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Stage 3 Follicular Non-Hodgkins Lymphoma..and Wondering Why No Treatment Has Been Recommended...

Stage 3 Follicular Non-Hodgkins Lymphoma..and Wondering Why No Treatment Has Been Recommended...

I am reading here that a lot of people have been receiving treatment with a lesser stage (I & 2) than I have. (I have Stage 3 *follicular* non-hodgkins lymphoma). I have been on watch and wait since my diagnosis in April 2019. I'm wondering why the oncologist is holding off on any treatment. Why wait until it gets bad? Has anyone gotten treatment while being asymptomatic? If you do have symptoms, at what point did your Dr decide to start treatment?

posted November 13, 2019
A MyLymphomaTeam Member

Thank you so much for all your replies. 🌻. Definitely God sent.🙏. Be blessed, be strong💐. Needed to read this, like now🤕. What a coincidence, am at Onco. Clinic waiting to be called, scheduling 8… read more

posted August 27, 2020

How Do You Deal With Depression?

How Do You Deal With Depression?

Today is yet another good 👍☺️ day. But I'm thinking about depression. And I'm going to answer my own question and look forward to hearing how YOU deal with depression. There's been several times that I suffered severe depression. Having cancer is certainly reason for depression. I was diagnosed years ago with situational depression. I also have PTSD, caused by things that happened in the fifties and seventies. Sometimes psychiatric help is required, or some form of therapy, or medication. Even… read more

posted July 6, 2022
A MyLymphomaTeam Member

DO SOMETHING PHYSICAL
Force myself to go hangliding, body surfing, have sex, garden, get on my horse, go for a walk, yoga. Talk about it honestly.Remember that life is an impossible unlikely miracle.… read more

posted November 26, 2022

Does Anyone Else Feel Agitated?

Does Anyone Else Feel Agitated?

I am not actively taking treatments right now but I just found a decent size lump on the inside of my left elbow. I am finding myself very agitated and little to no patience. That is totally opposite of my normal disposition. I am sooooo tired all the time. I don’t know what is normal because of my extremely stressful job or if this is part of the disease. I have follicular lymphoma.

posted September 8, 2020 (edited)
A MyLymphomaTeam Member

Take care! You are doing a lot. Working and getting a degree is a balancing act. I’m attending Capella. 🍀

posted 3 days ago

What Do You Look Forward To Accomplishing In 2023?

What Do You Look Forward To Accomplishing In 2023?

posted January 25
A MyLymphomaTeam Member

Eating better, maybe travel more

posted 2 days ago

Just Went To Oncologist

Just Went To Oncologist

I don't know what is the matter with me. I am still fatigued. Sunday I was up and about, happy, etc. Monday I spent the entire day in bed....so fatigued. Informed my oncologist. He told me it has nothing to do with my chemotherapy because my last dose was 8 months ago. Said that my labs look great, etc.

Can someone please tell me if I am imaging this? I love to work and be active.

Thank you.

posted August 17, 2022
A MyLymphomaTeam Member

Good job Joseph2! How much of the mushrooms do y ou take? ANd how much B12?

posted December 7, 2022

Has Anyone Been Put On The Wait And See Program Without Being Given An Official Diagnosis?

Has Anyone Been Put On The Wait And See Program Without Being Given An Official Diagnosis?

I have had swollen lymphnodes in my groin for about 15 months, my right armpit for about 4 months, and in my neck which the hema-oncologist discovered about almost 6 weeks ago. Night sweats have been occurring for about 15 months now, however they used to happen randomly here and there (few times a month) they are now every time I fall asleep. I now wake up 2-3 times a night to change because I am drenched and end up shivering for 30-40 min afterwards. I have had terrible joint/body pain for the… read more

posted May 24, 2020
A MyLymphomaTeam Member

I would get a second opinion and request a core needle biopsy.

posted December 19, 2022

Watch And See

Watch And See

I've been on watch and see approach for 9 months.3a follicular lymphoma. I go to a new oncologiston Aug 19. Still no symptoms. I feel good right now. Should i wait to get treatments until i have symptoms

posted July 29, 2019
A MyLymphomaTeam Member

Good move. Second opinion. I did it snd found a more comfortable setting and approach to treatment and had radiation immediately

posted March 1, 2021

What Advice Do You Have For Others About Managing Fatigue?

What Advice Do You Have For Others About Managing Fatigue?

posted May 5, 2022
A MyLymphomaTeam Member

I walked two miles on Thursday and did nothing on Friday. I can relate.

posted November 26, 2022

How Does One Deal With The "wait And Watch" Senario, And How Often Do You Get Scans?

How Does One Deal With The "wait And Watch" Senario, And How Often Do You Get Scans?

I was diagnosed with stage 3 Follicular lymphoma in Oct 2020. Waited 3 months until Feb 2021 for another scan. Again told to wait and see. Not much growth in nodes. I also have an enlarged lingual tonsil that does seem to concern anyone.

posted February 9, 2021
A MyLymphomaTeam Member

Thanks for your encouragement. Joe

posted January 26

How Do You Deal With Fatigue?

How Do You Deal With Fatigue?

A lot of people with various forms of cancer suffer from fatigue. Is there something you do to combat it? Vitamins, naps, light exercise, etc. ?

posted January 26
A MyLymphomaTeam Member

I really never had a problem with fatigue since being diagnosed with NHL. Even after chemo, I just go on with my daily routine and I am not walking as of yet. LOL!!! I cook, do laundry, vacuum and… read more

posted 5 days ago
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