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June 2019 i was diagnosed with primary cns lymphoma.
This year in march i had an ovary removed. They found diffuse large b cell lymphoma. My oncologist wants to put me on the r-CHOP regimen with stem cell transplant to follow as maintainance therapy.
Yes I have I have Marginal Zone Splenetic Lymphoma with Acquired Angioedema and
Waldenström macroglobulinemia.
I was told by my Mayo Clinic Cancer Doctor, Rochester, Minnesota, there is a fine line between the two Lymphomas and it’s hard for them to know which one I have??
I had B cell lymphoma and CNS also and what they are saying you need is exactly what they did to me although I also received multiple Methotrexate infusions before the stem cell transplant
I was treated for follicular lymphoma last after I relapsed from 14 yrs ago, but also had marginal zone and smoldering myeloma in my biopsy. the Bendamustine that I got last yr might have slowed those 2 down a bit. Time will tell! keep the faith!
Yes, diffuse large B and follicular
Thanks so much!!!
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