Questions & Answers

I have been diagnosed with Splenic Marginal Zone Lymphoma in March. I’m doing “watch and wait” but I think I might go for the treatment because all I do all night is sweat and I get every virus that comes near me. I want to feel better. Is it work it?

Any thoughts on whether those of us with lymphoma should get the shingles vaccine? My oncologist today told me I should get it. I've been pretty die-hard about not introducing toxins into my body....and I'm thinking that is another one. But he said getting shingles would really be hard on my body with the lymphoma.

My auxiliary nodes swole afte Covid booster. I had two ultra sounds but after two were shown to be growing, biopsy ordered. Biopsy results low grade lymphoma leukemia. Doctor referred me to Hematology. CDC showed high WBC but said smudge cells present. Has anybody had this and if so does the smudge cells mean my low grade lymphoma is CLL? I’m devastated.

I don't know what is the matter with me. I am still fatigued. Sunday I was up and about, happy, etc. Monday I spent the entire day in bed....so fatigued. Informed my oncologist. He told me it has nothing to do with my chemotherapy because my last dose was 8 months ago. Said that my labs look great, etc.

Can someone please tell me if I am imaging this? I love to work and be active.

Thank you.

Do you use things spiritual in dealing with your cancer?

If so what do you use? Prayer? Meditation? Certain books? Church, synagogue or mosque? Music? Poetry? I ask because I'm always looking for useful spiritual tools. Personally I use 12 step material and the book A Course In Miracles along with prayer. And there are certain organizations that I've found useful, that send out free booklets and magazines. But I'm always looking for useful things to add to my repertoire.

I understand it's rare. I have a group on Facebook but looking for others with SMZL.