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My wbc has been 55.2 & 53.8. I had Hodgkins Lymphoma & CLL in 2018 stage 4. My CLL is active again. My Cancer Dr says let's give it 3 more months & reck wbc again and then discuss treatments. Is this normal to do?
Makes me agitated & nervous and worried.
🤥 sounds awful to have to wait 3 months before rechecking the wbc and RBC. My Dr does full panel labs every other week and then adjusts the other medication as needed for the kidneys and general… read more
June 2019 i was diagnosed with primary cns lymphoma.
This year in march i had an ovary removed. They found diffuse large b cell lymphoma. My oncologist wants to put me on the r-CHOP regimen with stem cell transplant to follow as maintainance therapy.
Ex. My son is immune suppressed bcs of medication he takes for a rare chronic disease and we are cautious but not overprotective of his environment. I assume it is the same for ppl with NHL watch and wait? Or are there additional precautions against infection, beyond the normal precautions, specifically related to cancer? Thanks
I find the watch and wait so hard. For me is like playing with a loaded gun, the problem is that you do not know really what the caliber is going to be. I just finished treatment for a FL Grade 2… read more
I also get a slight skin rash on my neck and chest from time to time. It comes and goes. I didn't have either of these issues prior to treatment. Any thoughts?
Omgosh, I also get those creepy crawly feelings, usually my legs, sometimes my arms
Once in awhile it's so bad, I'll want to take something for the discomfort. It's so had to describe. I'm 28… read more
Thank you so much
I am not actively taking treatments right now but I just found a decent size lump on the inside of my left elbow. I am finding myself very agitated and little to no patience. That is totally opposite of my normal disposition. I am sooooo tired all the time. I don’t know what is normal because of my extremely stressful job or if this is part of the disease. I have follicular lymphoma.
I do too Terrie. It’s frustrating I know. Some days I’m more tired than there. Some days I feel nauseas but that’s nerves. I worry. Now I have a UTI where the heck did they come from 🙄.
At this point, I’ve decided not to start treatment
I have lost two friends in the last year to other types of cancer
They both went through chemotherapy and radiation treatments.
They continued telling me that the chemotherapy had caused many uncomfortable side effects and weren’t sure whether it was causing more painful issues than it was worth.
They both have passed in the last three months.
They both expressed to me that their quality of life, and getting some extra months, wasn’t really… read more
I went to oncology and he gave me copy of biopsy. Does anybody know what it means when it says mature low grade B-cell lymphoma with CD5 co-expression , most consistent with small lymphocytic lymphoma/chronic lymphocytic leukemia
Wanda, I was originally diagnosed with what was called an indolent NHL. or lymphoplasmacitic lymphoma. One valuable resource I used to educate myself was the International Waldenstrom's… read more
Chemo is directly related to new cancers in our bodies. My doctor also told me indolent lymphomas often lead to other cancers.