The fatigue. I wish people better understood that fatigue is part of it and that a person is honestly tired most of the time and that it's not a matter of having given up.

I agree. It’s the fatigue, but also the lack of motivation that goes with it. I just don’t want to do anything or make any effort.

I agree with fatigue, if I have a busy day grocery shopping or spending time with my granddaughter, it will take me 3-4 days to recover. I never feel refreshed after waking up, I could (and have) slept for 12 hours per night, no matter what the fatigue doesn't let up, people don't understand how much work it is to simply walk to the mailbox. Next would be pain, then brain fog, and depression. I experience them all and combined its like fighting off an army. Not only is my body depleted but so is my brain.

People always say, "I don't look sick", and I think that's amazing. Lymphoma can be tricky like that I guess. My family judges me by my appearance. If I look good, I must feel good, and therefore I should be able to do what I've always done....

They don't get it. It is exhausting, and I don't have an immune system either. I got covid again, even being vaccinated and boosted. Probably because my wbc was low from my medication or the disease, they are never sure. Looks with lymphoma are misleading....I'm just tired of being judged.

I would say that I wish others would understand just because we don't look sick doesn't mean we aren't sick !believe me please... when I tell u I'm exhausted, believe me please when I tell you I feel sick, believe me please when I say I can't walk another step, believe me please when I say I'm not hungry, believe just believe me and trust me and love me BECAUSE I AM SICK.