We are in Sacramento. My stepdad was diagnosed this week with SLL and inflamed lump nodes in his neck. They are just monitoring for now, which I suppose is good. Is there anyone here that is in Sacramento that has a good oncologist at Kaiser they like? Anyone with the same diagnosis or symptoms? What tests have you had done? We have just had a CT and Blood Work. Should we have a lymph node removed and tested? Doctor said we could but didn’t give much detail as to the benefit. Thank you.
Thank you for answering me is Acalabrutinib called Calquence because I think that’s what I will be getting if i start tx at some point
Hi I have SLL I have swollen lymph nodes in neck also I’ve had a ct scan and bloodwork go back to oncologist in October I’m on watch and wait I had a needle biopsy that’s how I knew I had SLL
Hi RosanneNannolaFeraco how are you doing..when I went to my oncologist in October my bloodwork was good but I told him my lymph nodes in my neck are really starting to bother me so I will have a pet scan October 28 th then appointment to see him and will go from there I sometimes gag on pills but don’t have a problem with food hope you have a great day
Patti
No I didn’t have any side effects. Although before I started treatment I was reading up on the side effects. They made me very stressed and afraid. In Feb I was put on an infusion treatment of
Obinutuzumab drug. (GAZYVA) I was on this 3/7-7/26/22. Also no real side effects. I will be on the pill for at least 4 more years.
When I told my first local oncologist (I found another oncologist for a 2nd opinion , he put me on a trial and started this treatment at Memorial Sloan Kettering Cancer Center ) that I was prescribed the Acalabrutinib she said they have very good results with it.
I was on watch and wait for 9 months.
I hope your treatment runs as smoothly as mine did. I am very grateful and extremely thankful for my support system.
Please keep in touch. If you have any other questions for me don’t hesitate to reach out.
Sorry great day