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Real members of MyLymphomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
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What's The Most Important Thing You Learned About Living With Lymphoma This Past Year?

What's The Most Important Thing You Learned About Living With Lymphoma This Past Year?

posted December 28, 2022
A MyLymphomaTeam Member

To never take things I have been gifted for granted. Whether that be God gifts, something I earned or health that I still have. Because that is which was given can then be taken away

posted 5 days ago

How Do You Handle Unsolicited Advice Or Comments About Lymphoma?

How Do You Handle Unsolicited Advice Or Comments About Lymphoma?

posted October 26, 2022
A MyLymphomaTeam Member

Keep up the good fight and put your faith in God. None of us would be here without his grace.

posted 2 days ago

What Advice Do You Have For Others About Managing Fatigue?

What Advice Do You Have For Others About Managing Fatigue?

posted May 5, 2022
A MyLymphomaTeam Member

I walked two miles on Thursday and did nothing on Friday. I can relate.

posted November 26, 2022

What Are Your Top Tips For Managing Lymphoma In The Summer Heat?

What Are Your Top Tips For Managing Lymphoma In The Summer Heat?

posted June 29, 2022
A MyLymphomaTeam Member

A good anti-perspirant and staying indoors, cranking the a/c.

posted December 6, 2022

Has Anyone Refused Treatment. Opted For Palliative Care And A Assisted Death?

Has Anyone Refused Treatment. Opted For Palliative Care And A Assisted Death?

Where are the stats on how long you live without treatment ? How many people out of a Drs client base decide NOT to do Chemo?
where is info on how many people decide not to treat or give up on treatment. Anyone think treatment is worse the disease ?
Some NHL's are not curable. I want to know how those people deal with their life, Hospice and pain control.
Anyone besides me considering not treating.
I can't be the only one.

posted July 3, 2022
A MyLymphomaTeam Member

Congratulations Linda💐🥳😎

posted 6 days ago

What Do You Look Forward To Accomplishing In 2023?

What Do You Look Forward To Accomplishing In 2023?

posted January 25
A MyLymphomaTeam Member

Eating better, maybe travel more

posted 2 days ago

What's The One Thing That's Helped You Most In Dealing With Cancer?

What's The One Thing That's Helped You Most In Dealing With Cancer?

Chemotherapy? Prayer? Your spouse? Diet? Church, masjid, temple, synagogue? Exercise? What's helped you most as an individual dealing with cancer?

posted August 17, 2022
A MyLymphomaTeam Member

Being patient, trusting my doctors and feeling the love of family and friends.

posted December 14, 2022

Does Anyone Else Feel Agitated?

Does Anyone Else Feel Agitated?

I am not actively taking treatments right now but I just found a decent size lump on the inside of my left elbow. I am finding myself very agitated and little to no patience. That is totally opposite of my normal disposition. I am sooooo tired all the time. I don’t know what is normal because of my extremely stressful job or if this is part of the disease. I have follicular lymphoma.

posted September 8, 2020 (edited)
A MyLymphomaTeam Member

Take care! You are doing a lot. Working and getting a degree is a balancing act. I’m attending Capella. 🍀

posted 3 days ago

Has Anyone Been Put On The Wait And See Program Without Being Given An Official Diagnosis?

Has Anyone Been Put On The Wait And See Program Without Being Given An Official Diagnosis?

I have had swollen lymphnodes in my groin for about 15 months, my right armpit for about 4 months, and in my neck which the hema-oncologist discovered about almost 6 weeks ago. Night sweats have been occurring for about 15 months now, however they used to happen randomly here and there (few times a month) they are now every time I fall asleep. I now wake up 2-3 times a night to change because I am drenched and end up shivering for 30-40 min afterwards. I have had terrible joint/body pain for the… read more

posted May 24, 2020
A MyLymphomaTeam Member

I would get a second opinion and request a core needle biopsy.

posted December 19, 2022

How Do You Thank Your Family And Friends For Their Support?

How Do You Thank Your Family And Friends For Their Support?

posted November 23, 2022
A MyLymphomaTeam Member

I usually just thank with hugs and words. Lunches out, small gifts to girlfriends. I'm an artist, so I make small art pieces - I call them desk art 2x2 - 4x4 and give as gifts too.

posted January 18
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