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I had a pet scan in December that showed a complete response to r and r treatment. I have continued on maintenance therapy infusions every 8 weeks and a lower dose of revilimid medication. Lately have been having occasional night sweats and palpable nodes in my neck. Was hoping for others insight or experiences. Thanks in advance!

May 11
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MyLymphomaTeam

First, that complete response in December is genuinely great news โ€” that's a real win worth holding onto. It's completely understandable to feel anxious when new symptoms appear, especially night sweats and swollen nodes.

While specific experiences from others on the exact same maintenance regimen can vary, relapse after a Show Full Answer

First, that complete response in December is genuinely great news โ€” that's a real win worth holding onto. It's completely understandable to feel anxious when new symptoms appear, especially night sweats and swollen nodes.

While specific experiences from others on the exact same maintenance regimen can vary, relapse after a complete response is something some lymphoma patients do face. Symptoms like night sweats and palpable lymph nodes can sometimes signal a relapse, though they can also have other explanations.

The most important step right now is to contact your oncologist as soon as possible and describe these symptoms. They may want to:

- Schedule an earlier follow-up appointment
- Order blood work or imaging
- Assess whether your maintenance therapy needs adjusting Other MyLymphomaTeam members have shared that staying on top of symptoms and reporting them quickly to their care team made a real difference in catching changes early.

The good news is that even if lymphoma does return, there are second-line treatment options available, including clinical trials, which your oncologist can walk you through.

Please don't wait on this โ€” reach out to your doctor soon. You're your own best advocate! ๐Ÿ’™

May 11

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