Lymphoma

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Watch and see

Watch and see

I've been on watch and see approach for 9 months.3a follicular lymphoma. I go to a new oncologiston Aug 19. Still no symptoms. I feel good right now. Should i wait to get treatments until i have symptoms

A MyLymphomaTeam Member said:

Get a 2nd opinion... wont hurt...

posted about 1 month ago

Reoccurrences Have you heard of R and R ?

Reoccurrences Have you heard of R and R ?

Cancer port
Chemo
Our son needed every other month Rituxan or Rhituximab and it saved his life
Non Hodgkin's Lymphoma

A MyLymphomaTeam Member said:

I’m in remission (1 month) but Dr is still having me do Rhituximab every 3 months.

posted 1 day ago

Maintenance program with [[treatment:Rituxan Hycela:5c648bd265df61506ecba9a7]]

Maintenance program with [[treatment:Rituxan Hycela:5c648bd265df61506ecba9a7]]

I was diagnosed with Follicular Non Hudgkin's Lymphoma last year in November. Had 4 Month Chemo with Bendeka. Now in remission, and was recommended to do a 2 year maintenance treatment with [[treatment:Rituxan Hycela:5c648bd265df61506ecba9a7]]. Anybody else has the same treatment? Is it standard to do it after chemo? What are the long term side effects? I feel fine, but still worry about this.
Anybody completed the 2 year? Was any… read more

A MyLymphomaTeam Member said:

I have had one round of Rituxan last April. Just found out this week I need to do another round. I have stage 1 Follicular Lymphoa so surprised I need… read more

posted 8 days ago

My spouse was diagnosed with stage IV Non-Hodgkins Lymphoma in July 2019.

My spouse was diagnosed with stage IV Non-Hodgkins Lymphoma in July 2019.

He refused chemotherapy and refuses to talk about his situation. He does nothing but sit and watch tv. Are there any suggestions about how to be supportive of his choices?

A MyLymphomaTeam Member said:

I have MCL

posted 12 days ago

I have a question about bone pain after 4 years of clear scans.

I have a question about bone pain after 4 years of clear scans.

have a question. I have been clear for 4 years, but in the last 6 months I have been having bone pain. My oncologist ran panels of bloodwork. The normal panels like CBC, etc, Rheumatoid arthritis, lupus, inflammation, all came back clear, which is great, but im still in pain daily. Has anyone experienced anything like this with lymphoma? Am I experiencing a recurrence, or is this all together something unrelated?

A MyLymphomaTeam Member said:

I had serious pain in my thighs before my diagnosis with NHL. I went to CVS and bought all kinds of muscle treatments and rubbed the area. This made the… read more

posted 3 days ago

I have Non Hodgkin's Lymphoma

I have Non Hodgkin's Lymphoma

I am in my 4th cycle of R-CHOP for non hodgkin's lymphoma. For the first week after treatment I have some nausea, and various side effects, but what I'm curious about is the low grade fever, aches and pains I experience for the following 2 weeks. Occasionally I feel like my heart is racing, but it always resolves itself. I'm wondering if anyone else experiences these side effects? My Doctors are very vague about the cause. My blood work is always good right before treatment, although… read more

A MyLymphomaTeam Member said:

I have had the same thing! Had a 5 day hospital stay with the last one. Praying for better results for us both this go round

posted about 2 months ago

Looking for others with same diagnosis

Looking for others with same diagnosis

I would like to compare treatments with patience also dealing with double or triple hit diffuse large b-cell lymphoma, Non-Hodgkins. I'm new here and would appreciate having those conversations. Thank you!

A MyLymphomaTeam Member said:

Jbb, how are you doing?

posted about 17 hours ago

Hair Growth After Chemotherapy completed

Hair Growth After Chemotherapy completed

My 19 year old daughter has Hodgkin's Lymphoma (subtype Nodular sclerosis Hodgkin lymphoma) and being treated with chemotherapy - AVBD regimen. She is just completing cycle 4 and has 2 more cycles to go. A major trauma for her has been the loss of her hair. It represents the whole cruelty and randomness of this disease and the absolute disruption of her life. A big question for her is what will her hair look like after it grows back. I want to reassure her, and I want to… read more

A MyLymphomaTeam Member said:

I lost all my blonde gently wavy hair. It is growing back now darker, still wavy, same texture, same thickness. I can always highlight it for awhile… read more

posted 2 months ago
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