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Anyone On Here Have Diffuse Large B Cell Lymphoma?

A MyLymphomaTeam Member asked a question 💭
Huntsville, AL

I didn't see it listed as one of the "lymphomas". I was diagnosed February 20, 2019. I had chemo and was told in October that I was in remission.

February 12, 2020
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Answer Summary

Members shared their experiences with diffuse large B-cell lymphoma (DLBCL), with many reporting successful remission after R-CHOP... Read more

Members shared their experiences with diffuse large B-cell lymphoma (DLBCL), with many reporting successful remission after R-CHOP chemotherapy, though treatment timelines and outcomes varied widely from complete remission within months to recurrences requiring advanced therapies like CAR-T cell treatment. Several members described persistent side effects including neuropathy, fatigue, cognitive difficulties, muscle weakness, and compromised immune systems, with many emphasizing the importance of staying active, monitoring bloodwork closely, and maintaining a positive outlook throughout recovery. A recurring theme was the challenge of finding others with lymphoma in the same location, particularly for rare presentations like brain involvement, alongside deep gratitude for successful treatment, supportive medical teams, and the strength found through faith and community connection.

A MyLymphomaTeam Member

I had stage 5 DLBCL Diffused Large B Cell Lymphoma they said I wouldn't make it, as of January I am 6 years in remission, you can beat this

February 17, 2024 (edited)
A MyLymphomaTeam Member

Everyone experiences different side effects but mine haven’t been too bad so far. I’m getting RCHOP number 5 next week. I still manage to walk around the nearby streets every day but my neuropathy is getting worse . I’ve never had nausea cos I take the medication. 💊 contstipation and diarrhoea can also be managed with 💊. Haven’t felt much like eating cos food just doesn’t taste that good . Have lot about 5 kg but that’s ok . Keep a record of your side effects and let your dr know before your next treatment. Be pro active !

December 26, 2023
A MyLymphomaTeam Member

Your the same story as me I had NHL with Diffuse Large B Cell last year, today I am in remission since Oct 2023

May 1, 2024
A MyLymphomaTeam Member

Did you get Rchop treatment? I'm getting it now supposed to get 6 cycles every 21 days.

November 8, 2023
A MyLymphomaTeam Member

I was diagnosed December 2021. Started chemo in February 2022 and ended chemo in July 2022. Oncologist says I’m in remission now and my next PET scan is in February 2024.

September 5, 2023

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