Answer Summary

Members connected over the rare diagnosis of lymphoplasmacytic lymphoma with IgG paraprotein, with several sharing their experiences feeling... Read more

Members connected over the rare diagnosis of lymphoplasmacytic lymphoma with IgG paraprotein, with several sharing their experiences feeling isolated due to having a variant that differs from the more common Waldenstrom's macroglobulinemia. Many community members described their treatment experiences with Rituximab, either alone or combined with Bendamustine, noting that side effects like fatigue and loss of appetite typically improved after the first treatment or two, with recovery to normal taking anywhere from a few days to three weeks. A recurring theme was hope and encouragement, with members celebrating remissions lasting two to three years and sharing stories of siblings who had been clean for over a decade after treatment.