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A MyLymphomaTeam Member asked a question 💭
Kent, OH

I had DLBCL and have been in remission for more than 2 yrs. I had RCHOP chemo. I still have joint and muscle pain especially in the mornings. Does anyone else still have this? Thank you, Kelly

July 13, 2023
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Answer Summary

Members overwhelmingly confirmed that joint and muscle pain, especially in the mornings, is a common and persistent side effect years after... Read more

Members overwhelmingly confirmed that joint and muscle pain, especially in the mornings, is a common and persistent side effect years after RCHOP chemotherapy for DLBCL, with many describing stiffness in hips, thighs, lower back, and shoulders that improves with movement throughout the day. Several members shared practical strategies that have helped, including taking Claritin (loratadine) for bone pain, staying active through yoga, pickleball, or Silver Sneakers classes, checking for vitamin deficiencies (especially B1 and B12), and consulting rheumatologists or physical therapists to rule out autoimmune conditions like PMR or RA. A recurring theme was the frustration of this new normal balanced with gratitude for remission, with members encouraging each other to stay proactive, keep moving, and remember that managing these challenges is a small price to pay for being cancer-free.

A MyLymphomaTeam Member

Theresa6,
I was on steroids for a yr for an autoimmune disorder I got after chemo called PMR. I've since titrated off. But I did feel better on them but in the yr of steroids I gained 50lbs. Good luck on your orthopedic appointment. I hope you get some relief. Kelly

July 14, 2023
A MyLymphomaTeam Member

I have hip pain, neuropathy in my left foot, and my left calf from shingles. Side affect of chemo. I have some back issues as well. Just joined the gym going three times a week, hoping it improves some of the problems.

July 13, 2023
A MyLymphomaTeam Member

I’m almost 3 years in remission & had M -Chop in a clinical trial followed by 6 months of R-Chop. I definitely relate to the morning stiffness & have had some issues with cramping in hands & legs. I remind myself it was the ticket to getting me where I’m at but it is frustrating at times. I find staying active helps but I’ve considered Yoga & after reading Vonnies reply may give that a try.

July 25, 2023
A MyLymphomaTeam Member

I eat pickle, Banna or pickle juice or drink water

July 21, 2023
A MyLymphomaTeam Member

Hi KellyS
I'm thinking the new normal. I'm stiff most mornings too. Yoga really helps. I continue to get muscle or nerve twitches, not sure what it is. I'm assuming from chemo. Some days it's hard to describe, part of me says it's painful sometimes , but then I think it's more annoying than pain at times. I think taking up pickleball has improved my overall physical ability.
Hope yours gets better.
Take care, Vonnie

July 13, 2023

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