I was just diagnosed a week ago and don't meet with my doctor to discuss next steps until after the new year. He mentioned possibly doing "watch and wait" method and I've read a lot that backs that up, which really surprises me. Why would you wait until things got worse to pursue any type of treatment?
Yes I went to UTMD Anderson for a second opinion of the diagnosis. The oncologist was aware of the medicine being used but she did not agree with the primary oncologist to immediately start me… read more
I am not actively taking treatments right now but I just found a decent size lump on the inside of my left elbow. I am finding myself very agitated and little to no patience. That is totally opposite of my normal disposition. I am sooooo tired all the time. I don’t know what is normal because of my extremely stressful job or if this is part of the disease. I have follicular lymphoma.
Good morning Rebecca 3
I agree with y our statement, being kinder, to people, especially in this world today, will maybe start to rub off on the others around us. It was hard at first, especially… read more
I am reading here that a lot of people have been receiving treatment with a lesser stage (I & 2) than I have. (I have Stage 3 *follicular* non-hodgkins lymphoma). I have been on watch and wait since my diagnosis in April 2019. I'm wondering why the oncologist is holding off on any treatment. Why wait until it gets bad? Has anyone gotten treatment while being asymptomatic? If you do have symptoms, at what point did your Dr decide to start treatment?
Thank you so much for all your replies. 🌻. Definitely God sent.🙏. Be blessed, be strong💐. Needed to read this, like now🤕. What a coincidence, am at Onco. Clinic waiting to be called, scheduling 8… read more
Today is yet another good 👍☺️ day. But I'm thinking about depression. And I'm going to answer my own question and look forward to hearing how YOU deal with depression. There's been several times that I suffered severe depression. Having cancer is certainly reason for depression. I was diagnosed years ago with situational depression. I also have PTSD, caused by things that happened in the fifties and seventies. Sometimes psychiatric help is required, or some form of therapy, or medication. Even… read more
Talk to friends and try to do mindless things to occupy my brain with anything but my racing mind. Easier said than done I'm still weak so it's hard to do but it helps I suffer from depression and… read more
I keep busy with work and family. I meditate and stay positive. Exercise is important. My motto is I have cancer, but it doesn't have me!😊
I use a product called Healthy Feet and Nerves. It helped my husband with his diabetes neuropathy and it helps me now. I also take B12, D2+K3, and Lions Mane. Acupuncture too.
I didn't see it listed as one of the "lymphomas". I was diagnosed February 20, 2019. I had chemo and was told in October that I was in remission.
I was diagnosed with DLBCL in February 2020. Through biopsy on an enlarged lymph node in my groin- no other symptoms. Had six rounds RCHOP therapy and in remission- will have a scan end of this… read more
June 2019 i was diagnosed with primary cns lymphoma.
This year in march i had an ovary removed. They found diffuse large b cell lymphoma. My oncologist wants to put me on the r-CHOP regimen with stem cell transplant to follow as maintainance therapy.
I had B cell lymphoma and CNS also and what they are saying you need is exactly what they did to me although I also received multiple Methotrexate infusions before the stem cell transplant
I don't know what is the matter with me. I am still fatigued. Sunday I was up and about, happy, etc. Monday I spent the entire day in bed....so fatigued. Informed my oncologist. He told me it has nothing to do with my chemotherapy because my last dose was 8 months ago. Said that my labs look great, etc.
Can someone please tell me if I am imaging this? I love to work and be active.
im thinking its because yur immune system is so low that it makes you fatigued. i also found that since ive been on the rituxin- your bone density gets worse-ive had several kyroplastys done on my… read more