Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people who’ve been there
  • People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyLymphomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyLymphomaTeam Member asked a question 💭
Sacramento Area, CA

We are in Sacramento. My stepdad was diagnosed this week with SLL and inflamed lump nodes in his neck. They are just monitoring for now, which I suppose is good. Is there anyone here that is in Sacramento that has a good oncologist at Kaiser they like? Anyone with the same diagnosis or symptoms? What tests have you had done? We have just had a CT and Blood Work. Should we have a lymph node removed and tested? Doctor said we could but didn’t give much detail as to the benefit. Thank you.

August 16, 2022
 · 
Be the first to react
A MyLymphomaTeam Member

Thank you for answering me is Acalabrutinib called Calquence because I think that’s what I will be getting if i start tx at some point

October 5, 2022
A MyLymphomaTeam Member

Hi I have SLL I have swollen lymph nodes in neck also I’ve had a ct scan and bloodwork go back to oncologist in October I’m on watch and wait I had a needle biopsy that’s how I knew I had SLL

August 16, 2022
A MyLymphomaTeam Member

Hi RosanneNannolaFeraco how are you doing..when I went to my oncologist in October my bloodwork was good but I told him my lymph nodes in my neck are really starting to bother me so I will have a pet scan October 28 th then appointment to see him and will go from there I sometimes gag on pills but don’t have a problem with food hope you have a great day

October 23, 2022
A MyLymphomaTeam Member

Patti
No I didn’t have any side effects. Although before I started treatment I was reading up on the side effects. They made me very stressed and afraid. In Feb I was put on an infusion treatment of
Obinutuzumab drug. (GAZYVA) I was on this 3/7-7/26/22. Also no real side effects. I will be on the pill for at least 4 more years.
When I told my first local oncologist (I found another oncologist for a 2nd opinion , he put me on a trial and started this treatment at Memorial Sloan Kettering Cancer Center ) that I was prescribed the Acalabrutinib she said they have very good results with it.
I was on watch and wait for 9 months.
I hope your treatment runs as smoothly as mine did. I am very grateful and extremely thankful for my support system.
Please keep in touch. If you have any other questions for me don’t hesitate to reach out.

October 5, 2022
A MyLymphomaTeam Member

Sorry great day

October 4, 2022

Related Questions

View All
A MyLymphomaTeam Member asked a question 💭
Chicago, IL

A MyLymphomaTeam Member asked a question 💭
Kenner, LA