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Stage 3 Follicular Non-Hodgkins Lymphoma..and Wondering Why No Treatment Has Been Recommended...

Stage 3 Follicular Non-Hodgkins Lymphoma..and Wondering Why No Treatment Has Been Recommended...

I am reading here that a lot of people have been receiving treatment with a lesser stage (I & 2) than I have. (I have Stage 3 *follicular* non-hodgkins lymphoma). I have been on watch and wait since my diagnosis in April 2019. I'm wondering why the oncologist is holding off on any treatment. Why wait until it gets bad? Has anyone gotten treatment while being asymptomatic? If you do have symptoms, at what point did your Dr decide to start treatment?

A MyLymphomaTeam Member said:

Thank you so much for all your replies. 🌻. Definitely God sent.🙏. Be blessed, be strong💐. Needed to read this, like now🤕. What a coincidence, am at Onco. Clinic waiting to be called, scheduling 8… read more

posted over 1 year ago

Has Anyone Been Put On The Wait And See Program Without Being Given An Official Diagnosis?

Has Anyone Been Put On The Wait And See Program Without Being Given An Official Diagnosis?

I have had swollen lymphnodes in my groin for about 15 months, my right armpit for about 4 months, and in my neck which the hema-oncologist discovered about almost 6 weeks ago. Night sweats have been occurring for about 15 months now, however they used to happen randomly here and there (few times a month) they are now every time I fall asleep. I now wake up 2-3 times a night to change because I am drenched and end up shivering for 30-40 min afterwards. I have had terrible joint/body pain for the… read more

A MyLymphomaTeam Member said:

Yes back24 years ago because it was slow cancer growth .instead of fast growing you had
Time and did not have to start treatments yet
That also means
Because it was slow
U didn't need… read more

posted 5 months ago

Watch And See

Watch And See

I've been on watch and see approach for 9 months.3a follicular lymphoma. I go to a new oncologiston Aug 19. Still no symptoms. I feel good right now. Should i wait to get treatments until i have symptoms

A MyLymphomaTeam Member said:

Good move. Second opinion. I did it snd found a more comfortable setting and approach to treatment and had radiation immediately

posted 9 months ago

Eye Redness And Discomfort From Rituxan?

Eye Redness And Discomfort From Rituxan?

GM everyone! I have been treating with Rituxan on and off for 5 yrs now, (along with bendamustine). I just finished a treatment for 2 yrs of Rituxan only - every other month. My eyes are always red and angry looking. I cannot find comfort. I am seeing an ophthalmic doctor who specializes in the outer part of the eye, as well as one who specializes with the back of the eye. He has me on Restasis for dry eye along with other drops including a prescription allergy drop. Nothing seems to… read more

A MyLymphomaTeam Member said:

I take Xyzol and Singular for allergies. Plus Restasis, prescription allergy eye drops, and OTC eye drops recommended by the ophthalmologist. Could hardly open my eyes this morning.

I’m not… read more

posted 13 days ago

I Have Mantle T Lymphoma

I Have Mantle T Lymphoma

4 cycle of chemo Pet scan came back clean I'm in remission Still have to do 2 more cycles Then was told treatment every 2 month but not chemo Also was recommend stem cell trans plant Does anyone know if the stem cell trans plant is a must or is there other treatment to stay in remission

A MyLymphomaTeam Member said:

Me too and rechop
Stemcell transplant
Spent all most a mouth in the hospital. Because
Of immunity problems.

posted about 1 month ago

Does The Neuropathy Ever Get Better?

Does The Neuropathy Ever Get Better?

A MyLymphomaTeam Member said:

I'd like to hear from someone who is being treated with rituximab/bendamustine and hear about side effects you are experiencing. I had my first treatment a few weeks ago.

posted 2 months ago

Anyone With Gray Zone Lymphoma?

Anyone With Gray Zone Lymphoma?

I searched and couldn't find this category. I have what tests as both Hodgkin's and Non-Hodgkin's Lymphoma. I visited MD Anderson for a proper diagnosis and was given the diagnosis of Gray Zone. I would love to find others with this rare blood cancer.

A MyLymphomaTeam Member said:

Some are saying I should get shingles shot before starting treatment. On watch & wait now. Any takes on this?

posted 7 months ago

Excessive Facial Hair HELP!

Excessive Facial Hair HELP!

It’s been 3 months since my last treatment. My hair has been growing just fine and I haven’t taken any supplements. With that said, I just noticed A LOT of facial hair, especially on the sides. It looks like my sideburns has extended! Lol. Has anyone experienced this?? Is it temporary?? Kind of freakin out here!!!
Thank you so much in advance! :)

A MyLymphomaTeam Member said:

Thanks for the huge, I hope you were able to get the answers you need. I do know that after I lost my hair from chemotherapy, my hair came back very curly. I have always had naturally curly hair, but… read more

posted 3 months ago

Flu Vaccines Necessary For Surrounding Family & Friends?

Flu Vaccines Necessary For Surrounding Family & Friends?

I've heard anyone in my immediate family or friends must receive the flu vaccine to be around me safely.
Is this true? My son & his family do not receive this vaccine by choice & Should I avoid contact even though I have had the flu shot?

A MyLymphomaTeam Member said:

I had flu shot. I think it’s a good idea. Do not need leukemia PLUS the flu

posted about 1 year ago

Does Anyone Else Feel Agitated?

Does Anyone Else Feel Agitated?

I am not actively taking treatments right now but I just found a decent size lump on the inside of my left elbow. I am finding myself very agitated and little to no patience. That is totally opposite of my normal disposition. I am sooooo tired all the time. I don’t know what is normal because of my extremely stressful job or if this is part of the disease. I have follicular lymphoma.

A MyLymphomaTeam Member said:

I’ve never gotten angry about it. I’m just agitated. Like, things get on my nerves that probably shouldn’t bother me.

posted 11 months ago
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