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Struggles With Fatigue And Chemo Brain
A MyLymphomaTeam Member asked a question 💭

I'd love to hear the perspective of others.

I was diagnosed with Diffuse large B cell lymphoma in Feb 2021. I finished R-CHOP chemo by May. In consultation with medical practitioners I somehow came to the conclusion that I would be back to normal within a few months. It has now been just over a year and my fatigue is still very significant. I wondered if there is something else going on with me...so I've arranged with my family doctor to explore and rule out other possible reasons for… read more

posted May 4, 2022
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A MyLymphomaTeam Member

Yes indeed, I think you will find many of us have had this frustration. I was diagnosed with stage 4 FL and did 6 months of monthly Bendamustine and Rituxan. I was in remission in January of 2021 when chemo ended. I have always been physically fit and rarely sick but I expected it to take several months to get back in shape. As the months progressed the recovery was slow but by the following August I could take a decent walk - not hike- for an hour. It’s been 18 months and I still have days I’m tired and just ache. My old energy and stamina just isn’t there and sometimes my brain is a little slow.

I’ve had doctors say it might be my thyroid med or just that I’m getting older. Not it. Chemo changed my body BUT it kept me alive. I do yoga or walk almost every day and try to eat well. Most people never notice the change in me but I know it’s there. I’ve tried to adjust my self expectations and be thankful for what I did get back. So many peoples bodies are devastated by severe chemo.

So you are not crazy but you are different. It will probably get better but the gift is that the new you is alive.

posted May 4, 2022
A MyLymphomaTeam Member

RobertM2,
Hi! I too have/had DLBCL stage IV. I had treatments of RCHOP chemo. I've also been in remission for about a year now praise God! I too get tired very easily. I'm showers and in bed watching tv by 7 or 8pm. Somedays the fatigue is better than others. I was told by a survivor that it takes 1 to 2 yrs to feel back to normal. I know I'm still not. But, so blessed to be alive. I believe mine is and was the chemo. You figure it effects every cell in your body. I don't know if I'll ever get my pre lymphoma energy back but again thankful to be alive. Kelly

posted May 5, 2022
A MyLymphomaTeam Member

Yes, 2 years post chemo (RCHOP)exhausted when I get up in morning, excruciating leg and foot pain, and chemo brain still.

posted May 8, 2022
A MyLymphomaTeam Member

RobertM2,
Hi! I had low vit D before my diagnosis. I had the high prescription to start with and now I take a regular vit D pill daily (OTC) it did really help. My B12 was low too. Good luck. Kelly

posted July 22, 2022
A MyLymphomaTeam Member

Robert, I don't think it's out of the question to consult with a cardiologist or a sleep specialist. You had a strong cancer treatment and it would be reassuring to know that no unwanted after effects have occurred. After treatment I see a cardiologist, sleep apnea specialist and pulmonologist. The more appropriate help I got the better I felt.

posted May 4, 2022

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