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A MyLymphomaTeam Member asked a question 💭
Chicago, IL

Have Lymphoplasmacytic lymphoma
Experiencing headache nausea dizziness weakness
Had IVIG for today but it was cancelled due to my symptoms

September 29
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Answer Summary

Members rallied around a question about whether an absolute lymphocyte count of 0.4 is safe enough for back surgery, with the general... Read more

Members rallied around a question about whether an absolute lymphocyte count of 0.4 is safe enough for back surgery, with the general consensus being that surgery should be postponed until symptoms like nausea, dizziness, and weakness improve. Several members shared personal experiences with low lymphocyte counts after treatment, with one noting that their oncologist emphasized the neutrophil-to-lymphocyte ratio over absolute count, and another encouraging the original poster to trust her body and advocate for herself. A recurring theme was the importance of working closely with a care team before proceeding, along with warm encouragement, practical tips like ginger tea for nausea, and hope for a full recovery.

A MyLymphomaTeam Member

i’m not a doctor, but this is a question for your hematologist. Infection could be an issue and that’s a decision for you to make with your Care team.🙏🙏🙏

September 29
A MyLymphomaTeam Member

That’s a medical question that should be answered by a medical provider.

September 29
A MyLymphomaTeam Member

I think I would be cautious of having surgery regardless of low lymphocytes if you are having all those symptoms: dizziness, weakness, headaches,etc. I was told my lymphocytes may never increase after having chemo that targeted lymphocytes, and that my body has other cells involved with helping my immune system function. I of course want my immune system fully functioning, but have not had any major issues yet. Praying this continues. My lymphoma was PMBCL fought with EPOCH-R for five months. Praying you feel better soon, so you can have the surgery you need.

September 29
A MyLymphomaTeam Member

My thoughts exactly. No I wasn’t able to ask him But I had my first appointment with my new oncologist yesterday and he is very impressive. I think I’m going to be very happy with him. I’ll be doing the IVIG monthly. I’m not aware of any side effects from it. I think they should have continued with the treatment. I didn’t bring it up with the new doctor. We had covered so many things and I was so relieved to finally have a doctor who was knowledgeable about this and was supportive and kind. It was a good day.

October 2
A MyLymphomaTeam Member

Hi Sylvia- thanks for your help. I’m quite concerned about this and I am not going to have the surgery until I am better. My appointment today was at the cancer center for my IVIG treatment and it was postponed because of the symptoms by my oncologist. I am confused about this because I am having it to help build my immune system back up. I know my body is not going to be able to handle this right now. Something is wrong. The interventional radiologist is okay with me doing it so is the oncologist. And the oncologist has told me in the past that it’s the absolute lymphocytes that are what he goes off of. Mine have been very low for several months. And the neutrophils are low. But either way I don’t feel comfortable with them doing surgery with this happening right now. Yes I have been using ginger. It’s been my best friend since this started. 😊
Sending xx’s

September 30

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Orwigsburg, PA

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