I am reading here that a lot of people have been receiving treatment with a lesser stage (I & 2) than I have. (I have Stage 3 *follicular* non-hodgkins lymphoma). I have been on watch and wait since my diagnosis in April 2019. I'm wondering why the oncologist is holding off on any treatment. Why wait until it gets bad? Has anyone gotten treatment while being asymptomatic? If you do have symptoms, at what point did your Dr decide to start treatment?
Thank you so much for all your replies. 🌻. Definitely God sent.🙏. Be blessed, be strong💐. Needed to read this, like now🤕. What a coincidence, am at Onco. Clinic waiting to be called, scheduling 8… read more
Today is yet another good 👍☺️ day. But I'm thinking about depression. And I'm going to answer my own question and look forward to hearing how YOU deal with depression. There's been several times that I suffered severe depression. Having cancer is certainly reason for depression. I was diagnosed years ago with situational depression. I also have PTSD, caused by things that happened in the fifties and seventies. Sometimes psychiatric help is required, or some form of therapy, or medication. Even… read more
DO SOMETHING PHYSICAL
Force myself to go hangliding, body surfing, have sex, garden, get on my horse, go for a walk, yoga. Talk about it honestly.Remember that life is an impossible unlikely miracle.… read more
I am not actively taking treatments right now but I just found a decent size lump on the inside of my left elbow. I am finding myself very agitated and little to no patience. That is totally opposite of my normal disposition. I am sooooo tired all the time. I don’t know what is normal because of my extremely stressful job or if this is part of the disease. I have follicular lymphoma.
Take care! You are doing a lot. Working and getting a degree is a balancing act. I’m attending Capella. 🍀
Eating better, maybe travel more
I don't know what is the matter with me. I am still fatigued. Sunday I was up and about, happy, etc. Monday I spent the entire day in bed....so fatigued. Informed my oncologist. He told me it has nothing to do with my chemotherapy because my last dose was 8 months ago. Said that my labs look great, etc.
Can someone please tell me if I am imaging this? I love to work and be active.
Good job Joseph2! How much of the mushrooms do y ou take? ANd how much B12?
I have had swollen lymphnodes in my groin for about 15 months, my right armpit for about 4 months, and in my neck which the hema-oncologist discovered about almost 6 weeks ago. Night sweats have been occurring for about 15 months now, however they used to happen randomly here and there (few times a month) they are now every time I fall asleep. I now wake up 2-3 times a night to change because I am drenched and end up shivering for 30-40 min afterwards. I have had terrible joint/body pain for the… read more
I would get a second opinion and request a core needle biopsy.
I've been on watch and see approach for 9 months.3a follicular lymphoma. I go to a new oncologiston Aug 19. Still no symptoms. I feel good right now. Should i wait to get treatments until i have symptoms
Good move. Second opinion. I did it snd found a more comfortable setting and approach to treatment and had radiation immediately
I walked two miles on Thursday and did nothing on Friday. I can relate.
I was diagnosed with stage 3 Follicular lymphoma in Oct 2020. Waited 3 months until Feb 2021 for another scan. Again told to wait and see. Not much growth in nodes. I also have an enlarged lingual tonsil that does seem to concern anyone.
Thanks for your encouragement. Joe
A lot of people with various forms of cancer suffer from fatigue. Is there something you do to combat it? Vitamins, naps, light exercise, etc. ?
I really never had a problem with fatigue since being diagnosed with NHL. Even after chemo, I just go on with my daily routine and I am not walking as of yet. LOL!!! I cook, do laundry, vacuum and… read more
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