I am reading here that a lot of people have been receiving treatment with a lesser stage (I & 2) than I have. (I have Stage 3 *follicular* non-hodgkins lymphoma). I have been on watch and wait since my diagnosis in April 2019. I'm wondering why the oncologist is holding off on any treatment. Why wait until it gets bad? Has anyone gotten treatment while being asymptomatic? If you do have symptoms, at what point did your Dr decide to start treatment?
I have had swollen lymphnodes in my groin for about 15 months, my right armpit for about 4 months, and in my neck which the hema-oncologist discovered about almost 6 weeks ago. Night sweats have been occurring for about 15 months now, however they used to happen randomly here and there (few times a month) they are now every time I fall asleep. I now wake up 2-3 times a night to change because I am drenched and end up shivering for 30-40 min afterwards. I have had terrible joint/body pain for the… read more
I've been on watch and see approach for 9 months.3a follicular lymphoma. I go to a new oncologiston Aug 19. Still no symptoms. I feel good right now. Should i wait to get treatments until i have symptoms
GM everyone! I have been treating with Rituxan on and off for 5 yrs now, (along with bendamustine). I just finished a treatment for 2 yrs of Rituxan only - every other month. My eyes are always red and angry looking. I cannot find comfort. I am seeing an ophthalmic doctor who specializes in the outer part of the eye, as well as one who specializes with the back of the eye. He has me on Restasis for dry eye along with other drops including a prescription allergy drop. Nothing seems to… read more
4 cycle of chemo Pet scan came back clean I'm in remission Still have to do 2 more cycles Then was told treatment every 2 month but not chemo Also was recommend stem cell trans plant Does anyone know if the stem cell trans plant is a must or is there other treatment to stay in remission
I searched and couldn't find this category. I have what tests as both Hodgkin's and Non-Hodgkin's Lymphoma. I visited MD Anderson for a proper diagnosis and was given the diagnosis of Gray Zone. I would love to find others with this rare blood cancer.
It’s been 3 months since my last treatment. My hair has been growing just fine and I haven’t taken any supplements. With that said, I just noticed A LOT of facial hair, especially on the sides. It looks like my sideburns has extended! Lol. Has anyone experienced this?? Is it temporary?? Kind of freakin out here!!!
Thank you so much in advance! :)
I've heard anyone in my immediate family or friends must receive the flu vaccine to be around me safely.
Is this true? My son & his family do not receive this vaccine by choice & Should I avoid contact even though I have had the flu shot?
I am not actively taking treatments right now but I just found a decent size lump on the inside of my left elbow. I am finding myself very agitated and little to no patience. That is totally opposite of my normal disposition. I am sooooo tired all the time. I don’t know what is normal because of my extremely stressful job or if this is part of the disease. I have follicular lymphoma.
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