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Lymphoma

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Real members of MyLymphomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
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Has Anyone Been Put On The Wait And See Program Without Being Given An Official Diagnosis?

Has Anyone Been Put On The Wait And See Program Without Being Given An Official Diagnosis?

I have had swollen lymphnodes in my groin for about 15 months, my right armpit for about 4 months, and in my neck which the hema-oncologist discovered about almost 6 weeks ago. Night sweats have been occurring for about 15 months now, however they used to happen randomly here and there (few times a month) they are now every time I fall asleep. I now wake up 2-3 times a night to change because I am drenched and end up shivering for 30-40 min afterwards. I have had terrible joint/body pain for the… read more

A MyLymphomaTeam Member said:

Yes back24 years ago because it was slow cancer growth .instead of fast growing you had
Time and did not have to start treatments yet
That also means
Because it was slow
U didn't need… read more

posted 5 months ago

Watch And See

Watch And See

I've been on watch and see approach for 9 months.3a follicular lymphoma. I go to a new oncologiston Aug 19. Still no symptoms. I feel good right now. Should i wait to get treatments until i have symptoms

A MyLymphomaTeam Member said:

Good move. Second opinion. I did it snd found a more comfortable setting and approach to treatment and had radiation immediately

posted 9 months ago

Reoccurrences Have You Heard Of R And R ?

Reoccurrences Have You Heard Of R And R ?

Cancer port
Chemo
Our son needed every other month Rituxan or Rhituximab and it saved his life
Non Hodgkin's Lymphoma

A MyLymphomaTeam Member said:

Try Phillips milk of magnesia doctor said that's the best !

posted 5 months ago

Stage 3 Follicular Non-Hodgkins Lymphoma..and Wondering Why No Treatment Has Been Recommended...

Stage 3 Follicular Non-Hodgkins Lymphoma..and Wondering Why No Treatment Has Been Recommended...

I am reading here that a lot of people have been receiving treatment with a lesser stage (I & 2) than I have. (I have Stage 3 *follicular* non-hodgkins lymphoma). I have been on watch and wait since my diagnosis in April 2019. I'm wondering why the oncologist is holding off on any treatment. Why wait until it gets bad? Has anyone gotten treatment while being asymptomatic? If you do have symptoms, at what point did your Dr decide to start treatment?

A MyLymphomaTeam Member said:

Thank you so much for all your replies. 🌻. Definitely God sent.🙏. Be blessed, be strong💐. Needed to read this, like now🤕. What a coincidence, am at Onco. Clinic waiting to be called, scheduling 8… read more

posted over 1 year ago

Length Of Infusion Time?

Length Of Infusion Time?

Doctor says my day 1 infusion of Treanda will take six hours, then day 2, Rituxan is only 2 hours. How long did/does your infusion take? Six hours sounds really long.

A MyLymphomaTeam Member said:

Oh yes, 🙏🙏🙏

posted 5 months ago

Does Anyone Else Feel Agitated?

Does Anyone Else Feel Agitated?

I am not actively taking treatments right now but I just found a decent size lump on the inside of my left elbow. I am finding myself very agitated and little to no patience. That is totally opposite of my normal disposition. I am sooooo tired all the time. I don’t know what is normal because of my extremely stressful job or if this is part of the disease. I have follicular lymphoma.

A MyLymphomaTeam Member said:

I’ve never gotten angry about it. I’m just agitated. Like, things get on my nerves that probably shouldn’t bother me.

posted 11 months ago

I Have A Question About Bone Pain After 4 Years Of Clear Scans.

I Have A Question About Bone Pain After 4 Years Of Clear Scans.

have a question. I have been clear for 4 years, but in the last 6 months I have been having bone pain. My oncologist ran panels of bloodwork. The normal panels like CBC, etc, Rheumatoid arthritis, lupus, inflammation, all came back clear, which is great, but im still in pain daily. Has anyone experienced anything like this with lymphoma? Am I experiencing a recurrence, or is this all together something unrelated?

A MyLymphomaTeam Member said:

I went to my nephrologist Monday, and both my magnesium and potassium were both low, so he increased my intake... but I do have an appt with my oncologist tomorrow as well...I will ask bvb about the… read more

edited, originally posted almost 2 years ago

Maintenance Program With [[treatment:Rituxan Hycela:5c648bd265df61506ecba9a7]]

Maintenance Program With [[treatment:Rituxan Hycela:5c648bd265df61506ecba9a7]]

I was diagnosed with Follicular Non Hudgkin's Lymphoma last year in November. Had 4 Month Chemo with Bendeka. Now in remission, and was recommended to do a 2 year maintenance treatment with [[treatment:Rituxan Hycela:5c648bd265df61506ecba9a7]]. Anybody else has the same treatment? Is it standard to do it after chemo? What are the long term side effects? I feel fine, but still worry about this
Anybody completed the 2 year? Was any recurrence of the cancer shortly after finishing treatment.… read more

A MyLymphomaTeam Member said:

I was diagnosed over two years ago with follicular non Hodgkin lymphoma.. I did not have Chemo .. as the cancer was in my hip which I had a total replacement. I was immediately treated with Rituxanread more

posted 12 months ago

My Spouse Was Diagnosed With Stage IV Non-Hodgkins Lymphoma In July 2019.

My Spouse Was Diagnosed With Stage IV Non-Hodgkins Lymphoma In July 2019.

He refused chemotherapy and refuses to talk about his situation. He does nothing but sit and watch tv. Are there any suggestions about how to be supportive of his choices?

A MyLymphomaTeam Member said:

Many prayers

posted 7 months ago

First Chemo Treatment - What To Expect

First Chemo Treatment - What To Expect

Husband has first round of chemo (R CHOP) on Thursday. He is normally very healthy and active...what can we expect him to be like after treatment? Does pain dimish and fatigue get better right away?

A MyLymphomaTeam Member said:

I had 6 cycles of R CHOP with 3 weeks between each cycle. I has stage 4 diffuse large B cell NHL. I got some relief from my back pain after the first cycle and complete relief after the second cycle… read more

posted 12 months ago
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