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Tell Me More About Mantle Cell Lymphoma.
A MyLymphomaTeam Member asked a question πŸ’­
posted August 5
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I Can Not Keep My Neutrophil Numbers Up.
A MyLymphomaTeam Member asked a question πŸ’­

We stopped my treatments and still my numbers will not go high enough. When the numbers go up they tend to fall the next week. I can't see what I am doing different from week to week.

posted July 15
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My White Blood Cell Count Is 200,200 And Have Not Had Had Any Treatments As Of Now. My Doctor Says It Is Time And Would Like To Kn
A MyLymphomaTeam Member asked a question πŸ’­

Other blood work is close to normal and only slight signs of cll.

posted May 13
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Anyone Got Any Experience Of Polivy Plus Bendamustine And Rituximab For Relapsed DLBCL (DIFFUSE LARGE B Cell Lymphoma) ?
A MyLymphomaTeam Member asked a question πŸ’­

Looking it up on the internet, it doesnt seem very effective, and it looks pretty toxic, so I would love to hear from anyone who has had any experience of this drug, or any alternative treatment, for double-hit lymphoma.

posted April 3
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Dealing With Post Treatment Fatigue
A MyLymphomaTeam Member asked a question πŸ’­
posted April 1
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What Complimentary Medicines Have You Tried & Were They Successful In Relieving Symptoms.
A MyLymphomaTeam Member asked a question πŸ’­
posted March 4
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SF Bay Area People: Who Is Going To Do The LLS Big Climb Challenge In SF This April? Want To Build A Team?
A MyLymphomaTeam Member asked a question πŸ’­

This challenge is from the LLS and raises funds for patients to get financial assistance for the expensive medications and cover the patients copay. My first grant for 5 months paid the copay fully but has run out and it’s been hard to get more $$ for my BTK blocker ($3,550 per 1 month of the pills is my copay) after my Medicare pays the other 2/3 of the cost. It means that after tomorrow, I run out of this main medication while still locating new financing. So I’m gathering pledges to climb the… read more

posted February 25
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Merry Christmas
A MyLymphomaTeam Member asked a question πŸ’­
posted December 24, 2022
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How Long Do People On Methotrexate Stay In Remission?
A MyLymphomaTeam Member asked a question πŸ’­

I was diagnosed with stage 1 b CTCL Mycosis Fungoides Nov. 2017, started methotrexate Dec. 2018, and am in remission since early 2023. They say you never really get rid of this type of lymphoma; you'll die with it, not from it. So, on average, how long do people stay in remission?

posted 15 hours ago
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RCEOP (not RCHOP)
A MyLymphomaTeam Member asked a question πŸ’­

Has anyone any experience of RCEOP and any advice or information please? Dad can’t have RCHOP due to pre existing heart failure. Thanks x

posted 18 hours ago
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