Has Anyone Been Put On The Wait And See Program Without Being Given An Official Diagnosis?

I have had swollen lymphnodes in my groin for about 15 months, my right armpit for about 4 months, and in my neck which the hema-oncologist discovered about almost 6 weeks ago. Night sweats have been occurring for about 15 months now, however they used to happen randomly here and there (few times a month) they are now every time I fall asleep. I now wake up 2-3 times a night to change because I am drenched and end up shivering for 30-40 min afterwards. I have had terrible joint/body pain for the… read more

What Advice Do You Have For Others About Managing Fatigue?

Watch And See

I've been on watch and see approach for 9 months.3a follicular lymphoma. I go to a new oncologiston Aug 19. Still no symptoms. I feel good right now. Should i wait to get treatments until i have symptoms

Reoccurrences Have You Heard Of R And R ?

Cancer port
Chemo
Our son needed every other month Rituxan or Rhituximab and it saved his life
Non Hodgkin's Lymphoma

Stage 3 Follicular Non-Hodgkins Lymphoma..and Wondering Why No Treatment Has Been Recommended...

I am reading here that a lot of people have been receiving treatment with a lesser stage (I & 2) than I have. (I have Stage 3 *follicular* non-hodgkins lymphoma). I have been on watch and wait since my diagnosis in April 2019. I'm wondering why the oncologist is holding off on any treatment. Why wait until it gets bad? Has anyone gotten treatment while being asymptomatic? If you do have symptoms, at what point did your Dr decide to start treatment?

Length Of Infusion Time?

Doctor says my day 1 infusion of Treanda will take six hours, then day 2, Rituxan is only 2 hours. How long did/does your infusion take? Six hours sounds really long.

Does Anyone Else Feel Agitated?

I am not actively taking treatments right now but I just found a decent size lump on the inside of my left elbow. I am finding myself very agitated and little to no patience. That is totally opposite of my normal disposition. I am sooooo tired all the time. I don’t know what is normal because of my extremely stressful job or if this is part of the disease. I have follicular lymphoma.

I Have A Question About Bone Pain After 4 Years Of Clear Scans.

have a question. I have been clear for 4 years, but in the last 6 months I have been having bone pain. My oncologist ran panels of bloodwork. The normal panels like CBC, etc, Rheumatoid arthritis, lupus, inflammation, all came back clear, which is great, but im still in pain daily. Has anyone experienced anything like this with lymphoma? Am I experiencing a recurrence, or is this all together something unrelated?

Maintenance Program With [[treatment:Rituxan Hycela:5c648bd265df61506ecba9a7]]

I was diagnosed with Follicular Non Hudgkin's Lymphoma last year in November. Had 4 Month Chemo with Bendeka. Now in remission, and was recommended to do a 2 year maintenance treatment with [[treatment:Rituxan Hycela:5c648bd265df61506ecba9a7]]. Anybody else has the same treatment? Is it standard to do it after chemo? What are the long term side effects? I feel fine, but still worry about this
Anybody completed the 2 year? Was any recurrence of the cancer shortly after finishing treatment.… read more

My Spouse Was Diagnosed With Stage IV Non-Hodgkins Lymphoma In July 2019.

He refused chemotherapy and refuses to talk about his situation. He does nothing but sit and watch tv. Are there any suggestions about how to be supportive of his choices?