I have lupus, an autoimmune disease, so Rituxan or other immunotherapy drugs, or chemotherapy would give me 5 to 30% chance of remission...So I don't think it's worth the horrible side effects...But what alternative therapies could work? My oncologist/hematolgist said doing nothing is the most dangerous option. I hope they find less TOXIC therapies!.. If you can relate to this, please reply to me... I'm trying to keep a good sense of humor and a positive attitude, but now I'm going through a… read more

Hi you all. Hope you are all safe and healthy. 💓 I’m on here to search for some advice about my mom. She is a 58 yr old was diagnosed with DLBC Lymphoma, stage 2 to 3/4 (in 01/2021). She immediately started treatments (6 rounds, chemo) and has had an autologous stem cell transplant process (07/2021). But since then, she has an extreme loss of appetite and neutropenia (also major depression for ~5 years). She needs injections for her low count of blood cells every week. Has anyone have the… read more

I am reading here that a lot of people have been receiving treatment with a lesser stage (I & 2) than I have. (I have Stage 3 *follicular* non-hodgkins lymphoma). I have been on watch and wait since my diagnosis in April 2019. I'm wondering why the oncologist is holding off on any treatment. Why wait until it gets bad? Has anyone gotten treatment while being asymptomatic? If you do have symptoms, at what point did your Dr decide to start treatment?

I am not actively taking treatments right now but I just found a decent size lump on the inside of my left elbow. I am finding myself very agitated and little to no patience. That is totally opposite of my normal disposition. I am sooooo tired all the time. I don’t know what is normal because of my extremely stressful job or if this is part of the disease. I have follicular lymphoma.

I did not realize that this is becoming "a thing", yet here we are. For example: So now when you get test results - days, weeks or God forbid maybe months later - you may get billed for the office to contact you with results or to message back and forth instructions.

https://www.patientpower.info/navigating-cancer...(Phone number can only be seen by MyLymphomaTeam users)&mkt_tok=NTQxLUdLWi0yNDMAAAGOyFDad6RszYBkuBLcUCHtGN15oe2TLwd49n-Tr9FvM9jb6XmPlOq-n0uLR8UuXU7uiSI2QDeS-u581JeqVWq4kbjIjAKy… read more

I would like to compare treatments with patience also dealing with double or triple hit diffuse large b-cell lymphoma, Non-Hodgkins. I'm new here and would appreciate having those conversations. Thank you!

Before I started the radiation therapy, the specialist said: “this/I will cure you”(coincidently his last name in French and English is HERO)! I thought: “nice of him to think so. I think this guy takes his last name a little too seriously.” Was I being too cynical? Yes, because I prefer to face reality with facts in order to be able to make relevant decisions and plans. Fact is, in my case at least, radiation would help “clear” the area to be treated temporarily. Radiation, as far as I know, is… read more

Hi friends, I recently had a bone marrow biopsy that showed that 37% of my bone marrow is being affected by the marginal zone lymphoma. My doctor has recommended 4 weekly treatments of Rituximab. I am curious to know from any of you who have had treatments with this what your experience has been and what I should expect. My understanding is that some people have allergic reactions to the treatment and that it also affects your immune system, but other than that I don’t know much. Thanks in… read more

I have just learned I have double hit non Hodgkin's lymphoma and the doctors are reluctant to change my treatment options because I am over 70. But, I am an otherwise active, lively person and I may want to seek a 2nd opinion.