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Real members of MyLymphomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
March 9
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A MyLymphomaTeam Member
March 30
A MyLymphomaTeam Member

Hi Rhonda and the gorgeous Gia,
Firstly how’s your baby doing today?
My babies are spoilt rotten 😊

Your breakfast sounds delicious and very healthy! What are you doing today? Hope you had a nice day!

It’s 19.00 pm here, on way back home, picking up a carry out (very naughty)!

What I did “trying” to improve my life today: 7am to 19.00pm in sequence:

went to a class at the gym (exercise)

Had soaked oats for breakfast (nutrition)

Finalising CVs. Coat on & returning to work 🥳 (work)

1 slice of wholemeal toast & smoked salmon for lunch (nutrition)

New suit, hair appointment (work)

New pillows for 8/9 hours (sleep)

Just baby steps but I’m proud of myself I’m moving forward.

I have a big problem with asking anyone for help, I don’t! - but all over this wonderful site it says we should! Do you?

Have a fantastic evening to you and Gia

Take Care
Keep in contact, friend
Scottie, Tyson & Lila G 🥰

March 30
A MyLymphomaTeam Member

Hi Rhonda4 and a big shout out to Gia your companion and Smarty Pants beauty,

No.

There are 101 people here on the lymphoma site with a dx of Primary Cutaneous (confined to SKIN) Marginal Zone B-Cell extra nodal non-Hodgkin’s lymphoma. It is “extremely rare”. No one in Ireland or UK has this.

No contact yet from anyone on lymphoma site with this diagnosis.

In bed still in Ireland it’s 07.00 am

Have a fantastic Monday too!!

I’m going to do something to improve my life today!!

Hope you are very happy and well

Take Care
Scottie, Tyson 🐕 and Lila G 🐈
🤗

March 30
A MyLymphomaTeam Member

Hi Scottie 👋🏻
Are you receiving information you had asked for?
I hope you have a great day (happy Monday).
With hugs from Rhonda4 and Gia - The Smarty Pants Dog.

March 29
MyLymphomaTeam

What is cutaneous marginal zone B-cell lymphoma?

Cutaneous marginal zone B-cell lymphoma is a rare, slow-growing type of non-Hodgkin lymphoma that affects the skin. It's actually a combination of two rare conditions - it's both a type of marginal zone lymphoma (which develops from B cells) and a cutaneous (skin) lymphoma.

Show Full Answer

What is cutaneous marginal zone B-cell lymphoma?

Cutaneous marginal zone B-cell lymphoma is a rare, slow-growing type of non-Hodgkin lymphoma that affects the skin. It's actually a combination of two rare conditions - it's both a type of marginal zone lymphoma (which develops from B cells) and a cutaneous (skin) lymphoma.

This particular subtype is considered low-grade, meaning it grows slowly and generally responds well to milder treatment options. The primary symptom is typically the formation of lumps, papules, or plaques on the skin - often appearing as small, raised areas that may be skin-colored, red, or purple.

Since it's a skin lymphoma, it develops in the skin without affecting other areas of the body at the time of diagnosis. The lesions most commonly appear on the neck, head, back, or legs.

Because both cutaneous lymphomas and marginal zone lymphomas are quite rare individually, having both characteristics makes this an especially uncommon diagnosis. It can take months or even years to diagnose, as it may mimic other skin conditions and often requires multiple biopsies to confirm.

The good news is that this type tends to be very responsive to treatment, with a generally favorable outlook for those diagnosed with it.

March 9

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