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I went to oncology and he gave me copy of biopsy. Does anybody know what it means when it says mature low grade B-cell lymphoma with CD5 co-expression , most consistent with small lymphocytic lymphoma/chronic lymphocytic leukemia
Wanda, I was originally diagnosed with what was called an indolent NHL. or lymphoplasmacitic lymphoma. One valuable resource I used to educate myself was the International Waldenstrom's… read more
Sara, I am on the same new med. I hope it’s working for you. Seems to be for me👍
I was just diagnosed a week ago and don't meet with my doctor to discuss next steps until after the new year. He mentioned possibly doing "watch and wait" method and I've read a lot that backs that up, which really surprises me. Why would you wait until things got worse to pursue any type of treatment?
For some types of blood cancer there's no evidence that early treatment, when you have no symptoms, improves outcomes. Instead, doctors recommend saving treatment for later, when it will have the best… read more
There’s two of them in the back of my left arm that are swollen and have been for a month now not the other I’m just one arm. Just wondering if that sounds consistent lymphoma? And what should I do moving forward to be sure it isn’t cancer?
Same here, left cervical lymph nodes and left armpit lymph nodes swollen for 10 months now, they fluctuate but got really large, did flow cytometry, T-LGL Leukemia a possibility, on to Moffitt for… read more
June 2019 i was diagnosed with primary cns lymphoma.
This year in march i had an ovary removed. They found diffuse large b cell lymphoma. My oncologist wants to put me on the r-CHOP regimen with stem cell transplant to follow as maintainance therapy.
I've been experience neck stiffness and pain that has gotten progressively worse radiating from the back of my skull close to the base to my shoulders. Sometimes when I swallow it hurts deep inside my neck muscles. I'm also getting sores in my mouth.. I'm wondering if this could be a side effect.. I've been on methotrexate since Dec 2018.
Gudo, I have Follicular Tropic Mycosis Fungoides T-Cell lymphoma it's a cutaneous t-cell lymphoma
My auxiliary nodes swole afte Covid booster. I had two ultra sounds but after two were shown to be growing, biopsy ordered. Biopsy results low grade lymphoma leukemia. Doctor referred me to Hematology. CDC showed high WBC but said smudge cells present. Has anybody had this and if so does the smudge cells mean my low grade lymphoma is CLL? I’m devastated.
My primary care Dr kept tell ih ng me that after my (3) CoVid Boosters the swelling in the armpit area "is nothing." 🙄 They lasted 3-4+ weeks, happened on both arms where covid inj was given.
You… read more
I have read that this condition is rare but I have a biopsy for breast cancer coming up and I also have non hodgkin lymphoma. I am wondering if you can have both at the same time!
Angela
Yes. But mine was just a lymphoma node in my breast
I have had swollen lymphnodes in my groin for about 15 months, my right armpit for about 4 months, and in my neck which the hema-oncologist discovered about almost 6 weeks ago. Night sweats have been occurring for about 15 months now, however they used to happen randomly here and there (few times a month) they are now every time I fall asleep. I now wake up 2-3 times a night to change because I am drenched and end up shivering for 30-40 min afterwards. I have had terrible joint/body pain for the… read more
My SLL/CLL was discovered through a mammogram which showed my armpit lymph nodes were swollen. Then I was sent for a biopsy which diagnosed the SLL/CLL.
