Anyone go to Sloan Kettering in Westchester New Your and if so who’s your doctor?

Is there anyone out there who has CLL and on the wait and watch program or have just started on an oral treatment?

Looking for others with same diagnosis

I would like to compare treatments with patience also dealing with double or triple hit diffuse large b-cell lymphoma, Non-Hodgkins. I'm new here and would appreciate having those conversations. Thank you!

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A MyLymphomaTeam Member said:

Jill that was my dx. I'm 4 years 9 months out from SCT.

posted about 24 hours ago  

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Nodal marginal zone lymphoma

Would like to contact others with this lymphoma

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A MyLymphomaTeam Member said:

Hope your remission lasts, and that you feel better soon

posted about 1 month ago  

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I have NHL. I took Revlimid, lost most of my hair just on the top of my head.

I have Non-Hodgkin’s Follicular Lymphoma. It has reoccurred three time now. The last treatment they gave me Revlimid, Rituximab, and Allopurinol. It caused me to loose most of my hair just on the top of my head. Has anyone else experienced this and will they hair come back once I stop?

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A MyLymphomaTeam Member said:

I lost my hair by my 3rd cycle of treatment. It's been 10 months since my last treatment and my hair is almost to the bottom of my neck. However my hair… read more

posted 2 months ago  

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Grade 3 follicular lymphoma is watching a regular treatment

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A MyLymphomaTeam Member said:

I have Lymphoplasmacytic Lymphoma. Is anyone near Madison, WI?

posted 4 months ago  

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Hair Growth After Chemotherapy completed

My 19 year old daughter has Hodgkin's Lymphoma (subtype Nodular sclerosis Hodgkin lymphoma) and being treated with chemotherapy - AVBD regimen. She is just completing cycle 4 and has 2 more cycles to go. A major trauma for her has been the loss of her hair. It represents the whole cruelty and randomness of this disease and the absolute disruption of her life. A big question for her is what will her hair look like after it grows back. I want to reassure her, and I want to… read more

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A MyLymphomaTeam Member said:

I will assume that your hair will come back as everyone else I have talked to. First of all my wife was upset about loosing her hair when she was… read more

posted 23 days ago  

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I have Non Hodgkin's Lymphoma

I am in my 4th cycle of R-CHOP for non hodgkin's lymphoma. For the first week after treatment I have some nausea, and various side effects, but what I'm curious about is the low grade fever, aches and pains I experience for the following 2 weeks. Occasionally I feel like my heart is racing, but it always resolves itself. I'm wondering if anyone else experiences these side effects? My Doctors are very vague about the cause. My blood work is always good right before treatment, although… read more

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A MyLymphomaTeam Member said:

Towards the end of my infusions I had aches and pains that I’m pretty sure are caused by the Neulasta(?) shot. It should subside. Just when you start… read more

posted 3 months ago  

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Just found out I’m getting RICE chemo next week. Anyone had this to share details with me? Thanks!💚

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A MyLymphomaTeam Member said:

It’s an “auto” stem cell. Use my own.

posted 2 days ago  

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Reoccurrences Have you heard of R and R ?

Cancer port
Chemo
Our son needed every other month Rituxan or Rhituximab and it saved his life
Non Hodgkin's Lymphoma

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A MyLymphomaTeam Member said:

I'm getting Rituxan and Methotrexate every other week as an inpatient--a week on and a week off for primary CNS lymphoma (brain). This will be for 16… read more

posted 15 days ago  

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