Can Someone Explain The "watch And Wait" Reasoning For Treatment? | MyLymphomaTeam

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1287 questions
Can Someone Explain The "watch And Wait" Reasoning For Treatment?
A MyLymphomaTeam Member asked a question 💭

I was just diagnosed a week ago and don't meet with my doctor to discuss next steps until after the new year. He mentioned possibly doing "watch and wait" method and I've read a lot that backs that up, which really surprises me. Why would you wait until things got worse to pursue any type of treatment?

A MyLymphomaTeam Member

For some types of blood cancer there's no evidence that early treatment, when you have no symptoms, improves outcomes. Instead, doctors recommend saving treatment for later, when it will have the best… read more

posted 1 day ago
Anyone On Here Have Diffuse Large B Cell Lymphoma?
A MyLymphomaTeam Member asked a question 💭

I didn't see it listed as one of the "lymphomas". I was diagnosed February 20, 2019. I had chemo and was told in October that I was in remission.

A MyLymphomaTeam Member

I had Dlbcl in 2015 treated with RCHOP and in remission since then but have. Intolerance to hot and cold weather and joint pains

posted 5 days ago
Has Anyone Ever Been Diagnosed With Two Different Types Of Lymphoma?
A MyLymphomaTeam Member asked a question 💭

June 2019 i was diagnosed with primary cns lymphoma.
This year in march i had an ovary removed. They found diffuse large b cell lymphoma. My oncologist wants to put me on the r-CHOP regimen with stem cell transplant to follow as maintainance therapy.

A MyLymphomaTeam Member

Jody I'm happy you're at a good cancer center & wish you best of luck k with your treatment

posted February 16
Does Anyone Else Feel Agitated?
A MyLymphomaTeam Member asked a question 💭

I am not actively taking treatments right now but I just found a decent size lump on the inside of my left elbow. I am finding myself very agitated and little to no patience. That is totally opposite of my normal disposition. I am sooooo tired all the time. I don’t know what is normal because of my extremely stressful job or if this is part of the disease. I have follicular lymphoma.

A MyLymphomaTeam Member

I didn't know there are lymph nodes in our arms/elbows. The lymph nodes affected with my cancer (NHL) are from my neck all the way down to my groin.

posted 1 day ago
74 Year Old Male. Diagnosed NHL Non Aggressive Mode. Not Many Frequent Symptoms.
A MyLymphomaTeam Member asked a question 💭

At this point, I’ve decided not to start treatment
I have lost two friends in the last year to other types of cancer
They both went through chemotherapy and radiation treatments.
They continued telling me that the chemotherapy had caused many uncomfortable side effects and weren’t sure whether it was causing more painful issues than it was worth.
They both have passed in the last three months.
They both expressed to me that their quality of life, and getting some extra months, wasn’t really… read more

A MyLymphomaTeam Member

I am a 72 year old male and was diagnosed with stage 4 B-Cell lymphoma in October 2021. I delayed treatment until April of 2023. I began chemotherapy and immunotherapy in April and have not… read more

posted January 22
Has Anyone Been Put On The Wait And See Program Without Being Given An Official Diagnosis?
A MyLymphomaTeam Member asked a question 💭

I have had swollen lymphnodes in my groin for about 15 months, my right armpit for about 4 months, and in my neck which the hema-oncologist discovered about almost 6 weeks ago. Night sweats have been occurring for about 15 months now, however they used to happen randomly here and there (few times a month) they are now every time I fall asleep. I now wake up 2-3 times a night to change because I am drenched and end up shivering for 30-40 min afterwards. I have had terrible joint/body pain for the… read more

A MyLymphomaTeam Member

My SLL/CLL was discovered through a mammogram which showed my armpit lymph nodes were swollen. Then I was sent for a biopsy which diagnosed the SLL/CLL.

posted October 10, 2023
Anyone Else Having Family Problems
A MyLymphomaTeam Member asked a question 💭

I’ve got a question, I’ve got cancer, so much has changed with me. There are times I feel like someone else has taken over my body. I guess what I’m trying to say is that it’s hard having cancer and it’s not just me going through this. My whole life has changed, I can’t travel very far, it’s hard on me. It’s hard enough having cancer, I don’t even go outside anymore unless going to appointments, letting the dog out. My daughter keeps pushing me to come there and there is colorado. Lived in… read more

A MyLymphomaTeam Member

I have gone to Alanon predispose
I am currently in Alabama at my mom's and meeting with a realtor tomorrow, doing a drive by today of one I wanted to see tomorrow, a neighbor was outside. I had a… read more

posted February 15
How Do You Deal With Depression?
A MyLymphomaTeam Member asked a question 💭

Today is yet another good 👍☺️ day. But I'm thinking about depression. And I'm going to answer my own question and look forward to hearing how YOU deal with depression. There's been several times that I suffered severe depression. Having cancer is certainly reason for depression. I was diagnosed years ago with situational depression. I also have PTSD, caused by things that happened in the fifties and seventies. Sometimes psychiatric help is required, or some form of therapy, or medication. Even… read more

A MyLymphomaTeam Member

Funny u mentioned over eating I don't know if any of u remember but cancer NEVER BOTHERED ME I just felt as if I had a cold I THOUGHT IT DIDN'T BOTHER ME BUT I have a question for all
" I have been… read more

posted February 13
Stage 3 Follicular Non-Hodgkins Lymphoma..and Wondering Why No Treatment Has Been Recommended...
A MyLymphomaTeam Member asked a question 💭

I am reading here that a lot of people have been receiving treatment with a lesser stage (I & 2) than I have. (I have Stage 3 *follicular* non-hodgkins lymphoma). I have been on watch and wait since my diagnosis in April 2019. I'm wondering why the oncologist is holding off on any treatment. Why wait until it gets bad? Has anyone gotten treatment while being asymptomatic? If you do have symptoms, at what point did your Dr decide to start treatment?

A MyLymphomaTeam Member

Thank you so much for all your replies. 🌻. Definitely God sent.🙏. Be blessed, be strong💐. Needed to read this, like now🤕. What a coincidence, am at Onco. Clinic waiting to be called, scheduling 8… read more

posted August 27, 2020
Anyone Have Experience With Rituximab Treatments
A MyLymphomaTeam Member asked a question 💭

Hi friends, I recently had a bone marrow biopsy that showed that 37% of my bone marrow is being affected by the marginal zone lymphoma. My doctor has recommended 4 weekly treatments of Rituximab. I am curious to know from any of you who have had treatments with this what your experience has been and what I should expect. My understanding is that some people have allergic reactions to the treatment and that it also affects your immune system, but other than that I don’t know much. Thanks in… read more

A MyLymphomaTeam Member

I do

posted February 2
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