Has Anyone Refused Treatment. Opted For Palliative Care And A Assisted Death? | MyLymphomaTeam

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1532 questions
Has Anyone Refused Treatment. Opted For Palliative Care And A Assisted Death?
A MyLymphomaTeam Member asked a question 💭

Where are the stats on how long you live without treatment ? How many people out of a Drs client base decide NOT to do Chemo?
where is info on how many people decide not to treat or give up on treatment. Anyone think treatment is worse the disease ?
Some NHL's are not curable. I want to know how those people deal with their life, Hospice and pain control.
Anyone besides me considering not treating.
I can't be the only one.

A MyLymphomaTeam Member

I am told that my nhl is incurable but treatable. I have finished 6 months of chemo BR and now I’m in maintenance for 2 years. So far I have been managing good. We will see what my ct scan in June… read more

posted May 26, 2023
Anyone Have Experience With Rituximab Treatments
A MyLymphomaTeam Member asked a question 💭

Hi friends, I recently had a bone marrow biopsy that showed that 37% of my bone marrow is being affected by the marginal zone lymphoma. My doctor has recommended 4 weekly treatments of Rituximab. I am curious to know from any of you who have had treatments with this what your experience has been and what I should expect. My understanding is that some people have allergic reactions to the treatment and that it also affects your immune system, but other than that I don’t know much. Thanks in… read more

A MyLymphomaTeam Member

Thanks Joe

posted 3 days ago
What Are Your Top Tips For Managing Lymphoma In The Summer Heat?
A MyLymphomaTeam Member asked a question 💭
A MyLymphomaTeam Member

I’m from northern Minnesota and now live on Louisiana. Down here I have to walk inside. I suffer with cll/sll and I stay hot all the time.

posted June 6, 2023
Do You Use Things Spiritual In Dealing With Your Cancer?
A MyLymphomaTeam Member asked a question 💭

Do you use things spiritual in dealing with your cancer?

If so what do you use? Prayer? Meditation? Certain books? Church, synagogue or mosque? Music? Poetry? I ask because I'm always looking for useful spiritual tools. Personally I use 12 step material and the book A Course In Miracles along with prayer. And there are certain organizations that I've found useful, that send out free booklets and magazines. But I'm always looking for useful things to add to my repertoire.

A MyLymphomaTeam Member

Totally agree

posted February 4
Does Anyone Have Cancer In Their Bone Marrow?
A MyLymphomaTeam Member asked a question 💭

Two years ago, I was diagnosed with Marginal Zone lymphoma. I was told that I have cancer in my bone marrow- about 10-20%- My oncologist put me on the watch and wait as I have no symptoms. Does anyone else have cancer in their bone marrow, and did you receive any treatment (chemo?)

A MyLymphomaTeam Member

Sue6
Neuropathy, in feet and optic nerves
Also the normal bone pain, fatigue in afternoon
I work really well, get lots accomplished from sun up until around 2 or 3 then that's it.
But have to say… read more

posted February 13
Joint And Muscle Pain
A MyLymphomaTeam Member asked a question 💭

I had DLBCL and have been in remission for more than 2 yrs. I had RCHOP chemo. I still have joint and muscle pain especially in the mornings. Does anyone else still have this? Thank you, Kelly

A MyLymphomaTeam Member

CarlaTylerScholwinski,
Hi and thank you for the reply. I hope you have a wonderful weekend. Kelly

posted November 17, 2023
Could You Share Any Dietary Changes And Tips That Have Helped With Lymphoma?
A MyLymphomaTeam Member asked a question 💭
A MyLymphomaTeam Member

I think that it is the reason

posted 1 day ago
As A Cancer Patient What Is The One Thing You Wish For Most For Christmas 🎄?
A MyLymphomaTeam Member asked a question 💭

If you could make a wish, as a cancer patient, for Christmas and have it come true what would it be? ☺️

A MyLymphomaTeam Member
posted January 21
How Do You Cope With Seasonal Changes And Lymphoma?
A MyLymphomaTeam Member asked a question 💭
A MyLymphomaTeam Member

Happy for you Marta. We have so many blankets, I need to get rid of them - LOL

posted February 5
What’s Your Top Survival Tip For Managing Lymphoma In The Summer Heat?
A MyLymphomaTeam Member asked a question 💭
A MyLymphomaTeam Member

We had record temperatures this summer and the heat was not pleasant. At this point, since I have not had treatment, I'm not noticing much difference after I was diagnosed with non-marginal non… read more

posted September 24, 2023
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