Anyone Have Any Experience With Small Cell Lymphocytic Leukemia That’s Chronic And Being Middle Aged? Most With It Are 65+ | MyLymphomaTeam

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Anyone Have Any Experience With Small Cell Lymphocytic Leukemia That’s Chronic And Being Middle Aged? Most With It Are 65+
A MyLymphomaTeam Member asked a question 💭
posted January 17
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A MyLymphomaTeam Member

Imbruvica. 140mg, one pill a day. Only when my lymph nodes start swelling and giving me trouble. So, this time I’ve been taking it for 6 months, then I’ll go off of the med until the nodes swell again. Works within a week to reduce the swelling. Very expensive medicine though.

posted January 21
A MyLymphomaTeam Member

Curious what meds u r on for all? Dx 8/23 with sll. Caught me off guard to but I just turned 65

posted January 20
A MyLymphomaTeam Member

Hi there…I have it and I’m 51. Was diagnosed at 47. Everything I read says most are diagnosed early in life or later, so that caught me off guard!

posted January 20
A MyLymphomaTeam Member

Well I have had it for year and half now. I'm about to be 55.

posted January 20

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