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Real members of MyLymphomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Just Went To Oncologist

A MyLymphomaTeam Member asked a question 💭
Orlando, FL

I don't know what is the matter with me. I am still fatigued. Sunday I was up and about, happy, etc. Monday I spent the entire day in bed....so fatigued. Informed my oncologist. He told me it has nothing to do with my chemotherapy because my last dose was 8 months ago. Said that my labs look great, etc.

Can someone please tell me if I am imaging this? I love to work and be active.

Thank you.

August 17, 2022
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A MyLymphomaTeam Member

Please be vigilant and ask for a PET scan. My husband was feeling this way last fall with weight loss and fatigue. All his blood work looked great. He had a CT scan that looked great. His oncologist told him not to worry. He had a tumour growth that showed up in February on his back. by the time it was properly diagnosed in mid June - it was misdiagnosed as scar tissue because all his scans and blood work were great they did not do a biopsy and the radiologist read it as scar tissue- You may be OK but good to know for sure. The blood work does not tell the whole story. This is his second round of Mantle Cell diagnosis and his blood work has always been excellent. even when he is extremely ill. Praying for a long remission for you and that it is indeed just tiredness and nothing else.

August 25, 2022
A MyLymphomaTeam Member

I also still get exhausted and my oncologist tells me the same thing I can't explain it but we live it! I just chalk it up as doctors aren't always correct we spent a good amount of time being sick and I have lost a lot of muscle mass and I have a bad knee which in turn makes me work harder so yes I am exhausted some times so don't feel bad it's ur body still trying to get back to where it once was and that is sometimes very hard. Take it slow! God bless

April 5, 2023
A MyLymphomaTeam Member

I almost 5 months out and I still have more fatigued days than not. I'm beginning to believe you should only be able to administer and advise patients if you have experienced the treatment yourself.

August 21, 2022
A MyLymphomaTeam Member

Thank you. It was a very long day

January 4, 2024
A MyLymphomaTeam Member

Kathryn,
Good luck on your immunotherapy. I too had RCHOP. I had DLBCL. Kelly

January 3, 2024

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