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How Do You Feel After R CHOP For Large B Cell Lymphoma. How Low Have Your Blood Counts Gone? Thanks.

A MyLymphomaTeam Member asked a question 💭
Pittsburgh, PA
December 17, 2021
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A MyLymphomaTeam Member

Jan2160,
Hi! I have/had DLBCL stage IV and was diagnosed in October of 2020. I had 6 treatments of RCHOP. I finished in February of 2021. I've been in remission for about nine months now. I lost weight and was down to 119lbs after treatment. I've tried to eat well and have gained 20lbs. I also walk daily in my house, I've made up a route. I walk and pray. After RCHOP I still felt weak and fatigued. I still get tired around 7pm at night. My blood count of my neutrophils and wbc went very low. My lymphocytes also were very low. I was told by my Oncologist that my lymphocytes could take up to a yr to get back to normal. The low normal number is 1 and I am at .81 at my last lab. It is and was very frustrating after RCHOP with the fatigue. I wanted to get right back to normal. But I was told it could take 6 mos to a yr. I have good days of feeling like my old self and some days are rougher still. I don't know if I'll ever feel totally like myself again but I'm blessed to be alive! My hair has come back curly! And it used to be super thick but now it's about half the thickness. But again, I praise God daily for hair. I think and know after RCHOP you have to have patience. (Something before lymphoma I didn't have) Your body will come back around. It just takes time to heal after the war it's been through. I hope my answer helps in some way and if you have any questions please feel free to ask me. I hope you have a good day! Kelly

December 18, 2021
A MyLymphomaTeam Member

I was diagnosed in April with stage 4 lymphoma large B. Had a turmor on my spleen that was 10.7 cm. I also had Hep C which cause the Cancer. Couldn't do chemo or radiation until the Hep C was gone. When in a 12 week medication to kill the virus. In may found out about medicinal mushrooms extracts and soursop aka graviola. Had lost 35 lbs and was very weak. Starting taking turkey tail reishi Chaga cordyceps agraricus blazie and soursop herbal leaves tea. Started feeling better in a few weeks and keep feeling better every day. Stop loosing weight and gain 10 lbs. On Sept 9 had a ultrasound and the turmor had shrunk to 6.7 cm. Without chemo or radiation! Had blood work done on November 1. Hep C gone and blood work was good everything in the normal range! Now I'm feeling great! Like I was never sick at all. Got all my strength back and look healthy again like I was before. I always ate organic and no fast McDonald's type foods. Never drank soda or other unhealthy stuff. I have a pet scan scheduled for January 15. Hoping to see turmor gone and lymphoma too! God gave us natural remedies for healing our bodies of sickness! Don't be afraid to try them! Chemo and radiation works to Kill cancer cells, but also kills the good cells... You go into the so called remission for around a year then cancer comes back. More chemo or radiation, another year or less cancer comes back! No it everywhere in your body! Then they tell you you got a few months!
Lost my wife to cervical cancer 17 years ago! Cancer always comes back! Natural remedies builds up your immune system to fight the cancer!
Most Doctor's will never support natural remedies to heal your cancer! No money to be made!!
God Bless! ✝️

November 19, 2022
A MyLymphomaTeam Member

I had RCHOP 6 most ago. My WBC is still low at 2 and neutrophils 2. Lymphocytes are low too. But I wonder whether this is what is keeping the lymphoma from returning? My lymphocytes are low too. I guess when these numbers normalize we'll see. Many people relapse in the first year after RCHOP. My oncologist sounds hopeful and yea I am too but I'm also a realist and a nurse. More treatment are badly needed for this disease esp for that group where the lymphoma returns. I was literally stunned when I got the lymphoma and was stunned to find the RCHOP with the exception of the Rituxan were the same chemo drugs I studied 40 years ago as a young nursing student. You hear so much about new treatments for cancer but it doesn't appear to be for lymphoma. Maybe with some of the celebrity getting the disease more attention will be focused on it. I still have floaters across my eyes my vision is less clear, I still get diarrhea out of nowhere, a disc herniated in my back halfway thru the RCHOP and I had surgery for that with infection my feet burn like crazy. The oncologist says none of this is from RCHOP. Come on now I know better. If the disease returns I won't take the RCHOP again. He agrees. wow imagine that I thought I had no side effects from it.

December 3, 2022
A MyLymphomaTeam Member

Wow, thanks for sharing Diane8. I had 6 rounds of RCHOP and have been in remission for 13 months now so 15 years for you gives me hope. I pray your treatment is going well and for healing and recovery too. God bless us all. 🙏🏾

December 5, 2022 (edited)
A MyLymphomaTeam Member

Janet & Joseph, Thank you for this information. Where do you get the natural remedies you mentioned? Are these legal drugs in the US? I drink green tea all day, eat small portions of food, lots of fresh green veggies, spinach, kale, romaine lettuce and fruit. I live in KS.
I've been on this cancer journey for 10 yrs. So many chemo infusion treatments, oral chemo drugs, radiation, prescribed meds, SCT and now CAR-T scheduled for Dec 5th. My wbc, rbc, platelets and neutrophils are always low! I battle fatigue, use a walker or cane. Working on balance and getting stronger. I was diagnosed with DLBCL earlier this year. Praying for remission!

November 27, 2022

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