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Real members of MyLymphomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
987 questions
Rituxin Infusions
A MyLymphomaTeam Member asked a question 💭

I have recently diagnosed with Slow Growing and B Cell Lymphoma. I am scheduled for Rituxin Infusions soon. I am concerned about what Side effects to expect for example nausea and/other side effects.

A MyLymphomaTeam Member

I just finished Rituxin with 4 infusions and had no reactions whatever. The only problem I had was to the Benadryl they gave me before the infusions in case I did have a reaction. They gave it to me… read more

posted 13 hours ago
Has Anyone Tried Medical Marijuana To Help Symptoms?
A MyLymphomaTeam Member asked a question 💭

I ask only because I have and I believe THC and CBD to be god sent!I've had limited side effects and find it helps to relax.😀

A MyLymphomaTeam Member

I have been trying it when it has gotten really bad and it is amazing with the nausea and pain. Also wonderfully relaxing when I need it. Of course it is stigmatized by some but for people like us… read more

posted 3 days ago (edited)
Is There Anything You Can Do To Help Keep Your White Cells Up After Treatment.
A MyLymphomaTeam Member asked a question 💭

My first round they were low. But this see ond round they were 0 and I'm in the hospital. I got Neulasta after treatment but I don't want to go through this every time.

A MyLymphomaTeam Member

Tamara, because of my white blood cells I have to get a shot, they take my blood and if all is good I get my infusion one week with no pod and 2nd week infusion with a pod. Isn’t life great!
Anna

posted 4 days ago
Have You Ever Used Humor In Dealing With Your Cancer?
A MyLymphomaTeam Member asked a question 💭

When I shaved my head during chemo I had a friend draw a smiley face on the top of my head. I used to tip my hat and bow when I met someone. 😁

A MyLymphomaTeam Member

Hang in there Bill, it took my Oncologist a while before I even had a precise diagnosis so I can relate !!!!!

posted 13 hours ago
Was Recently Diagnosed With DLBCL, Spleen Has Been Enlarged 7 Years . Dr Never Did Follow-up. Spleen Is Enormous And I Will Begin Chemo.
A MyLymphomaTeam Member asked a question 💭

We're there test that could have detected this sooner

A MyLymphomaTeam Member

My spleen is described as massive. Mine was discovered when I had a hernia repaired, then bloodwork revealed the lymphoma. If I had not had surgery I would never have known until………?

posted 12 hours ago
Having Extranodal Lymfoid Tissue In Two Places In The Body, Hoe Likely Is It A Form Of Benign Lymphoma?
A MyLymphomaTeam Member asked a question 💭

In july I had a breasttumor of 4-6 cm. I had An operation, pro diagnosi , The tumor is removed. Because a biopsy was non-conclusive for lymphoma. But the tests in the tumor again were non-conclusive. So I had a PEt-CT scan. And they found in my colo-rectal area the same tissue as in my breast. And again the pathological investigation of the biopsy was non-conclusive. Now I am having a second opinion in another hospital( Erasmus MC, Rotterdam) and waiting for results. The second PET-scan, three… read more

A MyLymphomaTeam Member

Wow, pretty complicated to me but you know that you have to find out what's up ! So sorry you're going thru this but I can relate a little. I was misdiagnosed with CLL for years until finally, I was… read more

posted 7 days ago
Does Everyone Tolerate Brentuximab Vedotin Well?
A MyLymphomaTeam Member asked a question 💭
Would You Change Providers?
A MyLymphomaTeam Member asked a question 💭

By providers I mean hospital system, affiliation, and oncologists.

-If during your cancer/chemo journey you were not successful with you results would you change providers if it meant redoing all your labs/tests and diagnosis? V.S. staying with the same provider where all your records are held.

A MyLymphomaTeam Member

YES I did

posted November 30
A Diffuse Aggressive B Cell Non Hodgkin’s Lymphoma Has Returned. RICE Treatment Is Plan A. Anyone Choose Another Treatment They Recommend?
A MyLymphomaTeam Member asked a question 💭
A MyLymphomaTeam Member

Thanks so much

posted November 28
Side Effects Of Rituxan
A MyLymphomaTeam Member asked a question 💭

I finished my first series of infusions of Rituxan two weeks ago and scheduled for another Cat scan 12/8. Wondering if any of you dear people could tell me what side effects you endured during several series of the same. Just diagnosed so forgive me if I don’t use the proper medical terms or ask stupid questions.(-:)

A MyLymphomaTeam Member

Retuxin and bundemustine was my chemo cocktail…made me very tired and that could be the benedryl they gave me…..didn’t lose all my hair! Thinned out a little, lost my eyebrows ( they still aren’t… read more

posted November 30
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