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I had my doctors appointment today and the petscan was good

A MyLymphomaTeam Member asked a question 💭
Kenner, LA

I read where good petscans don’t really mean
Cancer is really gone on slow moving cancers like lymphoma

September 10
 · 
Reactions
MyLymphomaTeam

Great news on the PET scan — that's worth celebrating! 🎉 It's completely understandable to have questions about what those results really mean, especially with slow-growing lymphomas.

You're right that with slow-growing types of lymphoma, a good PET scan doesn't always mean the cancer is completely gone. Here's why: - Show Full Answer

Great news on the PET scan — that's worth celebrating! 🎉 It's completely understandable to have questions about what those results really mean, especially with slow-growing lymphomas.

You're right that with slow-growing types of lymphoma, a good PET scan doesn't always mean the cancer is completely gone. Here's why: - Slow-growing lymphomas (like follicular lymphoma or CLL/SLL) are often managed as a chronic condition rather than being fully cured
- A good scan means the cancer isn't actively showing significant activity — which is genuinely great news
- Doctors often monitor slow-growing lymphomas over time rather than declaring full remission

The goal with slow-growing lymphomas is often long-term management and keeping things stable, and a good PET scan is a very positive sign of that.

It's worth having a direct conversation with your oncologist about what "good results" specifically means for your type of lymphoma, so you have a clear picture of next steps and what to watch for going forward.

September 10
A MyLymphomaTeam Member

The key word is remission, I have never heard cured! And I can understand because a lot of the blood cancers return 4 years later, each certain cancer will tell you what % will return etc 🙏

3 days ago
A MyLymphomaTeam Member

So is my doctor incorrect by saying i am cancer free

September 10
A MyLymphomaTeam Member

It's been 4 years and now I am dealing with the side effects of the chemo, which is congestive heart failure, once I heard the word cancer I forgot to ask about side effects but there's always something

3 days ago
A MyLymphomaTeam Member

Basically probably for the rest of my life I will always have to check in every 6 months for a PET scan just to see

3 days ago

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