Questions & Answers

Hello Group - My name is Pam, 63 year old retired nurse. I just finished 6 months of Bendemustine/Rituxamab (BR) treatment for follicular lymphoma stage 4. The majority of providers are recommending a 2 year - every 2 month infusion of Rituxamab. I've also heard some LLS physicians state they no longer use this protocol due to weakening of the immune system - with COVID and all still active would increase our chances of getting it. Anyone have advise/opinion on this? I personally don't feel… read more

Today is yet another good 👍☺️ day. But I'm thinking about depression. And I'm going to answer my own question and look forward to hearing how YOU deal with depression. There's been several times that I suffered severe depression. Having cancer is certainly reason for depression. I was diagnosed years ago with situational depression. I also have PTSD, caused by things that happened in the fifties and seventies. Sometimes psychiatric help is required, or some form of therapy, or medication. Even… read more

When I shaved my head during chemo I had a friend draw a smiley face on the top of my head. I used to tip my hat and bow when I met someone. 😁

Two plus years of difficulty breathing and multiple Urgent Care/ER Md’s telling me all labs and heart look great! “Btw heres some muscle relaxers.” Monday this past week I hyperventilated in my MDs office. She sent for a stat CT of chest and there are multiple lymph nodes that are “very large”. On tues they did an abdominal CT they had to get special approval because of too much contrast under 24 hours. It came back clear and more labs/ekg, also clear. Worked me into a Pulmonologist Weds and he… read more

I had DLBCL and have been in remission for more than 2 yrs. I had RCHOP chemo. I still have joint and muscle pain especially in the mornings. Does anyone else still have this? Thank you, Kelly

Chemotherapy? Prayer? Your spouse? Diet? Church, masjid, temple, synagogue? Exercise? What's helped you most as an individual dealing with cancer?