Anyone On Here Have Diffuse Large B Cell Lymphoma? | MyLymphomaTeam

Connect with others who understand.

sign up log in
About MyLymphomaTeam
Powered By
Real members of MyLymphomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
Anyone On Here Have Diffuse Large B Cell Lymphoma?
A MyLymphomaTeam Member asked a question 💭

I didn't see it listed as one of the "lymphomas". I was diagnosed February 20, 2019. I had chemo and was told in October that I was in remission.

posted February 12, 2020
View reactions
A MyLymphomaTeam Member

I was diagnosed with DLBCL in February 2020. Through biopsy on an enlarged lymph node in my groin- no other symptoms. Had six rounds RCHOP therapy and in remission- will have a scan end of this month. Hoping for three years clean.

posted June 4
A MyLymphomaTeam Member

Diagnosed in 2015 with DLBCL and 6 cycles of Rchop and in remission

posted September 11
A MyLymphomaTeam Member

I was diagnosed December 2021. Started chemo in February 2022 and ended chemo in July 2022. Oncologist says I’m in remission now and my next PET scan is in February 2024.

posted September 5
A MyLymphomaTeam Member

Ok, showing my lack of knowledge and don’t want to drag out original , mine was Large B Cell NHL , are all called diffuse , or not. I shall look up later, mine was discovered in 2021 in Dec after months of numb right fingers and excruciating pain in right shoulder. I had two bone marrow as first ones the B was smashed , I had 5 radiation on 7 c in neck success, then 6 RCHOP. I had 9 spots but none in bone marrow or vital organ so , that was good news, my body at 78 tolerated it all well, yes the platelets and white hit bottom, but they said they expected that. When I asked the first oncologist what stage I was he said 5 , I asked if I had 10 years , he said let’s get you to 80 first, which was ok with me, I appreciated his honesty , he also said because of my age I wouldn’t get a stem cell. I did switch Oncologists after two RCHOP as he went on vacation for 2 weeks and who ever was covering clinic ignored two calls over Easter and I drove self to nearby ER and had a blood clot in jugular from the port line,was on heparin and in hospital called where I had the Radiation and asked him if he could ask oncilogist to see me and take over, best move I ever made. I hit remission in July had port removed in August and 4 spinal infusions of methotrexate for prevention as he said if it comes back it will be bones and brain, I appreciated the honesty . So here ai am ready to do Labs almost a year after remission and feeling wonderful, heading to 80 in Sept, I read, walk , bake quilt try new recipes and am thankful for each day I have . No it wasn’t all roses I had to put my husband of 58 years in memory. Care as he was diagnosed in 2014 with ALZ , it was harder , sadder then my cancer , we celebrated 60 in Feb this year, and no he doesn’t know I am the wife , but I know who he is .

posted May 29
A MyLymphomaTeam Member

I would just like to add for those that don’t have good luck with chemo and or radiation and CarT is offered to you…go for it!
I was diagnosed in May of 2020 with Diffuse large B cell double hit, stage 4 and went through 2 series of chemo treatments that did not do the trick! My cancer then transposed to Follicular. Grade 3B!
Then I was offered CarT cell immunotherapy and just had my 18th month clear scan in January!
None of these treatments are easy but if the results are good, it is so worth it!
I am back to my “old” self and thank God every day for my life back as well as the help of excellent doctors, nurses, and love and prayers from family and friends!
Keeping a positive outlook is half the battle, in my opinion, and I know sometimes that is tough, but you gotta do it….be strong, be courageous and keep the faith…we must all win this war!

posted April 6

Related content

View all
Has Anyone Ever Been Diagnosed With Two Different Types Of Lymphoma?
A MyLymphomaTeam Member asked a question 💭
Relapse Of Diffuse Large B-cell Lymphoma
A MyLymphomaTeam Member asked a question 💭
Any DLBCL Folks On Here?
A MyLymphomaTeam Member asked a question 💭
Continue with Facebook
Continue with Google
Your privacy is our priority. By continuing, you accept our Terms of Use and Privacy Policy.
Already a Member? Log in