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Has Anyone Been Put On The Wait And See Program Without Being Given An Official Diagnosis?

Has Anyone Been Put On The Wait And See Program Without Being Given An Official Diagnosis?

I have had swollen lymphnodes in my groin for about 15 months, my right armpit for about 4 months, and in my neck which the hema-oncologist discovered about almost 6 weeks ago. Night sweats have been occurring for about 15 months now, however they used to happen randomly here and there (few times a month) they are now every time I fall asleep. I now wake up 2-3 times a night to change because I am drenched and end up shivering for 30-40 min afterwards. I have had terrible joint/body pain for the… read more

A MyLymphomaTeam Member said:

I have enlarged nodes on my neck and some also found with MRI on chest wall. I see my oncologist every 3 months. nodes have not increased and I have been in this cycle for the last 2 years. I had noticed the lump on my neck while shaving and ask my family doctor about it, he felt is was a reaction to some infection, this went on
for over a year before I had the first ct and finally a biopsy that confirmed NHL. So I have really been in a watch and check mode for over 3 years. As long as we see good blood test results and no significant increase in node size we will stay in the watch mode. I hope to stay in a watch cycle for as long as possible.

posted about 2 years ago
A MyLymphomaTeam Member said:

Yes back24 years ago because it was slow cancer growth .instead of fast growing you had
Time and did not have to start treatments yet
That also means
Because it was slow
U didn't need treatments
Right away .ina way
Cancer treatments are
Harsh and draining
And you have time to
Prepare for it .

posted about 1 year ago
A MyLymphomaTeam Member said:

Yes back 24 years ago
I wanted to get it started because I only had 6 months to live at the most I was put watch and whate I had
H.l. but when my cancer
Had progressed my cancer doctor was ready to start my treatments at o.h.a. of spfd.mo I was scared but I had no choice if I wanted to live at the end
Of six months I was in remission . I did follow
Up.s for 24 years so I could catch it if it returned. This year was my 24 year .I whent to
My cancer doctor .instead of saying see you next year. He said come back in two months .on June 30 th
I go back to see my doctor . Now I'm facing the prospects of taking
Cancer treatments again
I'll know more then
Wishe me good luck.

posted about 1 year ago
A MyLymphomaTeam Member said:

I had a wait andsee dr at first. I switched to a new hospital and my new hematologist oncologist said radiation snd not wait. I always like a second opinion

posted over 1 year ago
A MyLymphomaTeam Member said:

The first thing my oncologist asks when I see him is...do you have any night sweats? That's the red flag. I never had night sweats and went crazy! It took me 6 months for diagnosis. I was sent to a rheumatologist to see if I had Sjodgrens...had to wait weeks for appt. I went before...told the receptionist that I would sit there all day in case she had an opening. I brought my lunch. They squeezed me in.

posted about 2 years ago
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