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Has Anyone Been Put On The Wait And See Program Without Being Given An Official Diagnosis?

Has Anyone Been Put On The Wait And See Program Without Being Given An Official Diagnosis?

I have had swollen lymphnodes in my groin for about 15 months, my right armpit for about 4 months, and in my neck which the hema-oncologist discovered about almost 6 weeks ago. Night sweats have been occurring for about 15 months now, however they used to happen randomly here and there (few times a month) they are now every time I fall asleep. I now wake up 2-3 times a night to change because I am drenched and end up shivering for 30-40 min afterwards. I have had terrible joint/body pain for the… read more

A MyLymphomaTeam Member said:

I have enlarged nodes on my neck and some also found with MRI on chest wall. I see my oncologist every 3 months. nodes have not increased and I have been in this cycle for the last 2 years. I had noticed the lump on my neck while shaving and ask my family doctor about it, he felt is was a reaction to some infection, this went on
for over a year before I had the first ct and finally a biopsy that confirmed NHL. So I have really been in a watch and check mode for over 3 years. As long as we see good blood test results and no significant increase in node size we will stay in the watch mode. I hope to stay in a watch cycle for as long as possible.

posted over 1 year ago
A MyLymphomaTeam Member said:

You are absolutely right we have a I don't know how to explain but I think we understand the emotions the pain just the whole journey so far it like changed me .

posted over 1 year ago
A MyLymphomaTeam Member said:

I had a terrible rash on both my legs before diagnosis. Very itchy. And my lymphoma was in my face and neck!

posted over 1 year ago
A MyLymphomaTeam Member said:

I've been experiencing skin and nail problems today 2 of my toe nails fell off and I ask my son if he could look it up if after transplant that happens waiting for answer if anyone out there has comment please reply thx and god bless

posted over 1 year ago
A MyLymphomaTeam Member said:

forget the wait and see. Wait until tomorrow and see another doctor. Severe night sweats ate not a good sign.

posted over 1 year ago
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