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Real members of MyLymphomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Any DLBCL Folks On Here?

A MyLymphomaTeam Member asked a question 💭
Camden, SC

I’d like any and all advice, information and stories on diffuse large B cell lymphoma!

May 23, 2023
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A MyLymphomaTeam Member

Charlene, I had DLBCL. Took RCHOP/Methotrexate. Bad the nasty disease persisted. I took CAR-T and got cured. 3 years now!

August 2, 2023
A MyLymphomaTeam Member

Charlene , I hit remission for a year in June, I am heading to 80 in Sept, I feel great , as good as I did in my 60’ s no fatigue at all. he said when I asked what stage 5, maybe that is because I had radiation on my neck, 7 c, surgeon and radiologist both agreed radiation not surgery, had 5 and success . I just live life to the fullest each day . Good luck , I actually changed oncologists and so if in doubt do that . I am at my daughters watching er cat while they vacation, and here in WA as my husband of 60 years is in memory care so I fly in so someone is here in case he falls etc, he is 87. I made this quilt while here, I baked, cooked tried new recipes and cleaned her patio and porch as they had new siding on and they finally finished and today I cleaned her fridge and threw out outdated things she loves that as she works from home in high stress job and has a 8 yr old and 14 yr old stepson. 😊👍like I said live each day and love it

July 9, 2023
A MyLymphomaTeam Member

Had rchop 4 stage 4 diffuse b NHL. I did pretty good thru therapy. I was their 1st person that got to take the chemo home with me at night. I think it helped that I was able to spend time at home instead of in the hospital. I had my dog at home and a helping husband. Finished therapy in early oct. Hoping it stays gone..

January 25
A MyLymphomaTeam Member

I have been in remission for just a few weeks. I am 88y/o and took the TX well except did have an episode of atrial fib. Ok now.

July 8, 2023
A MyLymphomaTeam Member

Charlene, I was diagnosed with stage 4 DLBC NHL and started chemo (the usual 6 cycles of RCHOP) in April 2020. Then had radiation, then methotrexate into the spine (prophylactic). Was then in remission for 11 months. Didn’t tolerate the next chemo, and had CAR-T in March 2022. Have been in remission since. I hope you achieve remission after your chemo - many do, and remain so for the rest of your life. Just know that if you relapse, there are more treatments available.

July 1, 2023

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