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Lymphoma

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Real members of MyLymphomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
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Stage 3 Follicular Non-Hodgkins Lymphoma..and Wondering Why No Treatment Has Been Recommended...

Stage 3 Follicular Non-Hodgkins Lymphoma..and Wondering Why No Treatment Has Been Recommended...

I am reading here that a lot of people have been receiving treatment with a lesser stage (I & 2) than I have. (I have Stage 3 *follicular* non-hodgkins lymphoma). I have been on watch and wait since my diagnosis in April 2019. I'm wondering why the oncologist is holding off on any treatment. Why wait until it gets bad? Has anyone gotten treatment while being asymptomatic? If you do have symptoms, at what point did your Dr decide to start treatment?

posted almost 3 years ago
A MyLymphomaTeam Member said:

Thank you so much for all your replies. 🌻. Definitely God sent.🙏. Be blessed, be strong💐. Needed to read this, like now🤕. What a coincidence, am at Onco. Clinic waiting to be called, scheduling 8… read more

posted about 2 years ago

How Do You Deal With Depression?

How Do You Deal With Depression?

Today is yet another good 👍☺️ day. But I'm thinking about depression. And I'm going to answer my own question and look forward to hearing how YOU deal with depression. There's been several times that I suffered severe depression. Having cancer is certainly reason for depression. I was diagnosed years ago with situational depression. I also have PTSD, caused by things that happened in the fifties and seventies. Sometimes psychiatric help is required, or some form of therapy, or medication. Even… read more

posted 3 months ago
A MyLymphomaTeam Member said:

Was in hospital close to 4 weeks and was quite sick but look to each day being new, not as a whole. To me this made it possible. Oh but it worked and all worth it,13 years in remission and think I am… read more

posted 2 months ago

Has Anyone Been Put On The Wait And See Program Without Being Given An Official Diagnosis?

Has Anyone Been Put On The Wait And See Program Without Being Given An Official Diagnosis?

I have had swollen lymphnodes in my groin for about 15 months, my right armpit for about 4 months, and in my neck which the hema-oncologist discovered about almost 6 weeks ago. Night sweats have been occurring for about 15 months now, however they used to happen randomly here and there (few times a month) they are now every time I fall asleep. I now wake up 2-3 times a night to change because I am drenched and end up shivering for 30-40 min afterwards. I have had terrible joint/body pain for the… read more

posted over 2 years ago
A MyLymphomaTeam Member said:

Yes back24 years ago because it was slow cancer growth .instead of fast growing you had
Time and did not have to start treatments yet
That also means
Because it was slow
U didn't need… read more

posted about 1 year ago

Watch And See

Watch And See

I've been on watch and see approach for 9 months.3a follicular lymphoma. I go to a new oncologiston Aug 19. Still no symptoms. I feel good right now. Should i wait to get treatments until i have symptoms

posted about 3 years ago
A MyLymphomaTeam Member said:

Good move. Second opinion. I did it snd found a more comfortable setting and approach to treatment and had radiation immediately

posted over 1 year ago

Just Went To Oncologist

Just Went To Oncologist

I don't know what is the matter with me. I am still fatigued. Sunday I was up and about, happy, etc. Monday I spent the entire day in bed....so fatigued. Informed my oncologist. He told me it has nothing to do with my chemotherapy because my last dose was 8 months ago. Said that my labs look great, etc.

Can someone please tell me if I am imaging this? I love to work and be active.

Thank you.

posted about 1 month ago
A MyLymphomaTeam Member said:

Please be vigilant and ask for a PET scan. My husband was feeling this way last fall with weight loss and fatigue. All his blood work looked great. He had a CT scan that looked great. His oncologist… read more

posted about 1 month ago

I Have Follicular NHL, Completed Chemo And Am In Remission. Just Recently Diagnosed With Covid.

I Have Follicular NHL, Completed Chemo And Am In Remission. Just Recently Diagnosed With Covid.

After chemo, I had two sessions of Rituxan before my doctor stopped that treatment due to extreamly low white blood cell counts. I had one infusion of Immune globulin before contracting Covid. Even though I'm on Paxlovid (anti-viral), I'm uncertain what to expect in recovery since my immune system is so compromised. I'm sure other Lymphoma patients have contracted Covid and want to know what to expect in recovery with a compromised immune system.

Ron Davis

posted 2 months ago
A MyLymphomaTeam Member said:

Thank you PlainsOils. Blessings to you in return.

posted 2 months ago

Rituxan

Rituxan

How long after treatment did patients see positive results like having more energy less fatigue less b symptoms like sweats it been a month since my wife completed here front line treatment of Rituxinab 1 a week for a month

posted 2 months ago
A MyLymphomaTeam Member said:
posted 2 months ago

What Advice Do You Have For Others About Managing Fatigue?

What Advice Do You Have For Others About Managing Fatigue?

posted 5 months ago
A MyLymphomaTeam Member said:

That's happen to me and it is funny that people in the family sometimes do not understand. I wait up and I continue with muscle pain and tired. its crazy but I do not care about what people said no… read more

posted 8 days ago

Eye Redness And Discomfort From Rituxan?

Eye Redness And Discomfort From Rituxan?

GM everyone! I have been treating with Rituxan on and off for 5 yrs now, (along with bendamustine). I just finished a treatment for 2 yrs of Rituxan only - every other month. My eyes are always red and angry looking. I cannot find comfort. I am seeing an ophthalmic doctor who specializes in the outer part of the eye, as well as one who specializes with the back of the eye. He has me on Restasis for dry eye along with other drops including a prescription allergy drop. Nothing seems to… read more

posted 10 months ago
A MyLymphomaTeam Member said:

I take Xyzol and Singular for allergies. Plus Restasis, prescription allergy eye drops, and OTC eye drops recommended by the ophthalmologist. Could hardly open my eyes this morning.

I’m not… read more

posted 10 months ago

Does Anyone Else Feel Agitated?

Does Anyone Else Feel Agitated?

I am not actively taking treatments right now but I just found a decent size lump on the inside of my left elbow. I am finding myself very agitated and little to no patience. That is totally opposite of my normal disposition. I am sooooo tired all the time. I don’t know what is normal because of my extremely stressful job or if this is part of the disease. I have follicular lymphoma.

edited, originally posted about 2 years ago
A MyLymphomaTeam Member said:

Once you get out of shock from having this lymphoma and read all about what your body is experiencing it's " normal to get agitated & frustrated and ask what's next? We all are battling this disease… read more

posted 3 months ago
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