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Real members of MyLymphomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
December 21, 2025
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A MyLymphomaTeam Member

Do people die from Primary Cutaneous Marginal Zone B-Cell extra nodal NHL?

July 6
MyLymphomaTeam

Will other members with cutaneous B-cell lymphoma reach out to you?

Members on MyLymphomaTeam connect in different ways. While there are over 100 members who report having cutaneous B-cell lymphoma, whether they reach out depends on how active they are in the community and if they see your posts or profile.

The best way Show Full Answer

Will other members with cutaneous B-cell lymphoma reach out to you?

Members on MyLymphomaTeam connect in different ways. While there are over 100 members who report having cutaneous B-cell lymphoma, whether they reach out depends on how active they are in the community and if they see your posts or profile.

The best way to connect with others who have primary cutaneous marginal zone lymphoma (MZL) is to be proactive:

- Share your story or questions on your Activities page
- Comment on posts from others with similar diagnoses
- Use the search feature to find members with cutaneous B-cell lymphoma
- Participate in discussions about your specific subtype

Primary cutaneous marginal zone B-cell lymphoma is one of the low-grade, slow-growing subtypes of cutaneous B-cell lymphoma. It typically forms red skin lesions on the torso and arms. Since it's a rare condition, connecting with others who understand your experience can be really valuable.

Don't wait for others to find you - start conversations and you'll likely find members who share similar experiences with this rare form of lymphoma.

December 21, 2025

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