Lymphoplasmacytic Lymphoma
I have Waldenstrom's macroglobulinemia did you have hyperviscosity of the blood? I'm currently on wait & see 👀 been diagnosed 2 years ago.
June 2019 i was diagnosed with primary cns lymphoma.
This year in march i had an ovary removed. They found diffuse large b cell lymphoma. My oncologist wants to put me on the r-CHOP regimen with stem cell transplant to follow as maintainance therapy.
I'm 53 and was diagnosed last year with stage 4
I have been following IWMF.com since I was first diagnosed. The information they provide is so valuable to understanding WM. Based on this I am traveled to the Dana Farber in Boston to meet with a WM… read more
Just had shoulder manipulation on uninjured shoulder n doing well so far, three days out!! PT is not fun, but it is certainly helping and the pain before has lessened and I can now move my arm… read more
Yes. Had 4 chemo infusion treatments. Igm counts went down quickly. THe after effects have been quite difficult. Was diagnosed 3/2023. Lack of energy is ongoing.
Have faith, believe in a better tomorrow, and know that medical science is improving. What's not curable today is easily treatable, controllable, and well-managed tomorrow. The objective is a CURE… read more
I, who am allergic to nothing, had a sneezing session that lasted about 20-30 minutes during my first infusion. My nose stuffed up and I could barely breathe. It all went away immediately when the nurse flushed the IV.
Then came the sub-q injection the next week. All was fine until 3 days later. I woke up with pain and fever on my abdomen, below the injection site. The area was swollen about the size of a deck of cards and painful to touch
The following morning (yesterday) it was more painful… read more
I have Waldenstrom’s Macroglobulinemia but have no symptoms. I fear all the Covid shots I got might have been a factor in my diagnosis.
Yes, that’s what I’m talking about! Same thing at my cancer center…could barely find a parking spot in the lot! It was packed. I’m afraid to put more of that vaccine in my system . Thanks for… read more
Anyone else with MCL on watch and wait for MCL? Wondering at what point would treatment start for anyone that was on watch and wait. Not sure I'm doing the right thing.
Trust your own instincts