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Struggles With Fatigue And Chemo Brain

Struggles With Fatigue And Chemo Brain

I'd love to hear the perspective of others.

I was diagnosed with Diffuse large B cell lymphoma in Feb 2021. I finished R-CHOP chemo by May. In consultation with medical practitioners I somehow came to the conclusion that I would be back to normal within a few months. It has now been just over a year and my fatigue is still very significant. I wondered if there is something else going on with me...so I've arranged with my family doctor to explore and rule out other possible reasons for… read more

A MyLymphomaTeam Member said:

Yes indeed, I think you will find many of us have had this frustration. I was diagnosed with stage 4 FL and did 6 months of monthly Bendamustine and Rituxan. I was in remission in January of 2021 when chemo ended. I have always been physically fit and rarely sick but I expected it to take several months to get back in shape. As the months progressed the recovery was slow but by the following August I could take a decent walk - not hike- for an hour. It’s been 18 months and I still have days I’m tired and just ache. My old energy and stamina just isn’t there and sometimes my brain is a little slow.

I’ve had doctors say it might be my thyroid med or just that I’m getting older. Not it. Chemo changed my body BUT it kept me alive. I do yoga or walk almost every day and try to eat well. Most people never notice the change in me but I know it’s there. I’ve tried to adjust my self expectations and be thankful for what I did get back. So many peoples bodies are devastated by severe chemo.

So you are not crazy but you are different. It will probably get better but the gift is that the new you is alive.

posted 17 days ago
A MyLymphomaTeam Member said:

Yes, 2 years post chemo (RCHOP)exhausted when I get up in morning, excruciating leg and foot pain, and chemo brain still.

posted 12 days ago
A MyLymphomaTeam Member said:

RobertM2,
Hi! I too have/had DLBCL stage IV. I had treatments of RCHOP chemo. I've also been in remission for about a year now praise God! I too get tired very easily. I'm showers and in bed watching tv by 7 or 8pm. Somedays the fatigue is better than others. I was told by a survivor that it takes 1 to 2 yrs to feel back to normal. I know I'm still not. But, so blessed to be alive. I believe mine is and was the chemo. You figure it effects every cell in your body. I don't know if I'll ever get my pre lymphoma energy back but again thankful to be alive. Kelly

posted 16 days ago
A MyLymphomaTeam Member said:

Robert, I don't think it's out of the question to consult with a cardiologist or a sleep specialist. You had a strong cancer treatment and it would be reassuring to know that no unwanted after effects have occurred. After treatment I see a cardiologist, sleep apnea specialist and pulmonologist. The more appropriate help I got the better I felt.

posted 17 days ago
A MyLymphomaTeam Member said:

RobertM2,
Hi!! If you ever have any questions please feel free to ask me. Sometimes one feels alone and that you're the only one with certain side effects. I also walk a route inside my house daily several miles. I put on my fitbit and music and I'm off. I think it's helped. Not only physically, but emotionally too. Kelly

posted 15 days ago
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