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Has anyone had immunotherapy?? Any side effects? Thank You.

A MyLymphomaTeam Member asked a question 💭
Prince George, VA
May 27, 2023
 · 
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Answer Summary

Members shared their experiences with various immunotherapy treatments, primarily Rituximab, often combined with chemotherapy like... Read more

Members shared their experiences with various immunotherapy treatments, primarily Rituximab, often combined with chemotherapy like Bendamustine, with most reporting manageable side effects such as mild fatigue, constipation, and occasional needle site soreness, while a few noted more significant challenges including severe reactions requiring hospitalization, worsening neuropathy, and prolonged immune system weakness. Several members offered practical advice including communicating openly with infusion nurses about discomfort, preparing for lengthy first infusions with entertainment, and asking for pre-medications to minimize reactions, with many expressing gratitude for minimal hair loss compared to traditional chemotherapy. A recurring theme was the financial burden of treatment, prompting members to share resources like manufacturer assistance programs through Genentech, nonprofit organizations like the Leukemia and Lymphoma Society and Lymphoma Research Foundation, clinical trials offering free medications, and strategies for maximizing insurance coverage.

A MyLymphomaTeam Member

I had 4 BR treatments and now 4 Rituxan infusions as part of an every other month 2 year maintenance program. Good news: still in remission. Not so good: low Wbc, worsening neuropathy, fatigue, stiffness, malaise. These may be at least in part due to the rituxan but I am staying the course. I am trying to adjust my expectations so I can find a level to continue to exercise and work (artist). My doctor said rituxan takes about 6 months to clear your system, so there is an increasing build up when you get it every two months.

January 13, 2024
A MyLymphomaTeam Member

I had ONLY Rituxan infusions [no chemo] & it worked very well. I also handled it great too !

November 22, 2023
A MyLymphomaTeam Member

I had immunotherapy and target therapy. I had a few symptoms, mostly nausea , constipation, diarrhea and tiredness. I have been in remission for nearly one year and have neuropathy in my legs and feet. I am 88 y/o.

October 3, 2023
A MyLymphomaTeam Member

I just finished my sixth and final cycle of rituxin (immunotherapy) and bendamustine (chemotherapy). I had minimal side effects…. Mild nausea a couple days after the two day cycle and a little fatigue…. Nothing major…

July 19, 2023
A MyLymphomaTeam Member

Just had my second round of Rituximab and Bendamustine, all went well! This time they increased speed of immunotherapy every 30 minutes, at the same time taking my temperature and blood pressure until I reached max speed for that day without any side effects. Thank you, Jesus! Have 4 more rounds to go!🥰

July 18, 2023

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