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Lymphoma

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Real members of MyLymphomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
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Chemotherapy

Chemotherapy

Can anyone please explain what the chemotherapy class is about so I know what to expect I kinda get the gist of what I’ll be going through but still scared, I know some about the port from other people having it. But I know not the same.. Be honest please

A MyLymphomaTeam Member said:

thanks Joseph good to know got port in yesterday slept on couch instead of my comfortable bed upstairs, since I have more fluid building up again it's hard to breath without at least 5 pillows so I… read more

posted about 1 month ago

Fired Or Let Go

Fired Or Let Go

This is my anxiety getting to me ....I live in Indiana an work for the same company 21yrs...I was diagnosed in 2016 an several stays in hospital....my employer has always treated us well ....but my fear is being let go someday because of my health....I'm sure like any company an employer could let a person go not related to a health issue.....

A MyLymphomaTeam Member said:

Thankyou

posted 2 months ago

Does Anyone Know What The Prognosis Is For B-Cell Follicular Indolent Non Hodgkin Lymphoma Is?

Does Anyone Know What The Prognosis Is For B-Cell Follicular Indolent Non Hodgkin Lymphoma Is?

I was diagnosed very young which is not usually the case. I was in remission for 10 years until recently. I have been going through chemotherapy and radiation for the last four years and it keeps coming back. I recently read that the mortality rate is usually 10 years from the date of diagnosis. I’m going on 16 years and now it’s getting more aggressive. I have one more treatment since April. I’m just curious to find out what I should expect so I can make the most of the time I have left?

A MyLymphomaTeam Member said:

There's so many treatments. Ur not going anywhere!

posted 2 months ago

Indolent Mantle Cell Lymphoma Stage IVA

Indolent Mantle Cell Lymphoma Stage IVA

Just officially diagnosed with Indolent mantle cell lymphoma stage IVA.
I Have been on watch and wait for 8 years. No symptoms or treatment. Anyone know how long this disease could stay this stable? It is in my bone marrow. Low grade 2%. Hoping for the best!!!

A MyLymphomaTeam Member said:

Any time one of us can help another is a plus for all cancer patients and survivors im one of many together we speak
In unison to offer advice
And some one whose been there and still continues… read more

posted about 1 month ago

Does Anyone Have An Ommaya Reservoir For Intrathecal Chemo?

Does Anyone Have An Ommaya Reservoir For Intrathecal Chemo?

I had an Ommaya shunt placed last year in my brain for chemo. Does anyone have a brain shunt for chemo? If so how has it affected your memory, recall, etc?

I Have Mantle T Lymphoma

I Have Mantle T Lymphoma

4 cycle of chemo Pet scan came back clean I'm in remission Still have to do 2 more cycles Then was told treatment every 2 month but not chemo Also was recommend stem cell trans plant Does anyone know if the stem cell trans plant is a must or is there other treatment to stay in remission

A MyLymphomaTeam Member said:

Me too and rechop
Stemcell transplant
Spent all most a mouth in the hospital. Because
Of immunity problems.

posted about 1 month ago

My Spouse Is In The Early Diagnostic Stage (MRI, CT, Ultrasound, Biopsy) With Major Rotator Cuff Surgery Planned. Is Surgery Safe?

My Spouse Is In The Early Diagnostic Stage (MRI, CT, Ultrasound, Biopsy) With Major Rotator Cuff Surgery Planned. Is Surgery Safe?

Enlarged lymph nodes showed up & the orthopedic surgeon sent my spouse to the primary for follow-up. Major rotator cuff/reconstruction surgery with muscle/tendon grafts is scheduled in 3 weeks. Spouse is worried that the pending diagnosis will mean no surgery. Does a lymphoma diagnosis mean that surgeries like this are not done?

A MyLymphomaTeam Member said:

TJW,
I think it would be up to your Oncologist. Kelly

posted 3 months ago

I Need To Change From R-CHOP To DA-EPOCH-R. Anybody With Experience On What This Is Like Compared To R-CHOP?

I Need To Change From R-CHOP To DA-EPOCH-R. Anybody With Experience On What This Is Like Compared To R-CHOP?

I am told this requires 4 days in hospital per cycle. I've been walking to keep up my strength and am concerned about losing strength with 4 days in bed. Is walking possible? Even in the hallways?

A MyLymphomaTeam Member said:

I completed the regimen in December 2108. I was sixty-one at the time. While you are being treated, you are able to walk throughout the hospital, as well as outside weather permitting. I was… read more

posted 3 months ago

Herbalist

Herbalist

Has anyone here sought out an herbalist for their lymphoma? Also has anyone heard of the herb Red Root which is a tincture?

A MyLymphomaTeam Member said:

No i believe in medical doctors nothing else
Not holistic medicine
Or fads of any kind.

posted about 1 month ago
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