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Real members of MyLymphomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Has Anyone Been Diagnosed With Low Grade Non Hoskins Lymphoma And Been Told By Dr Wait And Watch ..no Treatment.

Has Anyone Been Diagnosed With Low Grade Non Hoskins Lymphoma And Been Told By Dr Wait And Watch ..no Treatment.

A MyLymphomaTeam Member said:

I was diagnosed low grade 25 years ago and put on watch and wait. My doctor traveled and did a lot of research on this..he said this kind may lay dormant for years until your senior years! He also said DONT read about it, everyone is different!! So I didn't and went on enjoying my life!! I decided back then I would not fear and enjoy my years! My doctor was right back then!!
I'm so glad I did! I went for 6 month test for over 5 years until they dismissed me. At 63 it showed up!! The treatment for it is amazing!! I was given treatment rituxan and then a low dose bendamustine and it zapped it!! Don't worry my sweet friend such a treatable kind..if EVER flares up you have a great treatment for it!! I never got sick or lost hair with the treatment for this. In fact I had more energy and it only made me hungry😊
Go out and enjoy your day...don't worry. Your one of the lucky ones. Keep your mind off it and on God. I'm dealing with hemolytic anemia which has me a bit nervous!! But God has a good plan. Have a great day. 🙏🌷

edited, originally posted 6 months ago
A MyLymphomaTeam Member said:

Yes there are many on this site including myself with low grade lymphoma diagnosis and are on wait and watch. I was diagnosed with follicular lymphoma (which is a low grade form) last December and put on a wait and watch for now since it was caught early enough and have now symptoms. I will have appts every three months for now and the Dr said depending on how things are progressing or not progressing he would go to scheduling two appts per year. Thanks. Doug

posted 6 months ago
A MyLymphomaTeam Member said:

Explained perfectly! Thx

posted 3 months ago
A MyLymphomaTeam Member said:

I also have low grade non Hodgkins follicular lymphoma and am on the "watch and wait" protocol. I have an appointment coming up in March and then a CT scan in August. It was found during a routine mammogram with no symptoms (thank God). Of course it was quite a shock but this chat group and others like it are a great encouragement.

posted 6 months ago
A MyLymphomaTeam Member said:

Thats encouraging.

posted 6 months ago
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