What's One Thing About Lymphoma You Feel Isn't Talked About Enough? | MyLymphomaTeam

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1532 questions
What's One Thing About Lymphoma You Feel Isn't Talked About Enough?
A MyLymphomaTeam Member asked a question đź’­
A MyLymphomaTeam Member

Severe fatigue and natural supplements.

posted July 29, 2023
Mood Swings With Later Stage Of Recovery
A MyLymphomaTeam Member asked a question đź’­

I know this question may not be so relevant for people in the midst of navigating through the challenges of illness. I was diagnosed in Feb 2021, finished treatment in May. The following 14 months or so were full of battles with fatigue, but general acceptance of illness with the intent of navigating as well as possible during recovery, and relatively good/stable mental health. The last 2-3 months I have finally seen significant change regarding physical abilities and stamina...cognitive… read more

A MyLymphomaTeam Member

Thanks for your response, Bob3. I have since come to the conclusion that the hard part is the forced, rapid change. It's one thing to grow in to changes over time, but it's another to have them occur… read more

posted February 10, 2023
How Does One Deal With The "wait And Watch" Senario, And How Often Do You Get Scans?
A MyLymphomaTeam Member asked a question đź’­

I was diagnosed with stage 3 Follicular lymphoma in Oct 2020. Waited 3 months until Feb 2021 for another scan. Again told to wait and see. Not much growth in nodes. I also have an enlarged lingual tonsil that does seem to concern anyone.

A MyLymphomaTeam Member

I feel the same way.

posted August 9, 2023
Maintenance Program With [[treatment:Rituxan Hycela:5c648bd265df61506ecba9a7]]
A MyLymphomaTeam Member asked a question đź’­

I was diagnosed with Follicular Non Hudgkin's Lymphoma last year in November. Had 4 Month Chemo with Bendeka. Now in remission, and was recommended to do a 2 year maintenance treatment with [[treatment:Rituxan Hycela:5c648bd265df61506ecba9a7]]. Anybody else has the same treatment? Is it standard to do it after chemo? What are the long term side effects? I feel fine, but still worry about this
Anybody completed the 2 year? Was any recurrence of the cancer shortly after finishing treatment.… read more

A MyLymphomaTeam Member

I tried the maintenance once and mine recurred while on it. I do much better just getting a round of rituxan when it recurs.

posted September 27, 2023
Just Finished 2nd Round Of: BR Bendamustine And RiTUXimab (RUXIENCE) Any Side Effects That Anyone Has Encountered?
A MyLymphomaTeam Member asked a question đź’­
A MyLymphomaTeam Member

Thank goodness!

posted March 6
Did Anyone Drive Themselves Back And Forth From Chemo?
A MyLymphomaTeam Member asked a question đź’­

Hubby thinks he can independently go to his chemo treatments.He will be having Bendamustine and rituxan.

A MyLymphomaTeam Member

First one no. Then the rest yes with no problem at all, but last one hubs came to celebrate. It was on new years eve 2019
Best wishes

posted February 5
I Was Diagnosed With Waldenstrom's Lymphoma Last May, But I Am Not A Candidate For Treatment. Does Anyone Have Waldenstrom Lymphoma?
A MyLymphomaTeam Member asked a question đź’­
A MyLymphomaTeam Member

Diagnosed in 3/2023. Had
4 rounds of chemo infusions
Counts are staying in normal range. After effects are keeping me down - foot/knee issue (now resolved), aching hips n lower back, currently have… read more

posted February 28
I Wish To Usk.limphoma Is Like Other Cancers.cos I Talk With A Nurse And She Told Me Limphoma Is Not Like Other Cancers.
A MyLymphomaTeam Member asked a question đź’­
A MyLymphomaTeam Member
posted February 27
Okay Buddies- I Want Some Advice. If You Have Done A Course Of Treatment With Rituximab (or Similar Monoclonal Antibody) What Was It Like??
A MyLymphomaTeam Member asked a question đź’­

I have been diagnosed with Splenic Marginal Zone Lymphoma in March. I’m doing “watch and wait” but I think I might go for the treatment because all I do all night is sweat and I get every virus that comes near me. I want to feel better. Is it work it?

A MyLymphomaTeam Member

I had four weekly Rituxan infusions in August that killed all B-affected cancer cells and all other B cells. I had no reaction except initial sleepiness because of the Benedryl they include in the IV… read more

posted January 20
Anybody Have Swollen Nodes In Groin And Auxiliary Nodes
A MyLymphomaTeam Member asked a question đź’­

My auxiliary nodes swole afte Covid booster. I had two ultra sounds but after two were shown to be growing, biopsy ordered. Biopsy results low grade lymphoma leukemia. Doctor referred me to Hematology. CDC showed high WBC but said smudge cells present. Has anybody had this and if so does the smudge cells mean my low grade lymphoma is CLL? I’m devastated.

A MyLymphomaTeam Member

My primary care Dr kept tell ih ng me that after my (3) CoVid Boosters the swelling in the armpit area "is nothing." 🙄 They lasted 3-4+ weeks, happened on both arms where covid inj was given.

You… read more

posted May 20, 2023
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