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Lymphoma

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Real members of MyLymphomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
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What’s Next After R-Chop

What’s Next After R-Chop

My 3rd treatment for my B-Cell Lymphoma cancer was R-Chop. Nine months later it has spread and I’m wondering what is left to treat me with? Never considered life expectancy during my 11 years with B-Cell but now I’m concerned that I am going to be told I only have this amount of time left. Do I still have hope?

posted 27 days ago
A MyLymphomaTeam Member said:

I am 79 my oncologist after remission from Large B cell NHL I was stage 4 or 5 had radiation on 7c , 5 treatment , suggested I do 4 treatments of methotrexate in spinal infusion for prevention as he… read more

posted 5 days ago

T-cell Rearrangement

T-cell Rearrangement

After almost five years from DBCL (non Hodgkin’s) my latest scans and blood work appear fine except for low hemoglobin and the t-cell rearrangement test. The T-cell rearrangement test was positive for T cell lymphoma which I had at the time of my initial diagnosis. My oncologist feels it isn’t significant at this time since all scans are clear. I’m somewhat insecure about these results. Anyone have experience with this?

posted about 1 month ago
A MyLymphomaTeam Member said:

Benson
Hi! I have not heard about T Cell rearrangement. I just Googled it and read more about it. I know that my Oncologist said that if you can get to five yrs out from DLBCL your termed cured.… read more

posted about 1 month ago

What's The One Thing That's Helped You Most In Dealing With Cancer?

What's The One Thing That's Helped You Most In Dealing With Cancer?

Chemotherapy? Prayer? Your spouse? Diet? Church, masjid, temple, synagogue? Exercise? What's helped you most as an individual dealing with cancer?

posted about 1 month ago
A MyLymphomaTeam Member said:

My faith and many prayer warriors have supported me. The various health care team members are too numerous to name, but all contribute. Family have assisted me transition to live with my son and his… read more

posted 22 days ago

Just Went To Oncologist

Just Went To Oncologist

I don't know what is the matter with me. I am still fatigued. Sunday I was up and about, happy, etc. Monday I spent the entire day in bed....so fatigued. Informed my oncologist. He told me it has nothing to do with my chemotherapy because my last dose was 8 months ago. Said that my labs look great, etc.

Can someone please tell me if I am imaging this? I love to work and be active.

Thank you.

posted about 1 month ago
A MyLymphomaTeam Member said:

Please be vigilant and ask for a PET scan. My husband was feeling this way last fall with weight loss and fatigue. All his blood work looked great. He had a CT scan that looked great. His oncologist… read more

posted about 1 month ago

SLL Questions….

SLL Questions….

We are in Sacramento. My stepdad was diagnosed this week with SLL and inflamed lump nodes in his neck. They are just monitoring for now, which I suppose is good. Is there anyone here that is in Sacramento that has a good oncologist at Kaiser they like? Anyone with the same diagnosis or symptoms? What tests have you had done? We have just had a CT and Blood Work. Should we have a lymph node removed and tested? Doctor said we could but didn’t give much detail as to the benefit. Thank you.

posted about 1 month ago
A MyLymphomaTeam Member said:

Hi I have SLL I have swollen lymph nodes in neck also I’ve had a ct scan and bloodwork go back to oncologist in October I’m on watch and wait I had a needle biopsy that’s how I knew I had SLL

posted about 1 month ago

Nutrition

Nutrition

Hi Cindy
I am Shereen and my mom has got NHL in her blood test, it states that she has a chronic lymphoproliferative disorder. She is clear from viruses, CRP 18, LDH 225, TSH 2.1. Liver and kidney functions are normal. The ultrasound resulted an enlarged spleen a size of 27cm. She is 79 years old. Doctor suggested a chemo for 6 months twice per month, however due to her weaknesses and old age we decided to live with it, especially she won’t accept going through this procedures. We need to have… read more

posted about 1 month ago

What Is The Effect Of Alcohol On Hodgkins Lymphoma Lymphoma After Completing Its Treatment?? Any Experts Please Ans

What Is The Effect Of Alcohol On Hodgkins Lymphoma Lymphoma After Completing Its Treatment?? Any Experts Please Ans

I want to know as if alcohol intake will be factor to remission of hodgkins or amount of alcohol consume is also the factor?

posted about 2 months ago
A MyLymphomaTeam Member said:

I'm not an expert but an oncologist told me that non-hodgkins lymphoma - alcohol will exasperate your symptoms. I quit alcohol all together.

posted about 1 month ago

Do You Use Things Spiritual In Dealing With Your Cancer?

Do You Use Things Spiritual In Dealing With Your Cancer?

Do you use things spiritual in dealing with your cancer?

If so what do you use? Prayer? Meditation? Certain books? Church, synagogue or mosque? Music? Poetry? I ask because I'm always looking for useful spiritual tools. Personally I use 12 step material and the book A Course In Miracles along with prayer. And there are certain organizations that I've found useful, that send out free booklets and magazines. But I'm always looking for useful things to add to my repertoire.

posted about 2 months ago
A MyLymphomaTeam Member said:

Prayer and meditation

posted about 1 month ago
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