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Real members of MyLymphomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

cuteouneous

A MyLymphomaTeam Member asked a question 💭
San Diego, CA
June 28, 2025
 · 
Reactions
A MyLymphomaTeam Member

JuanDiaz,
Good luck on your biopsy. I hope it goes well for you. And sending you a hug and prayers for your treatment plan. Kelly

June 30, 2025
A MyLymphomaTeam Member

Hi Kelly,
Thank you for your warm greetings. My DLBCL relapsed after 11 years of CR. In April I had a Bone Marrow Transplant. It looks like I have an early relapse. Waiting for the biopsy results to make it official and start a new plan of treatment. Best. Juan

June 30, 2025
A MyLymphomaTeam Member

JuanDiaz,
Hi and welcome to the site. Everyone on here is so nice, helpful and supportive. I have/had DLBCL and had treatments of RCHOP chemo. I've been in remission for 4 yrs. I hope you are feeling well. Kelly

June 29, 2025
A MyLymphomaTeam Member

Cutaneous Non-Hodgkin Large B-Cell lymphoma info. Thanks.

June 28, 2025
MyLymphomaTeam

Did you mean Cutaneous T-Cell Lymphoma (CTCL)? This is a rare type of non-Hodgkin lymphoma that starts in T cells (part of your immune system) and affects the skin. It's about 10 times rarer than other skin cancers.

Common symptoms include
- Enlarged lymph nodes in neck, chin, armpits, and groin
- Hair loss
- Thickened Show Full Answer

Did you mean Cutaneous T-Cell Lymphoma (CTCL)? This is a rare type of non-Hodgkin lymphoma that starts in T cells (part of your immune system) and affects the skin. It's about 10 times rarer than other skin cancers.

Common symptoms include:
- Enlarged lymph nodes in neck, chin, armpits, and groin
- Hair loss
- Thickened skin on palms and feet
- Intense itching
- Reddened skin across the body The two main types are:

1. Mycosis fungoides - Most common form, usually slow-growing and often stays in the skin. More common in men, Black Americans, and people over 50.

2. Sézary syndrome - A chronic, slow-growing form that affects the blood. More common in adults over 50 and slightly more prevalent in men.

June 28, 2025
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