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Real members of MyLymphomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

What Do You Most Wish Others Understood About Living With Lymphoma?

What Do You Most Wish Others Understood About Living With Lymphoma?

A MyLymphomaTeam Member said:

The fatigue. I wish people better understood that fatigue is part of it and that a person is honestly tired most of the time and that it's not a matter of having given up.

posted about 1 month ago
A MyLymphomaTeam Member said:

People always say, "I don't look sick", and I think that's amazing. Lymphoma can be tricky like that I guess. My family judges me by my appearance. If I look good, I must feel good, and therefore I should be able to do what I've always done....

They don't get it. It is exhausting, and I don't have an immune system either. I got covid again, even being vaccinated and boosted. Probably because my wbc was low from my medication or the disease, they are never sure. Looks with lymphoma are misleading....I'm just tired of being judged.

posted 15 days ago
A MyLymphomaTeam Member said:

I agree. It’s the fatigue, but also the lack of motivation that goes with it. I just don’t want to do anything or make any effort.

posted 27 days ago
A MyLymphomaTeam Member said:

I agree with fatigue, if I have a busy day grocery shopping or spending time with my granddaughter, it will take me 3-4 days to recover. I never feel refreshed after waking up, I could (and have) slept for 12 hours per night, no matter what the fatigue doesn't let up, people don't understand how much work it is to simply walk to the mailbox. Next would be pain, then brain fog, and depression. I experience them all and combined its like fighting off an army. Not only is my body depleted but so is my brain.

posted about 1 month ago
A MyLymphomaTeam Member said:

How fatigued u get

posted 11 days ago
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