Does Anyone Else Have Follicular Lymphoma That Doctors Are Just Watching And Waiting? | MyLymphomaTeam

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Does Anyone Else Have Follicular Lymphoma That Doctors Are Just Watching And Waiting?
A MyLymphomaTeam Member asked a question 💭
posted January 28
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A MyLymphomaTeam Member

I’m on watch and wait for follicular lymphoma for a little over a year. Bloodwork , CT and PET scans. I got a second opinion and they agreed watch and wait was best. I’m hoping I can go a long time without treatment My lymph nodes have been increasing again but no B symptoms yet. My next PET is in April.

posted February 1
A MyLymphomaTeam Member

Yes, I am I see my oncologist every 3 months for blood work and discussion. It is a strange place to be waiting for cancer to start.

posted January 31
A MyLymphomaTeam Member

I have follicular NHL stage III.
I started Chemo last month and will have it every 4 weeks X 6 months
They offered wait and watch. But didn’t want to do that in my case. Every case is different though

posted January 30
A MyLymphomaTeam Member

I have an enormous amount of stomach issues. They said they don't think it's from my duodenal lymphoma. Where is your lymphoma?

posted January 29
A MyLymphomaTeam Member

They don’t treat if no severe symptoms. I had severe shortness of breath and large pleural effusion and did year and half immunotherapy. A year later I started chemo when it returned and progressed. Had three treatments and feel so much better.

posted January 28

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