Yes, there are definitely members of MyLymphomaTeam who have Mycosis Fungoides (MF) or Sézary Syndrome (SS)! Both are types of cutaneous T-cell lymphoma (CTCL), meaning they affect the skin.
Members have shared some relatable experiences, including:
- Struggling with intense itching and rashes that disrupt sleep
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Yes, there are definitely members of MyLymphomaTeam who have Mycosis Fungoides (MF) or Sézary Syndrome (SS)! Both are types of cutaneous T-cell lymphoma (CTCL), meaning they affect the skin.
Members have shared some relatable experiences, including:
- Struggling with intense itching and rashes that disrupt sleep
- Frustration after being misdiagnosed multiple times before getting answers
- Searching for ways to manage pain and skin discomfort
- Dealing with new spots even while in remission Here's a quick breakdown of the two conditions:
- Mycosis Fungoides is the more common form, typically slow-growing and mostly stays in the skin. Rashes can appear as flat patches, thicker plaques, or raised tumors.
- Sézary Syndrome is more aggressive and involves cancerous cells in the bloodstream, often causing a full-body rash that can be hot, itchy, and painful.
Both conditions are very much part of the conversation on MyLymphomaTeam, so you're definitely not alone in navigating this!
June 7
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