Anyone On Here Have Diffuse Large B Cell Lymphoma?
I didn't see it listed as one of the "lymphomas". I was diagnosed February 20, 2019. I had chemo and was told in October that I was in remission.
Your the same story as me I had NHL with Diffuse Large B Cell last year, today I am in remission since Oct 2023
Can Someone Explain The "watch And Wait" Reasoning For Treatment?
I was just diagnosed a week ago and don't meet with my doctor to discuss next steps until after the new year. He mentioned possibly doing "watch and wait" method and I've read a lot that backs that up, which really surprises me. Why would you wait until things got worse to pursue any type of treatment?
Waiting every 3 months for my blood levels to get back to normal.
Has Anyone Ever Been Diagnosed With Two Different Types Of Lymphoma?
June 2019 i was diagnosed with primary cns lymphoma.
This year in march i had an ovary removed. They found diffuse large b cell lymphoma. My oncologist wants to put me on the r-CHOP regimen with stem cell transplant to follow as maintainance therapy.
Anyone Have Experience With Rituximab Treatments
Hi friends, I recently had a bone marrow biopsy that showed that 37% of my bone marrow is being affected by the marginal zone lymphoma. My doctor has recommended 4 weekly treatments of Rituximab. I am curious to know from any of you who have had treatments with this what your experience has been and what I should expect. My understanding is that some people have allergic reactions to the treatment and that it also affects your immune system, but other than that I don’t know much. Thanks in… read more
Yes, no problem at all.
Does Anyone Else Feel Agitated?
I am not actively taking treatments right now but I just found a decent size lump on the inside of my left elbow. I am finding myself very agitated and little to no patience. That is totally opposite of my normal disposition. I am sooooo tired all the time. I don’t know what is normal because of my extremely stressful job or if this is part of the disease. I have follicular lymphoma.
I do too Terrie. It’s frustrating I know. Some days I’m more tired than there. Some days I feel nauseas but that’s nerves. I worry. Now I have a UTI where the heck did they come from 🙄.
74 Year Old Male. Diagnosed NHL Non Aggressive Mode. Not Many Frequent Symptoms.
At this point, I’ve decided not to start treatment
I have lost two friends in the last year to other types of cancer
They both went through chemotherapy and radiation treatments.
They continued telling me that the chemotherapy had caused many uncomfortable side effects and weren’t sure whether it was causing more painful issues than it was worth.
They both have passed in the last three months.
They both expressed to me that their quality of life, and getting some extra months, wasn’t really… read more
Has Anyone Been Put On The Wait And See Program Without Being Given An Official Diagnosis?
I have had swollen lymphnodes in my groin for about 15 months, my right armpit for about 4 months, and in my neck which the hema-oncologist discovered about almost 6 weeks ago. Night sweats have been occurring for about 15 months now, however they used to happen randomly here and there (few times a month) they are now every time I fall asleep. I now wake up 2-3 times a night to change because I am drenched and end up shivering for 30-40 min afterwards. I have had terrible joint/body pain for the… read more
My SLL/CLL was discovered through a mammogram which showed my armpit lymph nodes were swollen. Then I was sent for a biopsy which diagnosed the SLL/CLL.
Any DLBCL Folks On Here?
I’d like any and all advice, information and stories on diffuse large B cell lymphoma!
😇🙌🏻🙏🏻😊
Rituxamab Maintenance Therapy - Do Or Don't???
Hello Group - My name is Pam, 63 year old retired nurse. I just finished 6 months of Bendemustine/Rituxamab (BR) treatment for follicular lymphoma stage 4. The majority of providers are recommending a 2 year - every 2 month infusion of Rituxamab. I've also heard some LLS physicians state they no longer use this protocol due to weakening of the immune system - with COVID and all still active would increase our chances of getting it. Anyone have advise/opinion on this? I personally don't feel… read more
Stage 3 Follicular Non-Hodgkins Lymphoma..and Wondering Why No Treatment Has Been Recommended...
I am reading here that a lot of people have been receiving treatment with a lesser stage (I & 2) than I have. (I have Stage 3 *follicular* non-hodgkins lymphoma). I have been on watch and wait since my diagnosis in April 2019. I'm wondering why the oncologist is holding off on any treatment. Why wait until it gets bad? Has anyone gotten treatment while being asymptomatic? If you do have symptoms, at what point did your Dr decide to start treatment?
As long as you have your blood tests every 6 months, and it looks good. There is no need for you to worry.