What Comfort Measures, Besides Medical, Have You Found To Be Most Important To You During Your Chemo Treatments? | MyLymphomaTeam

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What Comfort Measures, Besides Medical, Have You Found To Be Most Important To You During Your Chemo Treatments?
A MyLymphomaTeam Member asked a question 💭

I'm getting ready to start 4-6 cycles of R-CHOP for DLBCL after we finished all the scans and tests this week. Of all the medical possibilities, chemo is the one I have feared the most over my lifetime, and here we gooo!

posted January 12
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A MyLymphomaTeam Member

Honestly I didn’t deprive myself. I was told if I loose 10% of my weight chemo will be stopped. One thing for sure you need to consistently be hydrated,.
The morning before i would drink plenty of water. Hydration is important. You will find you have dry mouth. Peppermint hard candy became a friend quick. On the day of my treatment, I did not take my medication in the morning I took it after my treatment. The day of my first treatment my sister went and got us lunch. It was OK. It did not taste very good. I have no idea why? Ha ha after that, I really wasn’t interested in having lunch. Until after the treatment. One of my most favorite things after treatment was macaroni and cheese. It really soothed my stomach. I never got sick or threw up. With the nausea medication They gave one of them had a sedation effect. The other one did not as long as you stay ahead of the nausea you’re fine whether you’re nauseated or not take the medicine. My sister would tease me on the way home because she would be talking to me and I would be talking to her and then I would be asleep. Just like that, and so out of character for me. The first day after treatment I always rested I would get up and sit in the recliner. There were days when the only thing that I could stomach was Ramen noodles, but I made sure that I ate. And now that I’m all finished one of the things that I really like that I can’t tolerate very much anymore is spicy food. I get awful heartburn now..
And towards the end of my treatments, I started getting heartburn periodically. If you get Tums make sure you get them with with calcium that’s the best thing. One of the things that I was so happy when I was finished with chemo was to stop taking all those medication‘s. They made your mouth so dry your lips chapped. I didn’t have any sores in my mouth or anything like that but I made sure that I rinsed my mouth out a lot. If I would get up and use the bathroom at night I would rinse my mouth out. I change my toothbrush to a soft bristle. And if you can start taking some vitamin D and a calcium supplement, because the treatments will deplete your vitamin D and your calcium. At this point, I now take vitamin A, vitamin D, and vitamin K and calcium daily. And I try to get when I can sunshine. Fresh air I know it’s winter time but if you can get out and get some fresh air every day, even if it’s only for five minutes, it really helps.
I hope what I’ve shared has given you some insight and I will be thinking about you. I pray your treatments are successful!!

posted January 12
A MyLymphomaTeam Member

I did fasting 24 hours before and during the cycle, in later cycles I ate small, light meals. Big meals and fat did not work for me. Also exercised as good as possible. At the beginning jogging, weight lifting and gymnastics, later walking and gymnastics. Sometimes you will feel fatigued, which feels similar but is different to tired. Then sport helps. You will develop a feeling, what your body can afford.
I had four cycles of R-CHOP plus two cycles of CNS prophylaxis plus two extra cycles of Rituximab only. All depends on your staging.

posted January 12

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