor also told me indolent lymphomas often lead to other cancers.
June 2019 i was diagnosed with primary cns lymphoma.
This year in march i had an ovary removed. They found diffuse large b cell lymphoma. My oncologist wants to put me on the r-CHOP regimen with stem cell transplant to follow as maintainance therapy.
I was first diagnosed in late 2019. Was treated with rituximab. It came back in 2022 and was treated with rituximab and bendamustine. That treatment only wrapped up a year ago (Feb 2023. ). I’m starting to have symptoms again. Have others experienced rapid reoccurrences? It's just frustrating to think I need I my need to do the chemo dance yet again.
I’m on the same treatment for MZL. Doing 4th treatment mid month.. moving forward is all one can do. Time to consult with oncologist… what are your symptoms… take good care of yourself..
I was just diagnosed a week ago and don't meet with my doctor to discuss next steps until after the new year. He mentioned possibly doing "watch and wait" method and I've read a lot that backs that up, which really surprises me. Why would you wait until things got worse to pursue any type of treatment?
For some types of blood cancer there's no evidence that early treatment, when you have no symptoms, improves outcomes. Instead, doctors recommend saving treatment for later, when it will have the best… read more
Yes, I think so, I have a high grade b cell lymphoma, but some of my doctors think it evolved from a pre-existing undiagnosed indolent (low grade) b cell lymphoma. The evidence for this is that my… read more
I don’t know yet. But after my recent investigation it was very fast that they wanted to see me again. With my other cancer (brain tumour) I get to see my oncologist on the same day after the MRI. I… read more
I am not actively taking treatments right now but I just found a decent size lump on the inside of my left elbow. I am finding myself very agitated and little to no patience. That is totally opposite of my normal disposition. I am sooooo tired all the time. I don’t know what is normal because of my extremely stressful job or if this is part of the disease. I have follicular lymphoma.
I do too Terrie. It’s frustrating I know. Some days I’m more tired than there. Some days I feel nauseas but that’s nerves. I worry. Now I have a UTI where the heck did they come from 🙄.
What should one maybe focus on like exercise, diet, sleep, ibuprofen, or other types of things?
Yes it was successful. !
At this point, I’ve decided not to start treatment
I have lost two friends in the last year to other types of cancer
They both went through chemotherapy and radiation treatments.
They continued telling me that the chemotherapy had caused many uncomfortable side effects and weren’t sure whether it was causing more painful issues than it was worth.
They both have passed in the last three months.
They both expressed to me that their quality of life, and getting some extra months, wasn’t really… read more
I have read that this condition is rare but I have a biopsy for breast cancer coming up and I also have non hodgkin lymphoma. I am wondering if you can have both at the same time!
Angela
Yes. But mine was just a lymphoma node in my breast
