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Real members of MyLymphomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Has Anyone Ever Been Diagnosed With Two Different Types Of Lymphoma?

Has Anyone Ever Been Diagnosed With Two Different Types Of Lymphoma?

June 2019 i was diagnosed with primary cns lymphoma.
This year in march i had an ovary removed. They found diffuse large b cell lymphoma. My oncologist wants to put me on the r-CHOP regimen with stem cell transplant to follow as maintainance therapy.

posted over 1 year ago
A MyLymphomaTeam Member said:

I have not but I have/had Large B cell and went through RCHOP. I've been in remission for a couple of months now.

posted over 1 year ago
A MyLymphomaTeam Member said:

I have Marginal Zone Splenetic Lymphoma and Waldenstrom’s Lymphoma. I’m currently doing Rituximab infusion one every 2 months. My IgM’s are high at 1,215 and we’re trying to get those to go down. It’s a part of you blood and normal is 50. If the IgM’s go as high as 1,700 I start a swelling of my abdominal area. If I don’t stop that it will cut off the blood supply to my colon and I would have to have it removed.
I have a shot Icatibant that I carry with my to administer if the swelling starts.
I haven’t found anyone with these two Lymphoma’s.
I started mine in 2009.

posted about 1 year ago
A MyLymphomaTeam Member said:

I have three types of blood cancer and 40 years ago had ovarian cancer. Currently it's Non-Hodgkin's DLBC and Hodgkin's Classic Nodular and the rare Waldenstrom's. They call my combination, minus the Waldenstrom's Grey Zone Lymphoma. I started with ABVD before they found the NHL in my bones. I had one round of R-CHOP before consulting with MD Anderson and then I was switched to R-EPOCH.

posted over 1 year ago
A MyLymphomaTeam Member said:

I have cll/sll Non Hodgkin's lymphoma and lgl logistic granular lymphoma a rare leukemia. Some of my blood counts run low and some high right now the Non Hodgkins lymphoma is the most bothersome but is ok because I am still with my family and enjoying the time I have with them

posted 3 months ago
A MyLymphomaTeam Member said:

Yes I have Been diagnosed with Marginal Zone Splenetic Lymphoma with Acquired Angioedema and
Waldenström macroglobulinemia. Since 2009.

posted 3 months ago
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