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Real members of MyLymphomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

When Did Your Fatigue Set In?

A MyLymphomaTeam Member asked a question 💭
Munich, DE

I have follicular lymphoma and last week got my fourth treatment of chemo and immuno therapy. So far my body copes reasonably well but, given that fatigue seems to be a really big topic in this forum, I was wondering when fatigue started to set in with you? Already during therapy or afterwards? I know it's different for everybody but just wanted to get an impression. Sorry if someone already asked this before - I just found this forum today.

November 20, 2022
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A MyLymphomaTeam Member

Mine was before treatment I could hardly do anything all day long , would sleep all night then take 3 to 4 hour naps a day. After treatments I was not as tired 😩

April 9, 2023
A MyLymphomaTeam Member

Ron3,
Hi! My fatigue started before I was diagnosed and continued throughout my treatments of RCHOP chemo. I have been in remission for about 22 months now and I still get tired early in the evenings. I don't have the energy I did previously to lymphoma. But, I'm alive and blessed. I hope you are doing well with your treatments and that you are having a peaceful and blessed day. Kelly

December 9, 2022
A MyLymphomaTeam Member

My fatigue started before treatment began.

December 9, 2022
A MyLymphomaTeam Member

Thank you!

November 21, 2022
A MyLymphomaTeam Member

Anne6,
Hi! And welcome. I had fatigue before I was diagnosed. I have/had DLBCL and had treatments of RCHOP chemo. I've been in remission for about 21 months now. I was very fatigued during treatments and I still get fatigued especially early in the evenings. And, if I am too busy running around for a day or two I feel it after the fact. Someone told me that it can take up to two yrs to feel back to normal. Although, she's 10 yrs out and said she still has issues. I unfortunately think I will never feel the same as previous to lymphoma. But I am so grateful to be alive. Kelly

November 21, 2022

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