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Real members of MyLymphomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Has Anyone Ever Been Diagnosed With Two Different Types Of Lymphoma?

A MyLymphomaTeam Member asked a question 💭

June 2019 i was diagnosed with primary cns lymphoma.
This year in march i had an ovary removed. They found diffuse large b cell lymphoma. My oncologist wants to put me on the r-CHOP regimen with stem cell transplant to follow as maintainance therapy.

May 15, 2021
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A MyLymphomaTeam Member

I was diagnosed with DLBCL 3/2019 which had developed from transformed follicular lymphoma- I still had both cells in my tumor and also a micro cell of papillary thyroid cancer- so I basically had three at one time. I had the lymphoma tumor removed (10cm- completely encased in my thyroid) and although my post op pet scan was clear I was advised to do chemo- so I did 4 cycles of RCHOP at Fred Hutch in Seattle. At the recommendation of Dr. Westin @ MD Anderson ( I went for a second opinion prior to starting chemo) I needed to only do 4 cycles vs. the standard 6 based of the efficacy results of a clinical trial (Flyer trial 12/2019) - That was 4 years ago. I am still cancer free ❤️

December 19, 2023
A MyLymphomaTeam Member

I was originally diagnosed with Waldenstroms-- lymphoplasmacitic lymphoma and it then transformed to a second type, DLBCL. I have been in remission from both for two years, although my most recent PETSCAN found a hot spot in my colon. I am waiting for a biopsy to report to see if it is lymphoma or infection/inflamation. (Follow-up note:The Biopsy is negative- but I appear to have strictures most likely related to radiation to sacrum and chronic infection)

December 4, 2023 (edited)
A MyLymphomaTeam Member

Yes, Hodgkins and Non-Hodgkins. One is more aggressive. I had a bone Marrow Transplant (my own) and am in remission about 4 years.

December 27, 2023
A MyLymphomaTeam Member

Yes in 2001, Large Cell type B. Cancer free for 22 years. 2023 small cell type B, non curable however in remission and getting maintaince treatments every 8 weeks.

January 24
A MyLymphomaTeam Member

I was treated for follicular lymphoma last after I relapsed from 14 yrs ago, but also had marginal zone and smoldering myeloma in my biopsy. the Bendamustine that I got last yr might have slowed those 2 down a bit. Time will tell! keep the faith!

April 30, 2023

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