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Real members of MyLymphomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
1497 questions
I Am Nearly Two Years Out From Hodgkins Diagnosis.i Am Supposed To Finally Start Chemo Soon,but I Have To Wonder If Too Much Time Has Elapse
A MyLymphomaTeam Member asked a question 💭

I had a needle biopsy done in May of 2022,and had one delay after another getting treatment started I have switched to another oncologist but I am really lacking confidence at this point in time.I think the fact that family and friends have pulled away only compounds the problem

A MyLymphomaTeam Member

Thanks to all you good folks,you are all like a virtual family to me

posted 5 days ago
Is Periods Of Tiredness Normal After Chemo. How Long Does It Last
A MyLymphomaTeam Member asked a question 💭

B cell lymphoma on watch for 4 months

A MyLymphomaTeam Member

Going through the ups and downs of the unknown of being treated with cancer can have the equivalent of PTSD, don’t be afraid to consult with a therapist to exclude his .Add a grandchild toddler , no… read more

posted April 9
April 9, 2024 Tuesday Morning I Have CLL, The IMBRUVICA Has Stopped Working. I Am On The Third Week Of VENCLEXTA. This Drug Has Knocked.
A MyLymphomaTeam Member asked a question 💭

Again, I am on the third week of VENTREXTA. This Drug has knocked me down big time. What has been other's experience with this drug.

Super thanks, John Schweitzer

A MyLymphomaTeam Member

I’ve been on Venclexta 5 weeks now. Currently taking 400mg per day. No issues so far except the price.😀 Hang in there John.

posted April 11
All My Oncologists/Hematologists State That Is It Not Possible To Have Chronic Pain In The Lower Extremities With A Waldenstrom's Diagnosis.
A MyLymphomaTeam Member asked a question 💭

I do experience chronic pain in my lower extremities and feet. I do take pain medication but it is a battle to find doctors that are willing to prescribe a low dose

A MyLymphomaTeam Member

I ended up going to pain clinic, none of my doctors would prescribe anything for the pain. After the r chop getting out of bed became a major problem.I wish you health and peace of mind

posted April 9
Treated With Two Courses Of Rituxan. My Hair Is Falling Out By The Handful. My Doc Says It Isn't The Lymphoma Nor Rituxan. Anyone Else?
A MyLymphomaTeam Member asked a question 💭

I was diagnosed with cutaneous B cell lymphoma. Lesions occur mainly on my scalp and lower back.

A MyLymphomaTeam Member

I had thinning hair after treatment, but my dermatologist said it is growing back.

posted April 11
Bed Sores, Or Friction Sores From Socks, Waist Bands
A MyLymphomaTeam Member asked a question 💭

I'm in the middle of being tested and my doctors are leaning towards peripheral t cell lymphoma, I'm b symptomatic I get the night sweats and fever, flus and colds, fatigue and loss of appetite, weight loss and so forth...anyways my question is does anyone else gets these sore on their feet, legs, hips, lower back?

A MyLymphomaTeam Member

Glad to hear that you aren't experiencing any other symptoms. I'm not sure where ur located or if they spoke to you yet in regards to chemo but if they do give you an option for a port catheter ---It… read more

posted April 13
Questioning A Lymphocytosis Diagnosis Post Bone Marrow. Why Is This Happening?
A MyLymphomaTeam Member asked a question 💭

Stage 3A T Cell recurring lymphoma. Diagnosed April of 2021

I Have A Problem With Oversleeping. Lately I've Been Sleeping About 10 Hours A Night, And Today I Slept About 12 Hours, Getting Up At 2 PM!
A MyLymphomaTeam Member asked a question 💭

This would be less of a problem if I could get to sleep earlier but I just can't. I don't know if the problem is physical or psychological. I have MCL, diabetes, state 3 kidney failure, and long-term shingles pain, which may be the problem, but I can't be sure. Can anybody help me solve this?

A MyLymphomaTeam Member

Sounds like we have a lot in common. Fortunately I have not needed chemo, as I take Imbruvica in a caplet every night. I've actually always had kind of a problem with fatigue, even before I got all… read more

posted April 7
Can Monoclonal Antibodies Be Used On T-Cell Lymphomas Like AITL?
A MyLymphomaTeam Member asked a question 💭
What Is Average Time From Last Maintenance Treatment To Rerurn Of Follicular Lymphoma?
A MyLymphomaTeam Member asked a question 💭
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